ME/CFS clinics in the South?

[Grimbelina]

Just following a thought from another thread, I am down in Surrey and have been managing my ME/CFS with GP support but feel it is time to get a referral. Another poster mentioned that some of the NHS clinics are better than others and just wanted to ask if anyone could recommend where to ask to be referred to. I can get up to London or anywhere else (if I pace myself....). Thanks for any advice in advance.

You have clinics in England?!
Can I ask what they do and what support you actually get from you GP?
I’m not aware of anything on offer.
TIA.

DD was lucky enough to be referred to one in Sheffield. TBH they couldn't really help her except that they could write a letter to school and university so that she could have extra time in exams and be eligible for DSA.

I thought a Consultant had to be the one to diagnose CFS/ME? Don't they have to rule out any other possibilities first?

Have you looked at Epsom and St Helier? They have (or certainly did have) a really good CFS service.

Thanks everyone, that's very helpful about Epsom and St Helier InglouriousBasterd, there is a POTS specialist there too (and also want to see).

Scottgirl, I saw various consultants (incl. infectious diseases and rheumatology) and had a lot of tests when I first got ill. Mine was very clearly post-viral 3 years ago so the consensus was ME/CFS but I was hoping to be in the group who got better in 2 years but that didn't happen.

Sorry you are still so unwell. Hope you find some proper support.