Any Radiographers/Dr's about so so worried

[marthasGinyard]

I think I have MND and my spinal MRI is Below

OP seriously - I've read past threads. I suffer health anxiety BUT I'm very aware that I do. You really need to face up to that. Constant tests and reassurance won't work.

I'm not a doctor, but asking as I had a brief period a couple of months ago where I too was terrified I had MND. I also suffer from healthy anxiety, but also had worrying neurological symptoms.

Turns out I have a tumour on my spinal cord. Clearly not good news, but I've told its probably benign and they should be able to remove it. My point is, that while you may be convinced its MND you have no way of knowing that. You're not a doctor, you haven't had all the necessary tests, and so attempting to self diagnose is pointless. Your symptoms could be caused by health anxiety, or they could be down to something else entirely - something relatively minor , or something huge. But until all necessary tests are concluded, no one knows.

Based on my own obsessivecompulsive Googling, I could tell you that MND is unlikely, and is usually suggested on an EMG even before symptoms are evident, but I know from personal experience that won't reassure you! So perhaps trying to manage your anxiety while you wait for answers is the best way to distract yourself from the worry? I personally found this helpful www.cci.health.wa.gov.au/Resources/Looking-After-Yourself/Health-Anxiety

Good luck!

I'm aware that anxiety doesn't show on an MRI

Then why did you state

Sadly it's not down to anxiety I have had a head mri which was clear.

Rosamond

I hope all is well for you. That's what my GP was hoping to see or signs of MS. I think the cord moulding, narrowing and other things on this spine MRI point to what I fear the most from reading.

Just woke with blood in my mouth again biting tongue in night, paradoxal breathing, involuntary swallowing it's all too much to deal with.

Benign fasiculations aren't like these tiny ripples I get constantly. They haven't stopped since August.

@marthasGinyard

Rosamond

I hope all is well for you. That's what my GP was hoping to see or signs of MS. I think the cord moulding, narrowing and other things on this spine MRI point to what I fear the most from reading.

Just woke with blood in my mouth again biting tongue in night, paradoxal breathing, involuntary swallowing it's all too much to deal with.

Benign fasiculations aren't like these tiny ripples I get constantly. They haven't stopped since August.

You have no demyelination - as a pp pointed out that essentially rules out MND.

Have you had B12/vitD levels checked?
Honestly you sound incredibly anxious and focussed on the worst case scenario despite the evidence to the contrary

'You have no demyelination - as a pp pointed out that essentially rules out MND. '

Incorrect I believe

That rules out MS

Of course I'm worried I've got every symptom under the sun

6-9 months for diagnosis generally I'm 5 months in.

And what will you do when the diagnosis comes back saying it’s neither mnd or ms? I would strongly suggest it is anxiety based.

When it comes to MND you appear to be thinking about this the wrong way around.

For people with problems - spinal MRI and lumbar puncture are used to look for OTHER causes of those problems (NOT MND).

E.g. if you are experiencing limb weakness - then bulging discs and stenosis of the spinal cord canal could be a mechanical cause of this, that could explain the symptoms. A cause that has nothing to do with MND - and a cause that is potentially treatable (unlike MND).

Where there is a suspicion of MND, someone having a spinal MRI will often desperately hope that it shows disc bulges and canal stenosis that could explain their symptoms.

(I have seen someone go through the diagnostic process for MND so am very familiar with these issues).

To summarise - there is nothing on that report that points to MND - only other possible issues.

Also - if you don't mind me asking - did you by any chance request this scan yourself and have it done on a private basis?

Or was it requested by a neurologist? What specific problem did your GP refer you to the neurologist to investigate?

OP you joined cancer threads earlier in
The year because you 'knew' you had cancer.

Stop.

How did you get a copy of the MRI report? I’ve never had a copy.

Your symptoms sound awful, I really feel for you. BUT what I'm trying to say is that even if you have all the major symptoms of MND that doesn't necessarily mean that's what it is. And it is potentially a bit of a wait to find out whatever is causing it, and if you continue like this you will be a wreck.

Whatever the outcome is, you'll need a way to manage the anxiety that will come with it.

How did you get a copy of the MRI report? I’ve never had a copy.

Snap. I've had many MRI's and never had a copy.

To get a copy of your MRI's you can ask for a form to fill in and you will be sent a copy and the report on a disk free of charge (NHS). I always ask at the time of the scan and the radiographers will provide the form. If it was done a while ago you could contact PALS at the hospital it was done at.

@thaegumathteth

OP you joined cancer threads earlier in The year because you 'knew' you had cancer.

Stop.

Yep @mnhq need to zap this thread The op needs professional mh help

What a horrible attitude so much time on your hands to go sniffing about old posting history. That's why I changed my name back from 'refuge mum' as I've been here years and have had some wonderful support from many posters.

Yes I lost 3 stone in 3 months and vomited blood coming from both ends was in hospital a week. Yes I did join the cancer thread at one point and posted twice prior to the haematosis. I also had a breakdown at the time and was pretty poorly.

However, my symptoms are real as confirmed by the Dr and sometimes when you've suffered in the past real symptoms can become overshadowed. I was treated appallingly by my old GP. She's arranged another MRI and CT scan as she thinks dura could show damage?

HQ can do what they want with my thread.

Thank you to all the professionals who posted, and the posters who have shared their experiences with me. It's been supportive.

Bobbie it was an NHS scan.

You know the process of elimination. The Neuro said it doesn't account for my symptoms LMN fasiculations etc.

I was hoping brain and spine would show something as per a previous posters post.

Early EMG can be unreliable on tongue too so they said it's watch and wait for another 3 months.

Also Neuro requested scans to rule out Parkinson's and MS.

Apparently signs can show up on spine that are an 'indication' of possible MND

I have fasciculations which are probably caused by a combination of prescription drugs and anxiety. No medical professional has ever been worried about them. From what I understand fasciculations in MND come after clinical weakness, you don't get them first.

I had other issues prior to the fasiculations and my symptoms are worsening at a rapid rate.

This is a pretty standard and unremarkable MRI report.

thaegumathteth
OP you joined cancer threads earlier in
The year because you 'knew' you had cancer.

Stop. 
Yep
@mnhq need to zap this thread
The op needs professional mh help

@Opal8

There is just no need for that, if op does need profession Mh help there is still no need to be so nasty.

@marthasGinyard hope everything goes okay, I know how worrying it can be waiting for test results/appointments

@marthasGinyard

Also Neuro requested scans to rule out Parkinson's and MS.

Apparently signs can show up on spine that are an 'indication' of possible MND

MRI is not used to diagnose MND.

It is used to diagnose or rule out other causes of problems (e.g. MS).

The reason is you wouldn't see anything related to MND on a spinal MRI until the disease was very advanced - i.e. SEVERE muscle atrophy when someone has lost most use of their limbs. And at that point a neurologist wouldn't need to look at an MRI to diagnose MND - they could likely tell just from examining the limbs.

Nothing you've written on this thread really points to MND (something I have unfortunately seen).

And I've no idea what an "involuntary swallow" is? In MND people often have difficulty swallowing when they want to - not a problem with swallowing when they don't want to.

I'm not 'sniffing around' OP I'm doing it because I recognise someone who has severe health anxiety and is in denial. Constant reassurance will not help you

One way

Recognise you and thank you