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I strongly suspect I have ADD/ADHD - is it worth trying to get a formal diagnosis as an adult?

11 replies

deathbyprocrastination · 20/04/2021 15:17

Wondering if anyone can advise?

I'm 43 years old and I have always had issues with:

  • losing things (wallet, phone, keys, money ALL THE TIME)
  • being very easily distracted
  • tangential in conversations
  • struggling to focus
  • being fidgety (I find doing nothing very agitating e.g. waiting for food to arrive at a restaurant makes my eyeballs itch), I pace when on phone calls
  • racing thoughts

I find small talk really difficult. I’m always rushing onto the next thing. I speak really fast and (this one is really embarrassing) I interrupt people. That makes me sound like such an arsehole but it's not because I'm not listening, I’m actually a pretty good listener in some respects in that really do take on board the detail of what people say and can remember conversations word for word and will go over them in my head for hours and days afterwards, it’s just that, in the moment, I start to get where they are going and get really excited and want to add to it.

  • I say yes to way too many things and then get overwhelmed

I was a high achiever at school, got all As at A-level etc but really struggled with mental health at university and didn't do as well in finals as I should have done because I froze in the exams and didn't finish any of my papers. I just couldn’t get essays in on time for tutorials and it wasn’t for want of trying, I spent countless hours in the library trying to focus and starting and restarting things. Looking back at my childhood, although I was very compliant and got on academically, I was forever losing things, being late, getting lost, not handing in homework on time and I loathed any work that had to be done within a set time frame.

I see many of these symptoms in older family members on one side and also DD1. DD1 is very able in many ways but I just cannot get her out of the door on time and she struggles with basic organisation and focus much more than her younger sister.

Anyway, I’m sure you get the picture. I’ve been reading quite a lot about this and a bit of me would like to get a formal assessment but I’m quite torn about it. For a start, DH is pretty dismissive of this kind of thing and I suspect he would just think it was a useless label for a set of totally normal characteristics and that DD and I should just get better at concentrating and remembering things. But neither of us is lazy or stupid, we just seem to find it really hard to do things that others find easy.

I’m also not interested in a label for the sake of it but all the above has been such a hindrance over the years and I feel I’ve wasted much of my potential because I haven’t been able to manage it all better. I’m very underpaid for my skill level and the constant losing things plus the racing thoughts etc causes real distress. So, I’m starting to think that having an assessment might help to get me get some good advice and strategies.

Or, maybe I just have to accept that this is the way I am and live with it.

Does anyone have experience of this or advice? Would I even get an assessment on the NHS? I feel quite sheepish about raising it with the GP – no face-to-face appointments these days so it would all be on the phone and I fear I’d just sound totally neurotic.

Any advice much appreciated.

OP posts:
peonyjam · 20/04/2021 15:48

I was diagnosed as an adult during university. I struggled with all of the things you did as a child but also did well in school so it was never picked up on. I think that all of the coping mechanisms I had developed just didn't work anymore. In hindsight it was so obvious - talked constantly as a child, obsessive about things, hyper focused - my mum even took me to get a hearing test because I wouldn't hear when my name was called.

As a teenager I really struggled - very impulsive, anxious, constantly exhausted etc. It all came to a head during university as I just couldn't cope. I never considered ADHD - I almost didn't realise it was not normal to struggle so much with certain things. But as I read more about it it just clicked. I was really desperate and paid to be assessed privately as I felt that it could be difference between failing my degree or not. I have found medication to work extremely well for me and it has been life changing. Even if medication isn't something you would consider, I would still encourage you to speak to someone.

Foxhasbigsocks · 20/04/2021 16:08

Are you me op? I could have written every word of your op. Also wondering about getting a dx

sunshinecrocus · 20/04/2021 16:18

I "discovered" adult ADHD in women on here a couple of months ago completely by accident.

I was reading a thread and a woman was describing her ADHD and I though that sounds like me... 2 months and LOT of research later and I have an appointment booked for Friday for a diagnosis. I have gone private after being dismissed by my GP and then my surgery's mental health nurse. Not unusual unfortunately.

I have joined FB groups and other support groups which has been great to "meet" like minded people.

I have a attended/watched a few seminars so I would recommend them. ADDitude mag is a brilliant resource albeit American but they seem to be more on the ball with ADHD than here in the UK.

Seeking a diagnosis is a very personal thing. Some people have very helpful GPS and have no probs, others are dismissed or have been waiting years for a referral.

If you're in England you have the NHS Right to Choose option that allows you to choose a psychiatrist (that they accept) which I believe is quicker. I'm in Scotland so don't have this unfortunately but I am using an accepted NHS England company but I have to pay.

Personally, I am going for diagnosis for validation and to support my kids growing up as they may be showing traits. I'm 39, I wish it had been noticed when I was younger.

sunshinecrocus · 20/04/2021 16:21

Oh and on a more positive note I have spoken to another GP in my surgery since and he is happy to do shared care with the private company I'm being diagnosed with. It means I will need to pay for meds myself to begin with (expensive!) but the NHS will take that over when I'm settled on one.

deathbyprocrastination · 20/04/2021 22:32

Thank you very much for your responses - rather a lot going on at home so I’ve only just been able to read them but it’s really helpful to hear from others with similar or who have had diagnoses. Will respond properly tomorrow (probably in the evening). Thanks again

OP posts:
HelpfulBelle · 20/04/2021 22:36

I'm the same OP. Watching with interest.

DS1 was diagnosed with ADHD a few months ago, before that ASD. Methylphenidate has really helped him concentrate in school. I went private for his diagnosis, so I guess I'll need to save up to get my own diagnosis.

The most gutting thing about going under the radar was being berated by adults my entire childhood for being 'brainy but scatterbrained'. It really affected my self confidence. I too got all As at A-level but a 2:2 in my degree because I chose the wrong course.

deathbyprocrastination · 21/04/2021 05:01

Stressful day coming up tomorrow and I'm not sleeping so thought I'd take the time to post.
@HelpfulBelle thanks for posting - yes, the brainy but scatterbrained thing is familiar, my friends all used to take the piss well into adulthood about how chaotic I was. They didn't mean it unkindly but I remember feeling quite sensitive about it. One of them even said she hoped I wouldn't be offended but they were quite surprised how well I'd coped with having a baby (this is many years ago obvs) because they weren't sure I'd be able to manage.

@sunshinecrocus How have people reacted to your diagnosis? I feel sure I would meet with a lot of scepticism even if I were to get diagnosed. Also, this is probably very prejudicial on my part but I'm a bit concerned if I go for a private diagnosis that there will be a vested interest on the part of the clinician in supporting my own diagnosis theory so I'll feel somehow it is less 'legit' - and others might too. (I'm realising, writing this, how worried I am about what others think!!)

OP posts:
MsAnnFrope · 22/04/2021 10:38

@deathbyprocrastination another one who could have written your post. I'm great with ideas and with lots of structure and encouragement can manage stuff which is time critical. But left to my own devices...

deathbyprocrastination · 22/04/2021 10:48

@MsAnnFrope Hi! I've just discovered this thread www.mumsnet.com/Talk/feeling_depressed/4207358-I-dont-have-ADHD-so-what-the-hell-wrong-with-me which has all sorts of interesting info on there and has lead me to mini ADHD coach - quite an eye-opener. Do you think you'll try to seek a diagnosis?

OP posts:
EyeDrops · 30/04/2021 17:19

Hi, can I bump/join this thread please? I'm mid 30s and have just always struggled as you describe. Did well at school and university, but EVERY single assignment was done overnight before the due date. Horribly stressful.

Reading the above linked thread (and this) has been utterly eye-opening - the more I read, the more I realise this is describing how I've always been.

I've taken the plunge and have a GP appointment booked, but am also terrified of sounding ridiculous and being fobbed off...

deathbyprocrastination · 01/05/2021 22:02

Hi @EyeDrops thanks so much for posting and well done on booking a GP appt. I haven’t had the nerve to do that (or raise this with anyone in real life). I have been watching videos on howtoadhd however, and they are awesome!!

OP posts:
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