Tingling/fuzziness all over body plus other symptoms for 4 months.

[Dormouse78]

Hi all,
For 4 months now ive had fuzzy sensations/ tingling from the top of my head, down my spine, in my arms and legs. Ive also had numb patches on my face, left ear, both sides of neck. The skin on my arms and thighs can also feel sore to touch. I have brain fog and my head fills full, my right eye can become blurry, my tinnitus if off the scale and i also feel sick quite often, and slight dizzines at times.
Ive had every bloodtest going, ear test, addisons test, mri on brain but no answers.
Im waiting for nuerology appt.

My symptoms tend to get worse if im over tired or had a stressful/ anxious day.
Im 42 and all hormones seem ok.

Would really like to hear from anyone else who has suffered with similar.

Pretty fed up 4 months later and still feeling unwell and no answers.

@spudsandgravy, ive never had any visible signs of a tick bite.

@Dormouse78

People don't always see them. Might be worth just asking the question of whoever is providing care

[quote Dormouse78]@weddingpanic do uou thunk it would be worth asking dr for an antibodies test?
Im speaking to him today about going on meds for my anxiety.[/quote]

Yes you could ask for an antibody test, I'm not sure if they do them, my DH had his through a trial he was invited to participate in. I have some ok days and then some awful days, it's just really strange but it has really started something off with my anxiety.

Hope you get to the bottom of it

I had an antibody test as part of my ‘routine’ bloods (though it was 5 months after my initial illness and came back negative)

[quote Dormouse78]@lumene yes, one of the 1st things they checked as i had vit d deficiency 2yrs ago.

@kintsuji i have no idea if all of those were tested. My dr has been pretty thorough. So possibly. How can i check, can i get access to all my tests? I think theyve ruled out ms as my mri was clear. Waiting neurology appt now (30 wk wait)[/quote]
My GP who treats a lot of patients with MS said it can be present for a couple ofyears before it shows on MRI. Can also have good and bad periods. A lumbar puncture is more definitive for MS then MRI.

Not in the UK, so unsure what your access options are there. I just ask my GP and they print out copies of all my tests. The records are mine and as such I can apply for them under freedom of information act if they won't supply them. Though they can charge a fee to print them.

Post viral fatigue/syndrome could be a possibility. Can have very similar symptoms to chronic fatigue, can last up to 2 years but spontaneously resolves unlike chronic fatigue.

Spoke to dr today, my phosphates ate at a normal level now, so thats good.
Gonna try antidepressants to ease my anxiety.
Im just so fed up with feeling like this. I have says when i think im getting better, then bang im fuzzy all over, nauseous, tingling numbness etc.
At times ive felt so ill i thought i was going to die.
My dr apologised that he couldnt geg to the bottom of it but hope neurology can help.
Thanks for all you advice and replies. Nice to know im not alone.

Because feeling like this makes me feel very alone :(

Good luck @Dormouse78 your symptoms need investigation by a Neurologist, I know waiting lists are very lengthy at the moment, if you have access to private health insurance, use it.

I was in your position 9 years ago, MRI showed lesions on my brain & two areas of inflammation in my spinal cord. I was diagnosed with Multiple Sclerosis. But there are many conditions that could present with those symptoms, the sooner you can see a Neurologist the better, as serious conditions can hopefully be ruled out.

I hope you are feeling better soon.

Did you get to the bottom of this @Dormouse78

@perfectfacepaint hi, havent really got to the bottom of it and still awaiting neurology appt, but 6vweeks ago i started taking anti anxiety meds and my symptoms went away. Now and then i get a numb patch on my ear still but everything else has gone. Hopefully itll stay that way.

Hi @Dormouse78 glad to hear your symptoms have reduced a lot. I was having symptoms back in January, similar to what you describe. I had been back and forth to gp who kept telling me there was nothing wrong. I started on citalopram for my anxiety and started taking a load of vitamins - vitamin d, b12, turmeric and probiotics and my symptoms have reduced loads. I still have a bit of numbness and pins and needles but nothing like I used to

@perfectfacepaint im on citalopram too. Amazing how quickly my symptoms eased once they had kicked in. Funny as an out of hours dr said that it sounded like my body was stuck in fight or flight, but as it went on for months they had to investigate more. Looks like he may have been right. Crazy what your body does under immense stress. I hope you and i continue in the right direction

Pleased you are feeling better.

Still keep the Neurologist appt when it finally comes through, would be my advice.

I was dx with Multiple Sclerosis after an acute attack of Transverse Myelitis in 2012.

Keep a diary of symptoms for your appt but try not to become too focused on any new symptoms, hopefully when you see the Neurologist they will organise a MRI head & Spine if they think it’s appropriate. I know it’s a long time to wait under NHS though unfortunately.

Good luck for the future.

@roselilly36 thanks for the advice, i will definitely keep my appt with neurology but i had an emergency mri on my head and neck and it was clear.

So pleased to have found this thread. Am suffering similar symptoms and have convinced myself it’s a brain tumour. Last had Zmri 14 months ago so GP won’t fosnother one do soon. I so want to believe it is anxiety and long covid ( Gp diagnosis) but my anxiety says it’s serious

Glad to have found this thread too, I'm suffering with tinging feet and a weird nerve sensation on my left arm. Bizarrely my symptoms lessen when I eat lower histamine foods. It is so stressful. Also unearthed some kidney troubles when having investigations too .

Hey did you ever get answers x

@Dormouse78 how are u now ? X