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14 month old stops breathing in shock - any good ideas for coping with this?

38 replies

devondoris · 29/11/2007 13:39

My DT1 has twice stopped breathing after falling over and bumping the back of his head. After the first time (back in the summer) I called 999 though he was OK by the time they arrived. He did it again yesterday afternoon, but came round as I was dialling.

He seems to go into shock after the bump, which seems to be no worse than a normal falling over and which he does a lot as he's quite intrepid! He cries in a very scared way, very urgently, and then when he gets to the end of the cry he doesn't take another breath. I've already picked him up by this time, and I rub his back and gently jiggle him and tell him to breath. Yesterday I blew on his face which seemed to remind him to breath. By this stage he was going grey and his eyes had half closed and had begun to flip back, and his head was lolling. I had dialled 999 and was just about to get through when he started breathing again and began to cry, so I stopped as I figured that as he was breathing I probably wouldn't need the paramedics. He breathed properly after that, but was very cuddly for half an hour afterwards as I kept an eye on him for concussion.

Other than doing a first aid course, are there any other things I can do to help him start breathing again (I have done first aid courses in the past so I remember a bit about CPR)? I'm fairly sure that this isn't particularly uncommon so any help would be very, very much appreciated as it's really scary when it happens (obviously!).

Thanks v!

OP posts:
wardrobemistressakasugarfree · 03/12/2007 10:15

I think I have come across one medical professional in 6 years that hasn't looked at me blankly/sceptically, Belgo.
PMSL @ child having 'STARS'!
We were referred to the Neuro-paed at Southampton General,can't remember her name,but she was fab.I think we only had to see her twice,once to arrange an EEG,ECG and blood tests,which we had done locally,and then again for her to confirm the diagnosis,explain it all and give us Nurse Specialist phone number if we ever needed it (which we haven't).

wardrobemistressakasugarfree · 03/12/2007 10:16

The GP only took us seriously because of the episodes I mentioned above.It was patently obvious from those that it wasn't temper breath-holding.

belgo · 03/12/2007 11:50

it's very interesting you mention Southhampton, because my doctor friend has worked in Southhampton, so maybe RAS is better known there. Fromt the very first episode my dd1 had, I phoned my friend and she knew immmediately was it was.

It seems that we have been fairly lucky in that dd1 hasn't had any episodes for 18 months or so.

wardrobemistressakasugarfree · 03/12/2007 12:41

As Ds2 has got older we've only had the occasional near-miss,no full blown attacks for over 3 years,but the last one put him in A&E as he had what looked like a Grand Mal seizure at the same time,which was a new development.
We also noticed that he was more prone to an attack when he was tired or run down.
I don't push my luck by jumping out of cupboards or full blown tickling games these days though.By the same token I have never stopped him from doing things and have always been very matter of fact about it.One of my big fears when starting school was that he would 'learn' that he could get out of doing things by threatening to "do a Fimbley Feeling"!

belgo · 03/12/2007 13:33

the last four times my dd1 had an attack she also had what looked like a 'grand mal' seizure. Very scarey. One time it happened simply by me wiping her nose.

butterflymum · 04/12/2007 11:46

How did you get on with the GP devondoris?

butterflymum · 06/12/2007 17:30

Hope all is well.

devondoris · 10/12/2007 21:58

Thanks so much everyone.

I went to the doc armed with my sheaf of papers from STARS website, and told him my self-diagnosis, in a nice way, and he just agreed with me that that was what it was. Quite bizarre, but I felt really let down! Wanted to be told what to do, like you all have been doing for me! I've booked in for a further appointment with the nice doc at our surgery on Friday so hoping I'll get more out of him. I think I want to see a paed, but I'm not sure if I'm over-reacting and should just accept that this happens and it's OK.

He nearly had another tonight because he was upset at bedtime because I wouldn't let him squeeze through between me and the cot cos I was tidying his big sister's books up. It felt a bit close, so now I'm not sure if I'm over-reacting to that too! But it does look as though tiredness is a factor here.

I spoke to a doctor friend today who talked about them going blue and that they all grow out of it, and felt it was my duty to tell her that actually they look dead and their hearts' stop beating and about 75% of children grow out of it.

In amongst all of this, I managed to go away for the weekend for the first time in 4 years - on my own! Hurrah! Went to a salsa weekend at Pontins and it was fantastic. Left the children with Mum and DH, with instructions stuck on the fridge about what to do if DT1 had a RAS. Was close to not going last week, but am now very glad I did as I seem to be a bit more relaxed about it all. Also why I wasn't around for a few days.

Belgo - thanks for the sleeping info. I wondered if a particularly bad dream (or pleasurable one ) could cause a seizure, so good to know that it probably doesn't. I don't think DT1 really recovered for a couple of days, but that was probably partly to do with this virus thing that he had.

ButterflyMum - thanks for posting again. It's great to know there are people I can talk to.

If someone does CPR on a RASing child, does it interfere with the normal recovery? And what sort of stuff did you put on your notes for school, sugarfree? Thinking it might be quite useful for me/mum/DH/childminder! If you still have them and wouldn't mind sharing, may I give you my email address? Thanks!

OP posts:
devondoris · 10/12/2007 22:04

And another thing! Or two.

Belgo - I read somewhere that it is hereditary - my DD fainted when I had bloods done when I was pregnant with the DTs. She was fine to the very end and then she went, so I wonder if that's connected in some way too.

And SugarFree - what are the implications of GA with RAS?

OP posts:
devondoris · 31/12/2007 19:45

Phew - Xmas over and no more seizures, so that's good.

Went to see the good doc at our surgery who agreed again that it was RAS, checked his heart again and referred him to the paed visiting clinic in Plymouth; bizarrely the consultant is from Southampton! Have appt for beginning of Feb. Doc also said that if it was him he would want to see a paed even though he knew that breathing would start, etc, just because that's what people want to do these days. He also asked me what my job was, just after I'd told him I'd made the diagnosis with the help of MN!! So feeling very positive now, and thank you all for that. I think we've been close to a couple of seizures since last posting, but of course I may be overreacting. Managed to convince DH to blow sharply on him rather than the gentle breeze that he has been doing.

Anyhow, happy new year to you all and thanks again!

OP posts:
wardrobemistressakasugarfree · 31/12/2007 20:19

DevonDoris get me on
annieleveller @ gmail.com (no spaces)

devondoris · 31/12/2007 21:01

Thanks lovely! And Happy New Year!

OP posts:
wardrobemistressakasugarfree · 31/12/2007 21:04

and to you!

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