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Mid cycle pain, possible endometriosis?

4 replies

sarahc336 · 01/04/2021 21:53

Hey, please can I have some experiences from you guys with endometriosis as I'm at my wits end.
I'll try and keep my history brief Smile
Was put onto the pill aged 20 for awful period pain, I'd have to be sent home from school/work etc. Whilst on the pill inwas totally fine. Came off the pill aged around 24, periods have since been bad, probably worse than average but not as bad as to make me skip work etc, I will need pain killers every 4 hrs for probably the first two days though but defo not as bad as some of you guys with endo have.
However within about 3 months of coming off the pill i started to get awful mid cycle pain, at first it would last 1/2 days but over time it got worse and worse and for longer. It's a bruised, deep in my pelvis burning kind of pain. Before i got pregnant with dd1 it would start around day 10 of cycle, get worse and probably peak about day 18, it basically follows my fertile window. However as soon as I got pregnant it stopped. Came straight back after she was born ana same thing happened again, it gradually got worse until it covered my whole fertile window again for around 8-10 days. Got pregnant with dd2 and it went again. She's now here and it's returns, this cycle it lasted 6!days.
Now I've been to the gp numerous times, one literally told me he didn't know what it was and to just see another dr 🤨 I've also been told that as I can get pregnant I shouldn't worry about it, it's not ovarian cysts as I've been scanned for this. I did see a gyne but was told "it couldnt be endo as I'm not presenting with period pain" I said I get bad period pain too but it's the mid cycle pain to me that's worse and in explained, she told me it was probably ibs.
I'm at my wits end as the pain is in bearable, it feels like someone's rammed a baseball bat all through my pelvis and bruised me, I also get pain down my thighs, the pain is worse after sex ana during my period I get awful pains up my bum and it hurts to go the loo. Unknown you can get ovulation pain but for 8-10'days???
I want to go back to the drs but as they don't seem to believe that there is a problem I've kind of started to believe maybe I'm imagining it 😞
Please tell me this isn't normal?
If your still reading then thank you xx

OP posts:
BensonStabler · 02/04/2021 06:06

Hopefully this is a helpful link. www.equilibriahealth.com.au/blog/ovulation-pain-mittelschmerz/

I'm just about to go to sleep or I'd write my own experience and offer advice. I will try and come back tomorrow and see if you have had help from others.

BensonStabler · 03/04/2021 07:01

Ok... THis isn't normal.
The symptoms that you describe are symptoms of endometriosis.

I have all of these and struggled for MANY years to be taken seriously and diagnosed. I was also dismissed as IBS, depression pain in my mind, male dr's telling me I was exaggerating and that all women have period pain and just need to put up with it as it's normal. That my pain threshold must be low.

Even after I insisted on seeing a senior gynaecologist specialist, when I was finally referred and examined they said they were "sure I didn't have endometriosis" from internal examination, feeling tummy and scan.

I insisted on an exploratory laparoscopy as I knew that is the ONLY WAY they can know for sure, because they open you up and find the visible lesions, adhesions, chocolate cysts etc.

I had over these years of my suffering educated myself thoroughly on all things endo and got on support forums of fellow endo suffers, who were echoing the same stories of exact symptoms and being dismissed and let down by Dr's and taking years to get diagnosed and finally get treatment.

It takes on average 8 years for women to be diagnosed. It is a disgrace. So much unnecessary physical and psychologically suffering. You have to be strong and stand up to them and be your own advocate. Take a partner, family member or friend with you for support and backing you up if you don't feel able to do so on your own.

There are period apps, but also keep a menstual cycle symptoms diary and note absolutely everything you experience prior and during period and ovulation. Every symptom, and weird sensations. The more descriptive you are the better, like the way you already described your more unusual pains in this post.

"I get bad period pain too (endo), severe mid cycle pain (endo) , not ovarian cysts as scanned, pain is unbearable (endo) , it feels like someone has rammed a baseball bat through my pelvis and bruised me (endo) I also get pain down my thighs (endo), the pain is worse after sex (endo) and during my period (endo) , I get awful pains up my bum (endo) and it hurts to go to the loo (endo) ."

They don't believe there's a problem (There is) They have you doubting yourself. Writing it off as IBS and normal period pains. (It's not)

I had/have all of those things and experiences that you have mentioned. Yes my periods were severe, but as my undiagnosed untreated endometriosis worsened, unbeknownst to me my right ovary had become completely fused to my pelvic wall, adhesions completely scarred tissue glued everything to it. I got that exploratory lap, and low and behold the endometriosis I was told was not there by Dr's who should have known better, found it finally, and by now was deep, severe and widespread. I had most of it removed but they couldn't fix my ovary. It is still like that a total mess. Now that ovary is the reason I get more severe pain during my ovulation on that particular side, but when egg is being released on my left ovary I still get really awful pain there too. My mid cycle pain could be more painful than my period pain at times because it is a different type of pain that is harder to bare. The extreme shooting pain down thighs is because endometriosis is affecting a certain nerve and you get referred pain in a different area than where the damage is happening. Same nerve problem with the internal crazy bum pain. For me it's like I am being rammed with a hot poker up my vagina and in my bum. Pain during sex and or worse after sex is usually the endometriosis in an area known as the pouch of Douglas, you can have endo lesions on your bladder, bowel etc and that can cause pain doing a pee, bladder area or pain when you have a bowel movement.

There are also lovely Dr's who listen and help. Not all are bad. It's pot luck, but don't give up. Insist, you can self refer. If you still get nowhere demand a second opinion see a different gynaecologist.

My surgery was mostly a success and that combined with medical treatment that put me in a medical menopause for six months, helped keep worst pain at bay for two years. Sadly it returned. I was put on the Mirena coil and it made a fantastic difference for me, stopped my bleeding, lessened my pains. But I still got breakthrough period pain, ovulation pain, and still had PMS and sleep problems. That is a little of my experience but obviously everyone is different and has their own severity, and treatment options are very personalised.

Stay strong, good luck. Look on Facebook or for specific endometriosis websites that offer advice and support. Just talking to someone who understands the hell you are going through and the impact it has on your life really helps. Flowers

sarahc336 · 03/04/2021 07:24

Thank you so much for this reply, it's given me confidence to trust how I feel and to not just give up and let the drs dismiss me as having ibs. I will start a diary and head back when I have written down evidence. Thank you for taking the time to reply xx

OP posts:
DinosaurDiana · 03/04/2021 07:27

I get pain when my cervix moves.
Your cervix is low in your vagina for your period. It then moves up for ovulation, and down again for your period.

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