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Original poster

15 month dd can't stand up

124 replies

lenaschildminding · 28/11/2007 14:13

My 15 month DD could not roll over until 7 months and did not crawl until 13 months and still cannot weight bare.

Her hips, knees and ankles all pop out of joint and if we try to stand her up, her legs just bend in ways they shouldn't.

She was refered in September to physio and I've just got an appmt for December 10th.

Just wondering if any one else has had this problem with their kids?

OP posts:
GoneFishing · 03/12/2007 10:18

Phew, physio has just been to assess DD again, I was worried as her legs are still buckling a lot when we stand her up and to me it looks awful and worrying, but physio sees a big improvement from last time and says her movements are still normal. To me she looks so unstable and its so hard to see her ankles flopping over but the physio wasn't at all concerned. I hope this is a bit reassuring for you..

Original poster
lenaschildminding · 04/12/2007 11:09

Thanks for the advice FioFio. It's just so heartbreaking, I am looking after my friends DD today and she 2 months younger than my DD, she's walking around and DD gets so frustrated because she watches her and tries so hard to pull herself up, but just can't do it. I stand her up and try to straighten her legs and feet, but she gets distressed, I don't know if it's painful for her or whether it is just frustration. The apmts less than a week away now, so maybe I will get some answers there.

Gonefishing, does your DD stand up by herself or do you have to stand her up? My DD can't get on to her feet at all, not even pulling up on the furniture. It's reassuring to hear that your DD is improving and they are not concerned, but like you, I can't help but worry, it really does look awful. How old is your DD?

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wrinklytum · 04/12/2007 11:15

Hugs.

My dd now 2 has global delay cannot stand,very "wobbly".She has hypermobility too.

Have started physio recently which has been really helpful.She can now crawl which she couldnt do before and can stand with support but not independently.

Has she got a paediatric referral?

Original poster
lenaschildminding · 04/12/2007 11:23

We are seeing physio for the first time next Monday.

What is global delay? I've never heard of that.

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wrinklytum · 04/12/2007 11:29

Its not really an official diagnosis as such it just means she is significantly behind in two or more developmental areas.In her case she cannot walk or talk properly and I am begginning to wonder if her intellectual development is worse than I thought.She cannot do simple puzzles etc and has started to exhibit repetitive behaviours

Your dds problems sound as if they are affecting 1 area,ie mobility,as she sounds "all there" socially and speech wise,so please do not think this is what is affecting your dd,I do not want to give you any additionalworries.

Has she been referred for any muscle tests?dd has had some re the hypermobility,awaiting results.

GoneFishing · 04/12/2007 11:34

My DD is nearly 14 months old. She can't stand herself up, and doesn't pull up. She is JUST starting to bear weight when we hold her up. I'm sure the physio will show you some exercises which will help remarkably.

Original poster
lenaschildminding · 04/12/2007 11:44

She is definately 'all there', as you put it.

This morning twinkle twinkle little star came on and she sat there doing the actions!

DD's symptoms are 'popping' joints, knees and feet bending the wrong way, her left eye goes the wrong way and she's permanently constipated since birth despite laxatives.

Mentally, she's well ahead.

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Original poster
lenaschildminding · 04/12/2007 11:52

I am asuming the physio will refer for muscle tests and things on Monday.

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FioFio · 04/12/2007 12:03

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Original poster
lenaschildminding · 04/12/2007 12:25

I think what makes my worries worse is what happened to DS1, I repeatedly took him to the doctors when he was 2 and a half with severe leg pains and constipation (which he'd had since birth), only to constantly be told I was a paranoid mother, it was growing pains, he was putting it on because of jealously of DD2 (who he worshippped!. He died age 5 of neuroblastoma, the pain was cancer in his bones and his constipation was caused by a tumour crushing his bowel.

I know DD hasn't got NB, but when you've been in a situation where doctors won't take you seriously it makes things worse.

Hopefully, what is causing DD's problems won't be anything serious, I just need more reassuring than most I guess!

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rosybud · 04/12/2007 12:31

Lena , it sounds as though you are very deserving of extra reassurance, am so sorry for you and your ds1. I hope you get all the help you need, your dd sounds as bright as a button. good luck.

FioFio · 04/12/2007 12:31

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GoneFishing · 04/12/2007 12:37

My Dd has not needed any tests and was only diagnosed with mild motor delay. it will depend on physios assessment of her movement

GoneFishing · 04/12/2007 12:40

i definitely wouldnt assume she will need tests yet! my dd is only seen at home every 2 mths!

GoneFishing · 04/12/2007 12:41

i definitely wouldnt assume she will need tests yet! my dd is only seen at home every 2 mths!

GoneFishing · 04/12/2007 13:22

oops, was trying to post using my phone!

FioFio · 04/12/2007 13:58

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scattyspice · 04/12/2007 14:05

Sorry haven't read all the thread. My DD didn't weight bear until 18mnths, took her first independent steps at 2.3yrs and walked confidently at 2.6yrs. She is now2.8yrs and starting to run.

There was no real readson for her delay, she had a club foot at birth but this does usually delay walking. She was also a champion bottom shuffler (didn't really crawl).

Good luck.

Original poster
lenaschildminding · 08/12/2007 14:06

OMG!!!!

Went into DD's room this morning and she was Standing up in her cot!!!

For the first time ever, she managed to pull herself up on to her feet, needless to say they were a little wonky and twisted and she was held up by the cot side, but she was standing!!!!

It's very reassuring.

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HereComeTheGirls · 08/12/2007 17:31

I was GoneFishing - I am SOOO pleased your DD was standing up!! I'm sure all will be well!

And you inspired me to lower my DDs cot mattress in case she does the same!!!

Original poster
lenaschildminding · 10/12/2007 13:06

Physio appointment is today at 3pm, I'll post later if I get the chance or tomorrow to let you know what was said.

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HereComeTheGirls · 10/12/2007 16:34

Thanks! Hope it all went well!

Original poster
lenaschildminding · 10/12/2007 17:40

DS saw physio this afternoon about her leggies. Physio won't touch them because everytime she tried her joints were popping out, hips, knees and ankles. She is refering her for xrays or scans to see whats going on, she found that DS has one leg longer than the other and is worried there could be a problem with her hips. Afraid it's yet another waiting game for an apmt!

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HereComeTheGirls · 10/12/2007 18:48

Sorry to hear it..however hip problems do sound very treatable. Hope an appt comes through soon!

Original poster
lenaschildminding · 12/12/2007 10:12

Feeling really crap today.

DD is trying so hard to pull herself up, but hasn't managed to again and she becomes distressed if I try to stand her up.

She's got her eye apmt tomorrow and I'm dreading that. It's not going to be nice for her, I've been told it can take 4 hours, they will be doing various tests on her eyes, one involves putting dye in them.

Thankfully DH has taken the day off work to come with us.

I never dreamt I'd be going through tests and scans again with another child of mine.

Being in hospital, scans etc, brings back such painful memories.

I lay awake for hours last night thinking of what Jack's scans showed up. A tumour the size of a football.

I keep telling myself DS hasn't got Neuroblastoma, but it's not knowing what IS the problem that's eating me.

If it was just one of her three problems, maybe I'd be coping better, but the three together is painting a duller picture.

I thought I'd done with Childrens hospital wards, they make me so uneasy.

It's so painful. My wounds from loosing Jack are still so raw.

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