Any radiologists

[marthasGinyard]

I posted about this before it was an MRI done to rule out MS.

I'm having symptoms of MND and PBP and I'm worried about the links on here with spinal cord narrowing and moulding.

Dr's are baffled as never even had a back ache.

I believe I had a spontaneous csf leak in April which is when my symptoms began.

I'm going through hell only kindness and honestly please.

A 'highly renowned' dr on a forum said I needed spinal surgery.

I've never even had a bad back could this all be the early signs of mnd I've read about.

Many thanks

Op:

Please stop doing this to yourself
You've had multiple threads on this and replies from Dr's and experts and you just don't want to hear it.

You are obviously experiencing physical symptoms but - as many other posters have said - you have been through trauma and that needs addressing.

I feel for you - I have kids too and have had 3 x 2 week cancer referrals since January and Dr google is NOT your friend. (I was on the cancer support thread when you "knew" you had cancer...)

I have had 2 x csf leaks in the past and I'm still here.

Check out gabor mate books on the bodies reaction to trauma.

Please stop this. Its not helping you.

I'm sorry to hear you not well. iI need some professional guidance. Everything I hear is so conflicting. My symptoms are awful and progressing so quickly.

I was hoping for a radiographer to see my post.

Csf leak was left untreated

Your name is in the bottom of the report. Not sure how to report for you.

You're obviously having distressing symptoms. I'm not disputing that.

It's awful and very Isolating and I know that's why you're reaching out on here but you are ignoring what Dr's are saying.

You've convinced yourself - via Google- that you are dying. I get it. I've done it myself! But it's getting to the point where this is not healthy from a mh pov.

You've had radiologists reply on previous threads.

Sadly any dx takes time - especially neurological dx - it took well over a year for me to be seen by the correct hcps so I do understand your frustration and fear.

But you will not get the response you need here.

Have you reached out for mh support?

I'll report thank you

So were mine...

Your name is on the report op, you need to ask mn to take it down and repost reacting your details

Who is this renowned doctor and on what forum? Doctors don't normally recommend surgery on the basis of what you post on a forum.

I'd echo Opal8's advice, please seek help for the understandable anxiety you are experiencing.

I was hoping for some professional on this thread not just the same as last times.

But you have no idea who is a professional radiographer on MN. This is not helpful OP.

Hi, @marthasGinyard. Just to let you know, another Mumsnetter reported your thread as there was some identifying information in one of your images, so we've removed that pic now.

Your report has already been reviewed by clinical professionals. Why don't you believe what they say?

Honestly, op, get some help/counselling. Ask your gp. You can self refer.
Check our those books xx

Reports should be interpreted in context- that is, taking account of the full history and examination of the patient. No one on the internet (radiologist or not) can do this for you.

I hope things get better for you OP.

What do you want a radiographer to say? You know they are the individuals that administer the scans/diagnostics? Not the radioloGISTS that do the clinical review. Not decrying the skills of the radiographer but they're not going to provide you with any more info.

The scan has been reported on, and in my (limited) understanding of spinal MRIs there's nothing of concern there, at least nothing that jumps out. Have you discussed the report with your consultant or go? Ransoms on the internet cannot give you any more info other than to translate the medical jargon on there (by googling).

Csf leaks are usually not treated unless they cause exceptional symptoms such as horrendous debilitating headaches etc

I wish you all the best

The other page.

With respect please refrain from the pile on I've asked for a specialist to read through if they get they chance.

I have counselling from my local team.

'Not the radioloGISTS that do the clinical review.'

Which is why I requested a radiologist in my title just incase there was any around

But you have no idea if someone replies and says they are that that is true.
You’ve already had a professional opinion. You could always pay for a private one if you wanted.
Keep on with the counselling.

It’s really inappropriate to be soliciting medical advice from strangers on the internet OP. You have no idea who they are and you’ll likely just end up getting more conflicting and incorrect information. If you need more information then you need to book face to face (or even telephone) appointments with your own specialists. And look into some counselling.

You e post d about the same thing and the same report before. You need to talk to your doctor and perhaps have some counselling for you anxiety

Thanks to all the 'radiologists' who have commented

@marthasGinyard

I posted about this before it was an MRI done to rule out MS.

I'm having symptoms of MND and PBP and I'm worried about the links on here with spinal cord narrowing and moulding.

Dr's are baffled as never even had a back ache.

I believe I had a spontaneous csf leak in April which is when my symptoms began.

I'm going through hell only kindness and honestly please.

As I explained on your previous thread....

Narrowing of the spinal canal is not a symptom or cause of MND (or PBP).

Neither is MND caused by CSF leaks, nor does it cause CSF leaks.

I'm not saying there isn't a problem that needs investigating. But in kindness and honesty I would recommend you stop trying to convince yourself that you have MND - and take advice from the doctors you have been seeing.