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Could his be endometriosis or something more sinister?

9 replies

cookielover17 · 13/01/2022 17:18

Im posting yet again and at the risk of sounding paranoid… I just feel like something isn’t right and I can’t shake that feeling off 😕

More than a week ago (10 days or so) I felt this weird cramp on my pelvic area, like a diarrhea/period cramp. Got a bit of bloody discharge for 2 days, day one was the tiniest bit of fresh blood, day two was brown mucus. Then it cleared up. But the pain never went away; in fact it’s moved to my back and it’s been going back and forth. At first I felt something pressing on my bladder, I didn’t pee me or had any difficulty peeing or going to the loo. But then I googled it… worst mistake ever!

Then I remembered my last period, albeit regular, was a day longer. At the time I was under remendos amounts of stress so it could’ve been that. The pain is dull mostly near the pelvic bone (iliac crest) but sometimes goes back and forth between my ovaries (or what I think is the ovaries), then to my back, then to my glutes.

I can eat just fine, in fact I could eat a horse lol. No bloating (or so I think, I’m starting to think I’m bloated when I’m not), no increased frequency in urination. I went to my GP6 days after the pain started. Not in the UK and I have a couple contacts who got me an appointment on that same day.

GP scared me. She said she felt something hard on my tummy, like a cord of sorts. Sent me to A&E after talking about “a mass”. Of course I broke down and started crying. My DW (im a female too) tried to calm me down to no avail, drove me to A&E, waited 7 hours. Had pelvic ultrasound done, nothing. Bloods, slightly elevated bilirubin but that was it. The doctor preforming the scan did say there was a tiny tiny cyst on my ovary but they were clear as day.

Was sent home however I couldn’t stop thinking about it. Scheduled with a gynae, they got a cancellation that day lucky me I got an appointment for a few hours later. The pain is not worse however it bothers me a lot. Gynae was amazing I did tell her I was concerned about cancer. She was extremely nice. Did a pelvic and transvaginal ultrasound, she couldn’t find anything… the Transvaginal scan was a lot clearer than the pelvic one; she thinks the cysts is an enlarged follicle since it’s so smal. She told me to scheduled another pelvic scan in a month to check things out. She also palpated me along with 3 other doctors but they didn’t feel anything… the pain is weird to day the least, like twinges. It’s taking over my life and I’m absolutely petrified.

My bowel movements haven’t changed except for the day I went to A&E. I was so nervous I must’ve pooped 10x that day. I was not fobbed off thankfully but I’m still scared and wonder why the GYnae requested another ultrasound in 4weeks time. She was fully transparent with me.

Can someone calm me down Sad I’m petrified. The pain hasn’t gone but hasn’t gotten worse at all, my periods are very regular and I’m anxiously waiting for this months period. I was extremely gassy for 3-4 days, when the pain was worse. Now I know that if I get a CT, my mind will tell me the CT won’t catch anything. I’m scared out of my mind. Apologies for my ramble. I’m 22 If that helps.

OP posts:
G123454321 · 14/01/2022 16:18

Aw sweet. It's so tough trying to get the right diagnosis for anything these days. Have you been diagnosed with endometriosis before, or is it something that has been suggested as a cause?

PS I have endo, diagnosed when I was 23. I'm 38 now. xx

cookielover17 · 14/01/2022 16:33

Luckily my GP and gynae took my concerns seriously. Got an ultrasound the same day I went to the GP. No I have not, I’m 22 years old but honestly I’m desperate and not sure if what I should do… gynae told me it’s possible but not likely…. I’m just so terrified. Can’t even eat

OP posts:
G123454321 · 14/01/2022 16:44

That's good that they are taking you seriously. I went through hell getting a diagnosis. Have they advised you on what they will do next to help figure it out? I was finally diagnosed through a laparoscopy.

cookielover17 · 14/01/2022 16:56

Not there yet. Had 3 scans in the same week there’s absolutely nothing that can be felt yet I’m 100% convinced I have OC, I know something isn’t right 😕 I was talking to my mum over the phone and she mentioned she needed her uterus cleaned because there was “cysts or excess tissue” before she got pregnant with my brother. She had a really hard time. What were your symptoms? I will have a repeat ultrasound in 4 weeks time and go from there… I know it’s rare for masses to not be picked up in US but I’m so negative right now… even my little one knows something is wrong with me…

OP posts:
G123454321 · 14/01/2022 17:02

The only thing my ultrasounds ever showed up were ovarian cysts. My main symptom was severe pain on one side and I bled for 10 months solidly.
It took me several doctors before I got to a gynae and I shouldn't have followed her advice as its left me worse off. But, you live and learn.

It sounds like your mum had a hysteroscopy where they scrape out excess lining from inside the uterus. I've had that multiple times for polyps.
There are so many other conditions that can mimic endo to be aware of. Adenomyosis is one.
When you have the scan, really try to push for a laparoscopy. That's the only 100% sure fire way for a diagnosis.

Fuzzyduckduckyfuzz · 14/01/2022 21:42

Op it sounds more like you have health anxiety x

cookielover17 · 15/01/2022 11:33

My pain seems to be a ton better but still there… GP also ordered an X-Ray. Hoping she’s just being safe as they could not find anything on 3 ultrasound. I’m already dreading my follow up scan and x ray. I think my mum had polyps and a fluid filled Fallopian tube 🙁 the feeling in my bladder is now completely gone.just the weird, faint pelvic pain. I’m trying to tell myself that 1 of the scans would’ve seen something since they were so clear!

OP posts:
cookielover17 · 15/01/2022 11:37

I have health anxiety and I know it, but you can’t help it when you google it and so many women had clear scans or were dismissed with the same symptoms, turned out to be cancer. And so many other were told it was anxiety and it wasn’t 🙁🙁🙁

My GP was a bit alarmed which didn’t help at all when she said she was sending me to accident & emergency to check if there was “any masses” after she palpated me. The terror I felt was horrendous as my dream is to get pregnant someday! My DW carried our first child and we were already planning on book a fertility appointment 2 days before the pain started.

OP posts:
irishsea123 · 25/10/2024 12:51

Hi OP how are you now

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