Antiphospholipid Syndrome - who diagnosed you?

[KittyB52]

I have been told by my rheumatologist that I might have antiphospholipid syndrome as my blood test was borderline. I can’t get access to my test results to find out when this test was done, or how ‘borderline’ it is. Neither can my GP - apparently the hospital test results are not shared with my GP .

It’s become an issue as I want to start HRT and rheumatologist is insisting I can only have transdermal HRT as I am higher risk (due to the borderline test result).
My GP has referred me to a menopause clinic, but without any test results, will they be able to help?

If you have been diagnosed with APS, was it a haematologist or rheumatologist who diagnosed you?

From my experience it’s been the Rheumatologist that deals with APS - there’s a really good group on Facebook and health unlocked that are a wealth of information.

Oh, bum. The rheumatologist only mentioned the borderline APS after I told her I was considering HRT - that was the first time I’d heard of it.

What is the name of the FB group please?

Do you know which test that you had, did they repeat it after 12 weeks?

The Facebook group is: Antiphospholipid (APL/APS)/ Hughes syndrome, I know there was a query recently regarding HRT - hope you get some answers.

I don't know which test it was, unfortunately. I've tried to get sight of my test results a couple of times, but all I've had is a leaflet about APS sent in the post.

I will look up that group, thank you.