Chronic pain but no support lately..

[W3STY17]

Hello,
I suffer with a couple of chronic medical conditions one of them being fibromyalgia & the other being a heart condition.
Since contracting covid in October last year blimey symptoms of fibromyalgia have intensified & I'm struggling on a day to day basis.
My DD 8 suffers with anxiety (awaiting diagnosis of ADHD/Autism) & has me up all night long sitting outside her bedroom door till she goes to sleep.
Some nights I only get 2hrs sleep at the most.
My DH works hard & is up at the crack of dawn every day during the week for work.
He know how much I'm struggling & how ill being up all night is making me yet at the weekend he doesn't tag team with me in staying up with our DD?
I know he works hard & I'm not mistaking that but I'm really struggling & I feel like I haven't got his support in this.
Every time I mention it we end up having an argument...
I just don't know what to do any more.
I'm not getting any help with the doctors as I'm on all the right medication. They can not longer offer any more support for my DD as a referral has been sent but the waiting list is a year plus for an initial assessment....
Just want to cry.
Sorry for long post just finding everything so damn hard at the moment.

That sounds so tough. The stress and lack of sleep will not be helping your pain at all. People don’t understand chronic conditions and the need for sleep and minimal stress. What’s happening with her sleep?

It really is tough. It's having a huge impact on me & I just feel like I can't take a break from it all. She constantly wakes through the night & won't go back to sleep unless I'm outside her bedroom door. Some nights I'm literally getting 2 hours sleep. I've never had that much support with regards to nighttime from my DH it has always been down to me to sort out. I would just love some help at the weekends from him but I get nothing...

Unless you can enlist his support and do a different programme to get her to sleep I would be tempted to sleep on a mattress in her room. Your sleep is too important especially if you’re auto immune

@Sakesman

I would do this & have done it in the past but because of her disorders she gets attached to things like this & it makes it even more difficult to move forward.
When the kids are at school I tend to have a nap during the day but it's harder now as their on summer holidays.

Would a 2 way video baby camera soothe her?

@Sakesman

I have never thought of that, that's a good idea!
I didn't even know they did a two way monitor!

Other potential ideas. Let her wear your nightdress, your pillow, have a bangle or something safe to hold of yours. A weighted blanket?

@Sakesman

These are really good ideas, thank you so much.
I'm going to try these, I'm prepared to try anything!
Anything for a good sleep!