Possible Sarcoma

[isocrazy]

My DP has a lump on his chest, scans have shown a large tumour attached to his ribs. He is on a waitlist to see a sarcoma specialist for further diagnosis and I can't even function I'm so scared :( he is only 30 and the absolute love of my life..has anyone had any similar experiences/positive outcomes they could share? I don't even feel able to talk about it in real life, I can't even discuss it without my throat closing over and the tears coming..

My DGC has metastatic sarcoma. He had a tough treatment protocol but is currently doing really well thanks to his specialist team and is back enjoying his life. The shock is devastating but try to stay positive, when things seemed hopeless we heard from people who were living good lives many years post diagnosis. Thinking of you both 💐

@Smileyoriley thank you so much for sharing your story and I'm so glad that your DGC is doing so well. The further tests have been moved forward to tomorrow and the next day so hopefully we will have some answers soon and can work out what we are dealing with

My husband had a sarcoma on his leg 4 years ago. He was treated by the London Sarcoma Service and had surgery at one hospital, plastic surgery at another and then radiotherapy at a third. The recovery from the surgery was tough but he has been in remission since and has regular check ups. There is a charity Sarcoma UK that has lots of information sarcoma.org.uk/ Macmillan online also have a sarcoma forum. Best wishes to you.

The being unable to talk about it is completely normal. I spent weeks not being able to talk about my DP's diagnosis (a different cancer but we know he has a very short life expectancy) without choking on my words, I found it easier to write things down. I also found (well meaning) people telling me to "think positively" absolutely infuriating. We are six months down the line from diagnosis, he is having palliative chemo and is doing OK although we know there are new tumours so we are trying to cram things into what time we have left. There is a lovely thread on here called "Still the Storm" which you might find really useful

Still the Storm

Thank you for your responses. I'm currently sitting in my car in tears waiting for him while he gets a bone biopsy. Specialist appointment this afternoon. I'm just beside myself 😞

Sorry you have to go through this.

The waiting is dreadful- I’m so sorry. Thinking of you and sending hugs

Thinking of you today, the uncertainty is probably the worse bit

It's almost certainly a Chondrosarcoma. We will know for sure when the biopsy result comes in. The specialist was fantastic and explained things very thoroughly. Positive news though, that although it's big it appears to be low grade and hasn't spread. Even though I was praying it wasn't cancer I feel optimistic that we can beat this. Thank you so much for your thoughts ladies, this is a horrible thing to go through

@bloodywhitecat I have been following your story all the way from Australia since your first post, I have prayed wished and sent good thoughts your way through your entire journey. Your spirit, resilience and kindness are something you should be incredibly proud of. What an amazingly strong and wonderful lady you are x

Hi OP, my DD aged 4, 4 years ago, had an incredibly rare slow growing sarcoma which had metastasised to her lungs. After Proton therapy and multiple surgeries she is doing really well. No one will commit to saying she is NED but we're ok with that.

What helped us inform her treatment -along with her oncologist of course- was talking with people with her specific sarcoma. If you're on fb I do recommend you join the sarcoma group and the specific sarcoma your DP has. You learn things you didn't know you didn't know.

Strength to you

[quote isocrazy]@bloodywhitecat I have been following your story all the way from Australia since your first post, I have prayed wished and sent good thoughts your way through your entire journey. Your spirit, resilience and kindness are something you should be incredibly proud of. What an amazingly strong and wonderful lady you are x[/quote]
Thank you, (most of the time I feel like a shit scared chicken staring Mr Fox in the face though which I think is quite normal ). I hope you have the best of outcomes