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Hearing loss & phantom sounds when asleep any home remedies?

9 replies

YogaLite · 18/04/2021 16:07

Apparently it's called Exploding Head Syndrome Shock and 10 percent of population has it, inc my ds 🙁

His is electrical sounds rather that explosions and possibly neurological or hearing loss related.

Awaiting a referral but Google search doesn't bring much hope.

Has anyone found anything anecdotal that helps?

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Elieza · 18/04/2021 16:16

Acupuncture?
Eastern medicine can improve or fix things which western medicine doesn’t understand.
Might be worth considering.

Babies and children can be treated as well as adults.

Crocidura · 18/04/2021 17:05

I have EHS but have always thought it was just one of those things you have to put up with, which doesn't need treatment. I tend to hear banging doors and other loud percussive sounds, but last night it was a doorbell and people calling out. It's unnerving at first but now that I know what's going on it's just a bit annoying when I'm trying to go to sleep and it keeps happening.

YogaLite · 18/04/2021 17:51

@Crocidura, hats off to you for coping with it so well.

I just couldn't understand what he was talking about as there wasn't/isn't any such noise but for him it's very realistic and clearly he can't tell it isn't there.

And tbh it's doing my head in trying to convince him there was no alarm clock or siren or whatever he is hearing.

Might try accupuncture...

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YogaLite · 18/04/2021 17:52

As for the name of this condition, omg, I though my head is going to explode ..

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Crocidura · 18/04/2021 18:06

I know, it sounds like a joke!
I found it very frightening at first and would wake up, heart racing, WTF WAS THAT? I thought there must be something seriously wrong with me neurologically, but from what I can gather, it's nearly always benign. There are treatments for those whose sleep is seriously compromised, I think. Finding out more about it definitely helped me. When it happens now, I realise straight away what it is, so it's much less alarming and I just roll my eyes and start dozing off again.

It's exactly as if the noise has happened, just like hearing something in the normal way. (Which is alarming when it's the noise of a machine gun or whatever.) I quickly realise now that a) I am just dropping off, so it's probably EHS, b) machine gun fire is pretty rare in my house, so it's probably EHS and c) now that I'm awake, the noise has stopped, so was probably EHS. Last night's doorbell sound was also not quite the same as ours, so that was helpful. It just takes a bit of time to get used to. I think of it as being a bit like when you're lying in bed all relaxed and suddenly your body does a massive twitch, which also happens to me and I think is very common. Just some weird hiccup your brain does when it's switching from awake to asleep. Thankfully I don't get sleep paralysis, which I think quite a few people with EHS do. I don't fancy that at all.

YogaLite · 18/04/2021 20:13

Thank you so much, I will try and teach him to look for a difference b/w EHS and reality, but yes, his reaction is exactly as you describe, jumping out of bed, like scared.

He does have some other problems but this one is new and recent and I didn't even know how to describe it initially.

I wonder what life throws at him next Sad

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YogaLite · 18/04/2021 20:15

He doesn't get sleep paralysis thank goodness, he used to twitch when asleep but that has gone away.

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Crocidura · 18/04/2021 20:44

Hopefully he will grow out of it. I haven't had it for ever so it can definitely come and go. Not much fun for you though in the meantime - DS used to have night terrors when he was little and it's so much worse to deal with someone else's disrupted sleep than your own. Definitely worth seeking help if it's worrying him and you.

The only plus is that it's something cool to tell his friends. And in my opinion as a fellow sufferer, it shows that our brains have special powers Smile

YogaLite · 18/04/2021 20:53

Grinspecial powers!
Thank you, really appreciate it Smile

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