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EMG next week second MRI and third blood test. Anyone for a hand hold?

10 replies

IncessantNameChanger · 03/10/2021 00:13

Feeling very sorry myself but I'm quite worried about the EMG needle nerve test. I haven't really talked to anyone about these tests except a friend who knows I'm having them, not about what results might mean.

I suddenly dont get comfort in talking about my worries since this year. I have found a few close relatives have been told some things and just carry on as if I haven't said anything. My dd was diagnosed with ASD and I told my sister who just ignored me. I think a part of our relationship died then. Since then I haven't found any comfort in talking to people I know. Being dismissed isnt comforting really. My son has severe effects from ASD and we never talk about that either.

Anyway does anyone want to hold my hand?

Until I have a ecg to rule it out it still might be my heart. But my creatine was over 200 and I failed the non invasive nerve test. So that's not very positive. I know I need the emg but not sure I can cope with it.

OP posts:
Joy69 · 03/10/2021 07:56

Sending a hug. I think if you are a get on with it type of person relatives etc expect you to do just that. They probably don't realise/ listen to how scared you are because the above is their default.
I know how you feel, although the procedure that I'm waiting for is different to yours. It's flippin scary & you want someone to give you tlc.
Good luck Flowers

IncessantNameChanger · 03/10/2021 09:19

Thank you. I had the MRI today very early and it was the shortest MRI yet so that's done. Next is leg doppler and the emg. I hope your procedure has some pain relief options. I think it's the fear of the unknown. The leaflet said it's like acupuncture but after the test where they passed the electric current through electrodes, I dont think it will be so relaxing.

I think my sister has gone numb to me really. I have had two children diagnosed with SEN and moved to SEN schools via me doing tribunals over the last six years. So maybe she is empathyed out. Not that I ever had her sympathy then if I'm honest. I guess I'm always seem.as a worrier or in a crisis as the tribunals was very stressful and impossible to imagine unless you have experienced it I guess.

I do wonder if I get a major diagnosis if I tell her? I'm inclined not to right now. I dont think it would give me comfort and I dont really want much more to cope with like second guessing what people think.

I hope you procedure isnt to much of a wait. It's the not knowing and weeks of tests I'm finding hard but I'm very grateful it's being looked into. I have a few possible ideas of what's going on but I dont think much about that as I'm not mulling it over with anyone. Which maybe is a good thing.

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CMOTDibbler · 03/10/2021 11:17

I've had invasive EMG and it was much less of a thing than I thought it would be tbh. Slightly more painful than acupuncture normally is but the pain was only for a tiny amount of time, and less painful than the other nerve conduction tests which bloomin hurt.

IncessantNameChanger · 03/10/2021 12:46

@CMOTDibbler

I've had invasive EMG and it was much less of a thing than I thought it would be tbh. Slightly more painful than acupuncture normally is but the pain was only for a tiny amount of time, and less painful than the other nerve conduction tests which bloomin hurt.
Thank you for this. I had the electrode one turned up full blast and it felt like being punched and electrocuted at the same time multiple times in both arms before the nurse gave up. That was tolerable because once it was over the pain stops.

I cant really get my head around how much worse it will be will needles taking that directly into my muscles.

OP posts:
CMOTDibbler · 03/10/2021 12:58

It was nothing like the electrode one at all - they are measuring the current your own nerves are making in the muscles rather than blasting current in and seeing if it goes down the nerves if that makes sense

IncessantNameChanger · 03/10/2021 13:36

Really? I need to go back and re-read my leaflet then. I think I saw the word needle and zoned out

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HEH1977 · 16/06/2022 23:29

Hiya

I had a nerve test today on my thigh with needle test and I didn't feel the needles at all.

What does that mean..

Thank you

IncessantNameChanger · 17/06/2022 10:50

I'm not sure as I didnt have the needles in the end. A Dr re did the skin electrodes.

I think as long as your muscles twitches that's a good thing. Did you ask if it looked ok? Did they wack it up full blast? I suspected things was off when they turned it up the max and it felt like I was being punched with the force.

I hope it's all ok

OP posts:
HEH1977 · 17/06/2022 13:19

I had 3 needles 1 was so painful the other 2 I didn't even know he had done it

IncessantNameChanger · 17/06/2022 20:32

The dr warned me it would be painful as they do it to each other in training. You know it's going to hurt if a Dr says 'it's going to be painful't. The skin electrode was like being shot with no residual pain.

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