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Dd - possible brain injury, feel like she’s being fobbed off.

12 replies

WholegrainCustard · 19/03/2021 16:46

Dd is 18. 3-4 years ago she had a moderate concussion followed 2 weeks later by a whiplash injury, which exacerbated the concussion. No x-ray, it took months for her to feel normal again.

Since then she always has pain at the back of her head/neck where the original injury was. Sometimes it’s bearable, other times less so. She also has spasms radiating from this spot.

Since this she has had problems with her vision, she struggles to focus and her sight is often blurry. In the last three years she has had several pairs of glasses with varying prescriptions, none of which have helped.

She has also had some major mental health issues since then - we have a family history of autism, and dd has always had anxiety, but since the concussion she also has OCD, depression and an eating disorder. This might not be relevant though.

She’s seen an osteopath for months, had two lots of physio, nothing eases it.
She’s done the usual heat/ice/painkillers, nothing helps.

Her latest eye test was two weeks ago, and for some reason the optician wrote to her gp (maybe because she’s had 6-7 appointments in the last 3 years) who rang dd to say that she suspects there’s a link between the concussion and the vision and pain. She referred dd for an X-ray and said that if that came back clear she’d carry on investigating, possibly MRI to check the blood flow at the back of DD’s head.

Dd had the X-ray last week and has just had a follow up appointment today. The gp checked her strength in both sides (I assume checking for one-sides weakness), which was fine, noted that her left eye reflex was lagging, then mainly focused on DD’s eating disorder and said that that was causing the neck pain (neck pain and vision predates the ED by 2-3 years), has ordered bloods to check her levels and suggested yoga as it is muscular. DD’s neck barely came into it.

Dd spoke to another gp later as she was upset with the lack of outcome. This dr has referred her for more physio, commented that the GP today had covered a lot and that dd is a difficult patient.

The dr who brought up the MRI is currently on holiday, but I will follow this up with her when she’s back.

I’m pissed off because dd has been in constant pain for years now, and has been repeatedly fobbed off.
I have no idea if the dr was calling her a difficult patient in a descriptive way or a critical way.
If this was your child what else would you be doing?
Thank you.

OP posts:
WholegrainCustard · 19/03/2021 16:49

“Sometimes it’s bearable, other times less so”

I’ve underplayed this - she is in dreadful pain regularly

OP posts:
AnxiousAndUnraveling · 19/03/2021 16:56

This is not right and I would push for an mri. Don’t be fobbed off by that dr. It could also be a problem with the discs in her neck which won’t show up on an X-ray but will on an mri.

I have had problems with my neck after a car accident and follow calispine on Instagram. They have a lot of useful info on their that might help. calispine.com/

Dd - possible brain injury, feel like she’s being fobbed off.
Skippingabeat · 19/03/2021 16:57

I'm not sure about the eating disorder but depression and OCD can definitely be triggered by a traumatic brain injury (also a bunch of other behaviors such as insomnia, anger...)
I don't live in the UK or have any idea how your healthcare system works but I'd keep seeking medical advice until I get the right treatment for her.

AnxiousAndUnraveling · 19/03/2021 17:01

I also meant to add my brother had a bad blow to the back of his head in his early 20s, now mid 40s he was suffering from vertigo, his mri showed brain damage resulting from this head injury. He is fine and had some cranial osteopathy that really helped. Have a look in to Post Concussion Syndrome too.

user1471530109 · 19/03/2021 17:02

Bloody hell, OP. The visual processing area is right at the back of the brain. My ex has a brain injury here and lost some of his vision.

I am furious on behalf of your dd! When is the other GP back?

WholegrainCustard · 19/03/2021 18:18

I had no idea I’d posted this twice, sorry!

OP posts:
WholegrainCustard · 19/03/2021 18:24

She was hit at the back of her head (where the occipital lobe is, from googling).

The GP is back in 10 days or thereabouts so I’ll ask for an appointment with her when she’s back.

OP posts:
Lentillover1900 · 19/03/2021 18:27

The doctor she spoke to actually said that the previous doctor
“Had described you as a difficult patient”?

WholegrainCustard · 19/03/2021 18:32

The gp said that to dd on the phone.
On the other thread someone has clarified that they probably meant complex, which makes sense.

OP posts:
barleysugar · 19/03/2021 18:45

There is a known link between whiplash injuries and convergence difficulty, this could be the cause of her visual symptoms. I’d recommend some exercises to strengthen her convergence muscles, just like going cross eyed over and over again.

Yebanksandbraes · 19/03/2021 18:50

In terms of vision she needs to see an orthoptist and neuro-ophthalmologist. The GP can refer her.

They are more specialised in the neurological side of vision than high street optometrists.

They will be able to do more extensive tests on her eyes and diagnose the visual problems.

WholegrainCustard · 19/03/2021 19:45

We’ve done some googling, and have seen that there’s something called occipital neuralgia which exactly describes her symptoms.

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