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Anyone with MS - how did you choose which medication to go on?

5 replies

Happytodayhappytomorrow · 29/04/2021 10:11

I'm being offered Plegridy injections, Copaxone injections or Tecfidera tablets.

Pros and cons to each.

How did you decide?

TIA

OP posts:
Serenrose · 29/04/2021 20:32

Hi @Happytodayhappytomorrow
I was offered copaxone or tecfidera and I chose tecfidera which has suited me.

The MS Trust have a DMT decisions tool on their website which I found useful.

Ultimately I choose tecfidera as I thought tablets would be less hassle than injections and it is more effective than copaxone.

I am not familiar with Plegridy and so can't comment on that.

Good luck with your choice and I'm happy to answer any questions about tecfidera.

Happytodayhappytomorrow · 29/04/2021 21:30

Thank you Serenrose.
I’ll check out that tool.

There’s probably no point my asking you if you had any side effects as I know it can be different for everybody. Have I remembered correctly and tecfidera is 2 tablets daily?

OP posts:
Nat6999 · 30/04/2021 00:01

Do you have an MS group? I know when exh was getting ready to be put on a DMD we spoke to lots of people at the group & then he got offered a place on a trial for Rebif 1a which he accepted & stayed on that for 6 years. Just be aware that there are normally flavour of the month drugs that are viewed as the next wonder drug but then after a couple of years turn out to not be all they are hyped up about.

Happytodayhappytomorrow · 30/04/2021 11:02

Thanks again for the recommendation re the DMT tool - it's very helpful.

Thanks for your post and comments Nat6999. I'll look at the history of the drugs too then, as well as the side effects etc.

I don't belong to any group; I think since my diagnosis I possibly have buried my head in the sand a little. I'd rather not think about it and so joining any club wasn't/isn't for me.

OP posts:
ShoesOnFirstThenCar · 01/05/2021 21:57

I was only offered Tecfidera and have been in it for 3years now. There was a big booklet of side effects I was given when I started but the only one I get is flushing, and now very sporadically.
It is a twice daily tablet, you start on 120mg ones for a while, think it was a week, then go on to the 240mg ones.
I have to have 3monthly blood tests to check levels and liver function.

That tool on the MS Trust site is very good tho, just had a nose.
Hope you find one that suits you.

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