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General health

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Original poster

Glandular fever

114 replies

SunshineCake · 18/09/2021 09:43

I'm about ten days on from diagnosis. Been in bed a week since home from hospital. Got up briefly yesterday. Feeling mentally worse than physically. I want to get up, strip dds bed and put a wash on. Dh is gone for the day dropping off dd at uni. The boys are going out. No one to walk the dog. I won't risk walking her but I'm worried about the risk to my physical health doing too much too soon, doctor said no running for six weeks but I didn't get any other advice, but mentally I'm in a rubbish place and running and getting the house clean would be my usual go to.I'm definitely not run until I'm allowed.

If you've had GF can you tell me your experiences so I can make a judgement please. Thank you.

OP posts:

SunshineCake1 · 27/09/2021 13:24

Had a lovely chat with the GP this morning. He is worried about stuff other than GF as well as concerned about my discomfort but I am booked in for loads of blood tests so we'll see how they go.

Schulte · 28/09/2021 15:03

Ah I’m glad you’re being taken seriously by the GP. I hope everything is ok. Keep looking after yourself

SunshineCake1 · 28/09/2021 16:32

Still having a lot of pain in what I think is my liver. I've had a couple of short sharp pains and still have discomfort when I lie in certain positions.

SunshineCake1 · 29/09/2021 15:21

My son has been tested for covid. .

GentlyGentlyOhDear · 29/09/2021 17:40

So sorry to hear you're still feeling so poorly and now about your son!
Keep resting as much as possible and I'd try to keep a distance if you can just to avoid exposure while you're so run down.

SunshineCake1 · 29/09/2021 18:04

DS is very good at staying away. DH is negative. Do I have to test?

PastMyBestBeforeDate · 30/09/2021 00:26

You can legitimately test as a close contact or, given you're staying home in bed, wait and see if you show symptoms.

SunshineCake1 · 30/09/2021 09:06

Thank you.
I so want to get up but now I have the fear if I do too soon I'll end up in bed for weeks more.

SunshineCake1 · 30/09/2021 17:52

I went downstairs for an hour at half three and then back to bed. I'm going to try and get up and dressed tomorrow and go down. DH said I am not allowed to do anything but has agreed to let me prune my rose bush.

DS2 has covid. Does anyone know if one can get it twice? I'm double jabbed.

SunshineCake1 · 01/10/2021 07:44

I'm getting up today. I am determined to. Will have a careful shower as I slept twice out of my last three and feel claustrophobic in there. Then I'm putting comfy clothes on and going downstairs. DH will food shop and walk the dog. No school run as DS2 has covid . DH said I have to just sit on the sofa. Not pruning the rose bush as the weather isn't nice. If I wasn't poorly I'd still do it but I don't need to get cold as well. Wish me luck...and thank you for all the support.

PastMyBestBeforeDate · 01/10/2021 10:40

Getting showered and dressed is enough of a goal for today.
I did a fatigue workshop (chronic illness related) and it really was based on pacing yourself, planning in rest, stopping before you are exhausted and not doing stuff when you know it will exhaust you, even if you feel guilty. It's really hard to do some of that if you're used to being active and capable.

SunshineCake1 · 01/10/2021 11:55

Didn't slip the shower but did feel claustrophobic and had to open the door twice.

I am finding it hard but since I am now trapped under the dog I will stay on the sofa! Feel hungry too.

westcountryboy · 01/10/2021 12:08

I had glandular fever in my late teens and was ill for months. I remember not really being told how much I should be resting and couldn't understand why I was so exhausted.

I had a relapse a year after I was first ill and ended up in hospital due to secondary infections. I didn't even know you could relapse. I've honestly never felt so dreadful.

I did have post-viral fatigue for a while after too, it was all pretty grim and had a bit impact on my mental health too.

Please rest rest rest. You need to recover properly from this.

westcountryboy · 01/10/2021 12:09

@SunshineCake1

Didn't slip the shower but did feel claustrophobic and had to open the door twice.

I am finding it hard but since I am now trapped under the dog I will stay on the sofa! Feel hungry too.

Can you put a stool in there?

PastMyBestBeforeDate · 01/10/2021 15:08

If you have a bath, you could buy a bath board which means you can sit down and use a shower attachment.

SunshineCake1 · 01/10/2021 16:28

I think I'll be fine. I just need to make slower movements. I've done five minutes pottering and been sat the rest of the time. Think it's getting to dh as he's tired.

CloudsOfCeonothus · 01/10/2021 22:40

You are doing so well Sunshine!

'I just need to make slower movements'

I've just been reading on Twitter about all the people recovering from Long Covid with PACING! Which is just what you're doing!!

I wish I'd known this instead of battling on through for years. My husband is absolutely shattered. I feel guilty every day that my care needs have impacted so badly on his life.

Carry on being a good team! There is no rush. Find yourself a fun sedentary hobby & really relax into the resting instead of fretting about getting up like I did.

SunshineCake1 · 02/10/2021 07:52

I had long covid and wasn't 100% better from that. I managed all day until 7.45pm downstairs yesterday. Starting to feel I am making a bit of progress but still having discomfort where my spleen and liver are. Odd headache too.
I was told I could kiss dh but still worried I might be infectious. Now DS2 has covid and my throat feels funny I might never kiss him again! DH and I were negative for covid but not sure if we need to keep testing.

doublemonkey · 02/10/2021 13:25

Sorry about your GF OP. It's often something that hangs around.

I got it in my teens and honestly suffered with it for many many years. I sometimes wonder if I have relapses every so often too.

I feel little sympathy now when hearing people banging on about long covid. Post viral syndrome is a bitch and up until recently anyone suffering from it was treated with disdain.

Go to a health food shop and get the best multivits, probiotics and high strenght Vit D you can afford and rest up.

SunshineCake1 · 02/10/2021 14:17

I am already taking vitamins but have started on a tonic and something else. Much as the tiredness is getting me down I am more scared about the fact I am still really conscious of my organs. Like they are still really swollen.

Ietthemeatcake · 02/10/2021 14:33

I had GF when I was 18. Caught it just before I came home for Xmas from uni, and spent pretty much the whole month off in bed. Took it very steady when I went back to uni, but no one told me not to drink alcohol for 3 months (I think that was the guidelines then). After 2 months I went on a night out and had a couple of pints. I was back in bed for days. So be careful with alcohol when you do feel better.

Sounds like you are making progress, just take it steady.

SunshineCake1 · 02/10/2021 15:05

No alcohol isn't a problem as I don't drink much. Keep going hot and I am clock watching for when I can go back to bed.

SunshineCake1 · 03/10/2021 07:06

I was wanting to go back to bed a lot sooner yesterday than the day before but I just laid on sofa. I have a sore throat again. Is this what happens or should I do another covid test? I was negative about three days ago and I can't even remember if a sore throat is one of the symptoms. Still uncomfortable with where my liver and spleen are and I had two episodes of sudden sharp pain in my right side last night. God, I'm boring myself now never mind you lot . Blood tests this week.

SunshineCake1 · 03/10/2021 14:25

I so want to walk the dog. When were you able to walk after you had GF? I'm four weeks on from hospital admission.

CloudsOfCeonothus · 03/10/2021 18:19

If you still have a sore throat & organ pain, then you are not well enough to exercise.

Walking the dog (even a small walk) would come after you have built up PACING & gently exercising at home.

So, for two weeks you were able to get up daily, dressed & do some gentle pottering about the home without any trigger of symptoms.

I know it's hard. I really do. It feels excruciatingly slow. Patience.

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