Who do I talk to re enzymes in blood tests?

[rabbitrabbit]

Hello, probably stupid question of the week but does anyone know who I can be referred to to investigate elevated enzymes (LDH) in a child's blood test? Our current consultant is stumped and I'm trying to find out who specialises in this area?

TIA

Are you being seen at a specialist children's hospital already? If not then I would insist on being referred to the nearest. If you are at that already then I would contact your current doc and ask him/her to refer you to a colleague for a second opinion in the first instance. If they are still stumped then I would be inclined to ask them what avenues they intend to explore to get advice - international etc. If you don't get answers then contact PALS (Patient Advice and Liasion Service) in the hospital and ask them to help you with this. Frankly this sounds like a pretty specialised area and I think you need to get the doctors to do the work here and sort through the clinical stuff to find out who can crack it.
Good luck - this must be so worrying and frustrating for you.

Hiya, my ds has been monitored and tested (!) by an oncologist at a nearby hospital for nearly a year now. He tells us he's stumped yet this enzyme keeps rising in his blood results...and yet they don't seem to think it's worth further investigation! Yesterday I heard of a specialist children's centre nearby so I'm going to push for a referral there (not least because M.E. has been suggested to us and they have a specialist team there.)

Thanks for your post, we seem to be consumed with it at the moment and I'm adamant that they won't brush us off with this.

rr that sounds tough - good luck with the referral on