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Please can someone talk me down from thinking I may have MND :’(

34 replies

ACCx · 25/09/2021 16:40

So this may seem ridiculous to some but I suffer massively with health anxiety! I have convinced myself in the past I have numerous cancers and I really get myself into a state about it. My current fear is MND. I have developed muscle twitches a few days ago. They happen all over in random places in my body. They last a few seconds at a time. My grandmas friend has that and maybe that is why my fear is so high. I did have hypnic jerks a few weeks ago that went away when I started relaxing and taking magnesium supplements. Surely the fact I’m taking magnesium should mean I shouldn’t be getting these twitches. I’m googling myself crazy trying to figure out if this is typically a sign of MND. I know I shouldn’t google but when I get myself in a state I can’t help it. It’s like OCD. I’m currently having CBT for my health anxiety but clearly I’m not cured yet. I thought I was doing okay until these twitches started. I just wish these twitches would stop as it’s seriously freaking me out. I’m 26 years old and it is taking over my life.. I spoke to my gp yesterday who said she thinks it’s anxiety causing it. I didn’t mention the possibility of MND though so she didn’t reassure me it doesn’t sound like that. I wish I’d have mentioned it to her. I suppose I’m looking for someone to talk me down and reassure me Until I can speak to my gp again.

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ACCx · 25/09/2021 21:14

Thank you @ScandiCandy I guess they’re pretty common. x

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CleaningQueen19 · 26/09/2021 09:42

Gosh I can relate to this post so much. I've been through it a thinking I have every single illness there is. Im currently going through a bad time with it. I know it's health anxiety but I just can't accept it. I've tried medication from GP for it but it made me worse. Anxiety can cause all sorts of symptoms

ACCx · 26/09/2021 09:52

@CleaningQueen19 it’s really bad isn’t it :( I’m so scared and I’m sick of living in fear. I was prescribed sertraline from my gp but I’ve been to scared to take it up to now. I don’t want it to make me feel worse I don’t think I can handle it

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Bighugs88 · 09/08/2022 23:01

@ACCx
How are you feeling now? I hope you are better, sending you virtual hugs. I am currently going through something very smiliar. Beginning of may 2022 I started having chest pain and got really worried thinking I was having heart attack. Been to A&E many times the tests were fine but I started spiralling into thinking the worst and thinking the doctors have missed something. Then the palpitations and chest pain stopped instead it's been 4 weeks now but beginning of July I started getting muscle twitching on my ankles and wrists (right and left ) and very quickly my eyes, chin, abdomen, arms and legs haveen bee twitching and going into spasms. I have an achy pain at the back of my head and my neck and if I tilt my head back it really hurts. The back of my head feels there is a lot of pressure including my neck I don't know if this is causing the muscle twitching and spasms as the head and neck pain started same time as twitching. I have also been getting internal tremors back of my head, shoulders and legs when I am resting and sleeping. My blood test results which I had done last week were all normal. However, have not been referred for mri scan or neurologist as 2 gps think it's all anxiety, but I am not sure as I have suffered with anxiety in the passed but have never experienced these symptoms which are very alarming. Most recently my left hand feels very stiff especially my fingers if I hold anything my upper arm and hand feels very achy anf I have to put the item down it's like I have very limited grip strength with my left hand. I was supposed to spend the holidays with my 5 yrs old daughter and husband but everything has been so horrendous with my health issues. I pray everyone on this thread remains healthy and may God protect us all.

AceSpades54321 · 09/08/2022 23:42

What is MND? I’ve never even heard of it 🤷‍♀️

Myshitisreal · 10/08/2022 03:10

Motor neurone disease.

ACCx · 10/08/2022 09:19

@Bighugs88 oh I’m so sorry to read what you’re going through it really is awful. Thankfully I’m much better than I was when I first started this thread. In my previous messages I said I was prescribed sertraline but was to scared to take it. Well I did end up taking it and it was the best thing I did! The symptoms I were constantly worried about reduced massively as the anxiety started to reduce. I know medication isn’t for everyone but it completely turned my life around as was finally able to be happy without worrying of having a serious illness everyday x

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Bighugs88 · 10/08/2022 13:15

@ACCx
Thank you for replying and I am very happy that you are recovering well. I was prescribed sertraline before last year I am not sure if it helped I didn't have any side effects either but last year I wasn't that anxious. I do have an appointment with the gp via phone the coming week, will raise my concerns especially about my head. Today it has been aching so much I went out with my daughter to the park. But I feel pressure like there is weight on my head and the region where the spine joins with the back of the skull is really painful which is making me nauseous and dizzy. For now I am taking painkillers. Maybe I can speak to the gp about spine and head scan. I just about get things done during the day.
Gp has prescribed propranolol but the medicine made me really unwell, was very dizzy and felt like I am going to faint

ACCx · 10/08/2022 21:38

@Bighugs88 i hope your gp can give you some reassurance. I know pressure can be caused by stress and anxiety. I had this also in my head/neck at one point. I tried propanolol but it did nothing for me, only the sertraline helped x

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