Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Anyone have any experience with endolymphatic hydrops (aka cochlear hydrops)?

3 replies

inigomontoyahwillcox · 07/05/2021 19:25

Just been diagnosed with this after struggling with nasty ear pressure/pain/fullness, tinnitus (had tinnitus in one ear since 2013, but developed a new frequency of it recently, I now have it in layers!) and hearing loss at the lower frequencies in one ear. Also suffered from attacks of up to 4 weeks of disequilibrium (a little different from vertigo) for a few years now, although doc doesn't seem to think that they are related as the symptoms don't overlap.

I've been prescribed a course of steroids and betahistine, which I'll start tomorrow. I've also been reading up on low sodium diets, restricting alcohol intake etc. I'm just wondering what other peoples experience of this nasty condition has been?

I don't think it's any coincidence that this has reared its ugly head when I am at my unhealthiest (too much food and drink during lockdown and a very stressful job in healthcare have seen the development or worsening of some really nasty health problems recently). I just hope I can get it under control and hopefully some of my life back.

OP posts:
2012BestEver · 07/05/2021 21:07

Hi

Never heard of it but am waiting for an ENT referral as I have similar- hearing loss, pressure, tinnitus, pain. No vertigo. But I’ve also lost my sense of smell.

Sorry I can’t help but you have my sympathy.

Good luck!

inigomontoyahwillcox · 07/05/2021 22:01

@2012BestEver that sounds very similar doesn't it. Although could be one of many other reasons why - the loss of smell one is is funny, middle ear/eustachian tube/sinus issue maybe? Lots of luck to you too 🤞

OP posts:
TheRedShoes75 · 14/05/2021 19:59

@inigomontoyahwillcox

Just been diagnosed with this after struggling with nasty ear pressure/pain/fullness, tinnitus (had tinnitus in one ear since 2013, but developed a new frequency of it recently, I now have it in layers!) and hearing loss at the lower frequencies in one ear. Also suffered from attacks of up to 4 weeks of disequilibrium (a little different from vertigo) for a few years now, although doc doesn't seem to think that they are related as the symptoms don't overlap.

I've been prescribed a course of steroids and betahistine, which I'll start tomorrow. I've also been reading up on low sodium diets, restricting alcohol intake etc. I'm just wondering what other peoples experience of this nasty condition has been?

I don't think it's any coincidence that this has reared its ugly head when I am at my unhealthiest (too much food and drink during lockdown and a very stressful job in healthcare have seen the development or worsening of some really nasty health problems recently). I just hope I can get it under control and hopefully some of my life back.

Hi @inigomontoyahwillcox I wondered if you’d read up on Ménière’s disease maybe? It sounds a lot like MD and if you search on Mumsnet you’ll find a few of us have it. Shout if I can help if you think it would be useful - was diagnosed with MD and cochlear hydrops about 4 years ago now.
New posts on this thread. Refresh page
Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is closed and is no longer accepting replies. Click here to start a new thread.