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Arthritis in knees - what has worked for you?

13 replies

superstar63 · 06/03/2021 13:56

Had it a long time but seems to be getting worse. Going up and down stairs and getting on and off the toilet or any low seat is painful.

One knee is permanently very warm and I ice it a couple of times a day. Walking is not too bad but can still feel it is not right but not agony and not really bad enough to be on pain pills all the time.

I have been taking tumeric pills and also Solgar 7 but none of that seems to do anything.

I was thinking about fish oil possibly? Got an appointment with ortho consultant in a few weeks so will ask about possibility of steroid injections, has anyone had any improvement with that?

One knee is quite swollen too (the hot one).

OP posts:
VerityWibbleWobble · 06/03/2021 14:00

I'm assuming you've had bloods done? Do you get very fatigued? And has a rheumatologist ruled out inflammatory arthritis?

Bunnyfuller · 07/03/2021 00:10

Will join this thread, if you don’t mind.

My knees have got extremely painful over the course of the last 6 months. I am limping badly now, both knees swollen and warm and GP says full of fluid. Painkillers don’t help unless I’m resting, and honestly I’m getting worried I will be completely off my feet before long. I do feel knackered all the time, and have a rheumatologist appt this coming weds.

Any tips or ideas welcome it makes you bloody miserable, doesn’t it.

DeeCeeCherry · 07/03/2021 05:42

Glucosamine & Chronditin works for me. I take it religiously and really feel the difference if I stop for a while eg when away on holiday.

Tlollj · 07/03/2021 05:46

Cutting down on dairy worked for me. Mine is in my hands and shoulders, still there but much improved.

superstar63 · 07/03/2021 10:17

I have not had blood tests but had ultrascan to see why there is fluid etc. and X ray which is where the arthritis was diagnosed.

I have tried glucosamine and chondroitin but the pills were huge and even cutting in half I could not get them down although that was a few years ago so maybe I will look and try and get something smaller.

OP posts:
SteppinOutwithMyBaby · 07/03/2021 20:41

I have RA and have had a double knee replacement.

I have adapted my environment as much as possible. One of the very best things I have bought was a toilet seat booster which I think raises the seat 12 cm. It was very reasonably priced. I have also purchased a couple of chairs for the house which are considerably higher in the seat the normal chairs. These are used if I feel rickety. Additionally I have found carrying a booster seat with me if I'm going to restaurants really helps helps, and save me the embarrassment of trying to struggle out of the seat. Anything that raises the hips above the knees when sitting is useful.

I moved house not long after I was diagnosed, and specifically bought the house in which I'm living. It's all on one level, and the owner/builder put in grab rails because his mother-in-law had been going to live with them.

A few years ago I had to buy a new car. I bought an automatic rather than the manual which I had always proven proven driven – most of my joints are affected by the RA. I specifically looked for a car that was in my price range and had an easily raised driver 's seat, which means that my hips are lower than my knees when I try to get out of the car.

Obviously, I'm probably in a worse situation than you and my rheumatoid arthritis actually forces me to make a lot of decisions about my lifestyle. However, do look at the toilet seat booster. They're lifesavers

superstar63 · 08/03/2021 15:37

SteppinOutwithMyBaby. How are you after the double knee replacements? Would you do it again? I dont think I am anywhere near needing that yet and really don't want to have it done.

Funnily enough I have thought about getting a toilet seat extender to make it higher, I will look into that.

OP posts:
SteppinOutwithMyBaby · 09/03/2021 03:25

To be honest, the toilet seat booster is incredibly useful, and I think it cost me about the equivalent of 30 British pounds. Probably the best money I've spent in decades.

The double knee replacement actually did make a big difference to my mobility and pain, but for me it was not the wonder solution that it is sometimes portrayed. No one has actually told me this, but I have read that the outcomes for people with rheumatoid arthritis aren't as good as for those with osteoarthritis. No idea if this is true.

By the time I had it done my knees were in a shocking condition, and I had a very very bad bend at the knees – I walked a bit like a chimpanzee. There was a constant throbbing pain. This is enormously improved.

Because I showed no rheumatoid factors, plus my first doctor was incompetent, I was misdiagnosed as having osteoarthritis and they wanted to put me off a knee replacement until I was older. My GP ultimately sent me to a new rheumatologist, and he sent me straight off to an orthopaedic surgeon and I had my knee replacement within six weeks. To be honest, it was worth it, but I don't know if I want to go through it again. There wasn't really any pain from the op, and I suppose it's just a part of realising that my whole body is falling apart due to RA, and this is just something objective I can pin it on, if that makes sense.

I actually do have it in virtually every bilateral joint, except for perhaps my hips, and I take a biologic and it makes an enormous difference. However, I didn't start taking it until after my knee replacement, and I wished I had started years and years before – although probably couldn't have afforded it as it's very expensive and wasn't covered by public health initially. However, the right medication can stop physical long-term damage from occurring.

Anyway, enough of my pity party – boo-hoo, poor little me.

superstar63 · 11/03/2021 10:40

SteppinOutwithMyBaby

It sounds like you have really been through it but glad the knee replacements helped somewhat.

I have heard that knees are not as successful as hip replacements for example but I am sure everyone varies a great deal.

I will look into the toilet seat extension, thanks.

OP posts:
RiaRoth · 11/03/2021 14:17

@superstar63 I have osteo-arthritis in both knees after damaging the meniscus many years ago.

Annoyingly what works for me is movement . If I dont do anything they seize up and are really painful and stiff. If I walk they still hurt! but the pain is more manageable.

Every step I take does hurt but if I keep them moving they are better. So not mad running (god forbid!) but gently consistent walking mixed with rest does help.

I reckon losing weight would also help me but......

superstar63 · 14/03/2021 14:24

I do walk daily probably about 2 - 3k steps plus around the house etc. so try to keep moving.

I think I damaged my knees running years ago, would do fun runs etc. but as I was so slow overall I found I could really make up time by going fast downhill and think this has probably caused the problems all these years later.

OP posts:
JosephineBaker · 14/03/2021 14:28

Exercise in water made the biggest difference to me (not that it's possible at the moment, but soon...)

Building up my muscles while the water supported my joints made a huge difference (osteoarthritis).

Skap · 14/03/2021 14:44

It might be osteo arthritis which is untreatable, but if the joints are swollen and red then it could be rheumatoid which is more serious but is treatable. At the very least it should be investigated. If it was RA then the right drugs could make a massive difference.
To be honest I don't believe diet, fish oil, glucosamine and chondroitin, snake oil are proven to work.

I have both RA and OA. Movement does work. Gentle but often.

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