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Fed up. Possible MS?

34 replies

Mumma02 · 01/05/2021 21:11

I'm so fed up. I've posted a few times and usually get told it's probably anxiety but since having my second child 18 months ago I've not felt well. I've been diagnosed with an overactive bladder during that time and coupled with the fact that I've experienced pins and needles/vibrating in my hands (mainly left and constant today), constant headaches, blurry vision and unusual thump in my right ear (too infrequent to be heartbeat), I've now spent the day researching MS and I'm so scared it's that.

Symptoms I've had which have not all been constant:
Pins and needles/tingling/vibrating in arms/hands/feet
One sided headaches for a long time which I now experience right at the top of my head (crown area)
Blurry vision at a distance (Was perscribed glasses before Christmas and vision is ok when wearing them but feel it's got worse as don't remember it being blurred without them)
Overactive bladder which comes and goes
Freezing cold hands and feet (now have to wear layers to bed!)
Heart palpitations
Weird thump/vibrating sensation in one ear
IBS symptoms (lots of wind!!)
Air hunger/feel like I cant get enough air in my lungs
Weakness in arms/legs
Funny turns where I feel like I'm not here and can't concentrate properly - maybe brain fog?
Probably more but there's so many to remember!

Had brain MRI which was reported as "normal" as was worried I had a brain tumor after constant strange headaches! Not Spine though so doesn't rule out MS.

Had nerve conduction tests to check for carpal tunnel - normal

Had eyetest/photos of backs of eyes - normal

Tested for coeliac disease - normal

Full blood count - specically asked for ferritin and thyroid levels this week. Ferritin 14 and thyroid 1.38. Need to speak to gp next week.

Honestly...what is wrong with me? Sad

OP posts:
Starrr123 · 29/01/2022 22:48

@Mumma02 mine comes and goes and ive been told its becUse of my neck and jaw muscles are sooo tight!!
Thts why i asked :)
Ooo i didnt know that!?
Very intresting! My heartrate is fine its just a bunch of other symptoms ive never had any answers too! Xxx

Juniper68 · 29/01/2022 23:38

Have either of you seen an osteopath?

Starrr123 · 30/01/2022 09:58

@Juniper68 i have and he said mu neck , jaw and ahoulders are soo tight xx

Mumma02 · 30/01/2022 21:57

@Juniper68 no but looking in to this.

OP posts:
Juniper68 · 30/01/2022 23:01

[quote Starrr123]@Juniper68 i have and he said mu neck , jaw and ahoulders are soo tight xx[/quote]
How many times did you go?

Juniper68 · 30/01/2022 23:01

[quote Mumma02]@Juniper68 no but looking in to this.[/quote]
Worth a try.

Kitkat151 · 30/01/2022 23:29

@Mumma02

Thanks so much for all of your replies. I had my B12 and Vit D tested before Christmas as my request when this all started. Vit was 50 but no idea about B12 other than told it was "well within range." *@Namechange600* I did look up POTs as I've had a few episodes where I've felt like I was going to faint but it's always been when I'm sitting down. I would love to just feel back to normal again!
My vitamin D was 47 which is also classed as being in range....I had many of your symptoms but after a high strength ( 20,000units) dose for several weeks I felt loads better .....just because it’s in range doesn’t mean it’s optimal
gemloving · 18/03/2022 01:45

@Mumma02 I have just come across this thread and I have similar symptoms but had my son 10 months.

I just woke up at 1am because I felt so dizzy and my hands were numb. My iron levels were lower than yours two weeks ago (at 7) so I'm taking two tablets a day but something is very amiss. It's good to read you found the cause for it all.

Nat6999 · 19/03/2022 04:52

What is your B12 level? I have B12 deficiency & all those symptoms are ones I have. My neurologist thought I had MS until he saw my blood results.

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