Triple negative breast cancer

[strawberrysummer19]

I hope someone maybe able to help me

My mum has just been diagnosed with the above and it's knocked her ( and me) for 6

From what I've researched and from what my mums told me it's an aggressive cancer with a poorer prognosis for recovery

I had never heard of triple negative before hand and I just want to support her as much as I can

She goes in for her operation in 2 weeks and then has chemo, radiotherapy over 9 month treatment plan.

I don't know where I start but I'm thinking about good foods to eat for when she starts chemo as she has been told this is awful and can make you very poorly

So I thought I'd try the lovely Mumsnet as I use this board for pregnancy thread

Thank you in advance xx

I am so sorry that your mum and your family are going through this.

It really depends on what chemo she has, usually TNBC is given EC and then either Docetaxol or Paclitaxel.

If you are on Facebook then the Breast Cancer UK group allows relatives of breast cancer patients to join and get advice. There will be lots of knowledge of triple negative breast cancer in there.

Everyone has a different reaction to chemo, I wasn't sick at all but had dreadful bone pain on the Taxol part. You can ask for the dose to be reduced if the side effects are very bad and there are other drugs that can be prescribed to counter side effects. Your mum will meet with her oncologist before every round of chemo as well as before it even starts.

I'm so sorry, it's a real shock.

My mum was diagnosed with what they thought was TNBC last Feb (later found it was weakly hormone positive). She's out the other side now and says it wasn't quite as bad as she imagined! She had a lumpectomy, 6 rounds of chemo, full node clearance and then a month of radio.

Chemo is nasty but she didn't seem to get too many bad side effects. Mainly altered taste/sore mouth/aches and pains. And overall she remains much lower in energy than she used to be although she's improving every day! Treatment lasted about 9 months from start to finish. It's a lot less scary once you know a treatment plan.

Just make sure to stay off Google, as all the info on there is very out of date to do with TNBC and there are more treatments available now so outcomes tend to be a bit better!

Sorry to hear about your mum. I agree with the previous poster's advice to stay off google, but I would recommend the Breast Cancer Now website - I was diagnosed in July (not triple negative) and the information and forum on their site has been a fantastic support. I just checked and they have a whole section on triple negative, and the forum will have lots of people with a similar diagnosis to your mum I am sure.

I'm so sorry op, I just wanted to say my friend had this exact breast cancer and obviously she is younger (early 30s) she rang that bell nine months after starting treatment.
The treatment really did take it out of her, always the day after was worse for her. She also had the cold cap treatment, she didn't loose all of her hair but still the majority.
Obviously, this isn't my experience I'm just sharing what my friend shared with me.

Thank you so much everyone, I've passed on to my mum which is nice for her to hear some positive stories and some real life experiences also.

I'll have a look at that Facebook page and I'm also interested in diets and foods.

Z