Hi all,
I've had epilepsy since I was 8 but didn't get diagnosed until about 4 years ago age 23. My seizures are partials and I've never had a tonic clonic. When I was diagnosed I was just so unbelievably relieved that someone had listened to me at last about my weird seizure symptoms and I had a diagnosis that I didn't really 'deal' with the news. Head in sand syndrome.
I've continued to work as normal and was cleared to drive and have generally just ignored the condition until in January I had a cluster of 30 seizures in a day and was admitted to hospital. No idea what caused it but I was Covid positive at the time so could've been that. I've now lost my licence and had to up my meds which has left me feeling mentally all over the place. My memory is shocking and I just can't believe this is how it's going to be forever. I feel like I'm mourning my old brain and I've become really down about everything. I'm more sad now than I was when I first got my diagnosis by a long way. My epilepsy nurse just said that things will improve with time but surely it's been loads of time?
Don't really know what help I'm asking for but just wondered if anyone else had struggled to cope with a diagnosis after the fact?