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Lumbar puncture tomorrow - scared

22 replies

Sapphire544 · 22/07/2021 21:45

I found out a few hours ago that I’m having a lumbar puncture tomorrow and I’m so scared about all the horror stories I’ve heard about the pain, experience and after effects.

Can anyone please give me some more positive stories to focus on and any other advice?

I have bad anxiety and have had an awful time recently with other bad life experiences so all support appreciated xx

OP posts:
Eggnoggoanngoanngoann · 23/07/2021 08:36

Hey...ignore all the horror stories. Rem people dont rush to social media to tell you how mundane and straight forward something is..they only post the horror stuff Have had several lumbar punctures over the years for various health reasons. Only 1 time was awful out of all those times and that was because it was a trainee and i stupidly agreed to let her have a go as i thought i was an old pro and everyone has to learn (My choice so hey ho).
All others have been a breeze. Follow their instructions and advice. Lie flat after it. Any drs ive had have been super experienced and have made it go really smoothly. Rem to breath to keep yourself calm and try techniques like counting backwards slowly or reciting songs you like as a distraction from your anxiety. Good luck. Xx

KittenKong · 23/07/2021 08:42

Hope it goes ok. Try deep breathing, visualisation, thinking ‘calm calm’ to yourself. It’s not long - it’s not nice, but you can do it!

Dad had these - he got a row once because he was so desperate to see the procedure he kept squirming so they brought a mirror so he could watch (and ask questions).

Hope you get the ‘right’ answers.

endofthelinefinally · 23/07/2021 08:49

I had one recently and honestly it was absolutely fine. Like you, I was very anxious, but the lady doing it was so lovely and reassuring. She encouraged me to chat about anything as a distraction.
I have had many worse things tbh. I spend a lot of time in hospital.

Bluesheep8 · 23/07/2021 09:57

I had one 22 years ago and honestly it was absolutely fine. Local anaesthetic was used so no pain at all. I wasn't made/told to lie flat for long enough afterwards though so that led to problems so please do make sure that you stay flat afterwards. Best wishes

Notdobbleagain · 23/07/2021 10:32

Hi hope it all goes well today. My lumber puncture was fine just a tiny bit uncomfortable but definitely didn’t hurt. Make sure you have lots of fluids afterwards. The headache afterwards was worse than the procedure for me. So I would recommend lying down and summon someone to bring you lots of drinks Smile

MrsApplepants · 23/07/2021 10:38

I’ve had one, it was really fine. No headache afterward either. Bit of a sting was all. Just relax and focus on lying still.

ThePontiacBandit · 23/07/2021 10:42

I had one. I recommend having something to squeeze (I had a pillow). It was a bit in uncomfortable during but manageable. I had a bad head afterwards but to be fair that’s why I was in anyway!

feelingpantstoday · 23/07/2021 10:58

My experience was straight forward . A bit of a headache afterwards but will put that down to unwarranted anxiety an not eating or drinking before the procedure. Hope all went well OP Flowers .

I'm off for a bone marrow biopsy today. Its shit! x

66babe · 23/07/2021 19:10

I'm a nurse and have held many a hand who belongs to someone with their knees pulled right up to their chest .. you will be fine
It's a very simple procedure , just make sure you lay flat for at least 2 hrs afterwards .. I promise you , you will be back to tell us how straight forward it was 💐

Spudina · 23/07/2021 19:13

We do these all the time. You will totally fine OP. As others have said you will get a local anaesthetic and after that you shouldn’t feel anything. You will be encouraged to lie down after so you don’t get a headache.

Sapphire544 · 24/07/2021 00:15

Thanks everyone. It’s now been postponed until Monday as they couldn’t get me in for the CT beforehand… was there for five hours before that was known! Lovely staff, not complaining about anyone, just tough on the old anxiety. I’m appreciative of your comments though xx

OP posts:
dizzydizzydizzy · 24/07/2021 07:13

I had one recently. Didn't hurt and no after effects. Good luck.

Hyperion100 · 24/07/2021 07:18

I've had one. It was fine. The doctor asked if his student/junior doctor could do it (fully supervised) and no problems at all.

Headache for a day or so after.

Sapphire544 · 27/07/2021 19:26

So update… I had it done yesterday and I coped…

I would be happy never to have another one but it wasn’t as horrible as I feared. I told the doctor how nervous I was and he did offer sedation but I said I’d try without if we could chat and try to distract me enough to take the edge off the worst anxiety. He also said that he would tell me everything that he was doing.

I didn’t feel pain as such really though there were moments where there was heavy pressure, some of which caught me a bit unawares.

The worst thing about it was that it took absolutely ages for him to find the right spot. A loooong time! He did say that as ever people’s bodies vary and that for some it can be awkward if they have smaller spaces to get the needle in. (I am also pretty overweight which may have made a difference, although he didn’t mention that). Apparently my puncture was definitely on the awkward side of average!!

Once he actually found the right spot then it was quick. If he’d managed to do that much earlier then it wouldn’t have been at all bad, really not a huge deal. I was just getting worried he wouldn’t be able to do it at all (he did warn me about failed procedure) and I’d have to go through it again under X-ray.

My pressure was NORMAL!! Which means a suspected diagnosis can be ruled out.

I lay flat afterwards for nearly 1 + 3/4 hours drinking coke, tea and most of a couple of bottles of water (apart from spillage). The only bad thing about that was desperately needing the loo and not being sure if I could get up to go!!

So far no headache but my back is tender though I haven’t felt like digging out the painkillers so it’s manageable.

Maybe this will provide some reassurance to others in the same position who like me are/were terrified.

Thanks for all your comments, lovely people.

OP posts:
PurplePumpkinDream · 27/07/2021 19:42

@Sapphire544 Really pleased to hear that it went well! Thanks for updating us, it’ll help to reassure others waiting for the same procedure. All the best.

feelingpantstoday · 28/07/2021 08:18
Flowers

Well done- keep the fluids up.

Roselilly36 · 28/07/2021 08:27

Well done OP sounds like you coped really well Flowers. I have MS but I have never had a LP, I was dx by MRI, thankfully my Neurologist was not a fan of performing LP unless completely necessary. Good luck, I hope you feel better soon.

Bluesheep8 · 28/07/2021 11:23

@Roselilly36

Well done OP sounds like you coped really well. I have MS but I have never had a LP, I was dx by MRI, thankfully my Neurologist was not a fan of performing LP unless completely necessary. Good luck, I hope you feel better soon.

That's really interesting. I've got MS too and could never understand why a LP was necessary as I was told it was clear that I had MS from my MRI. I recall being told that LP had to be done to confirm MRI...mind you that was 22 years ago so things could well have (hopefully) changed.
Well done op, glad you got through it ok Flowers

Roselilly36 · 28/07/2021 12:36

@Bluesheep8 I had my MS attack in 2012, then 2014. My Neurologist thinking was MRI imaging is so good he felt LP wasn’t necessary. I suppose it may vary between Neurologists or protocol may have changed since our dx’s. How are you getting on? I am just getting over a relapse, have UTI again, so feeling pretty crap today.

Bluesheep8 · 28/07/2021 13:15

@Roselilly36

Looking back, MS was abundantly clear from the MRI so I've no idea why a LP was insisted upon, messing about with the spinal fluid of someone with a suspected neurological disease should only be done if absolutely necessary imo - but like I said, that was in 1999 though so things may well have changed.
I'm doing really well, I've never been prescribed any drugs and my last big relapse was in 2005, although I have had uveitis since then but it's not certain whether that was to do with MS or not.
I do get fatigued and have some odd sensations but to look at me, you'd never know.
Flowers for you and hope you're feeling better soon

Roselilly36 · 28/07/2021 14:16

@Bluesheep8 that great news, I am pleased for you. I decided to take DMD I had rebif x 3 injections a week, now I am on Tecfidera x 2 tablets a day, which is much easier. They may not have been around when you were first dx. Tecfidera definitely wouldn’t have been.

Bluesheep8 · 28/07/2021 15:45

@Roselilly36

I've honestly never had DMD's even mentioned to me, despite diagnosis being RRMS all those years ago.
I do hope yours work well for you. Flowers

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