Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Has anyone got a Spinal Cord Stimulator?

3 replies

NorthernBirdAtHeart · 27/12/2020 16:51

Just that really. I’ve been referred for a spinal cord stimulator after a number of failed operations on my lower back and 6 years of chronic pain. I don’t think I’ve done myself a favour by using Google and only seem to find horror stories, so has anyone had this done? More importantly, has it worked?

OP posts:
MorgenMuffel · 27/12/2020 16:58

I have one. Had it implanted about 10 years ago, with two sets of electrodes- one covering my arm and one covering my leg. It has made a massive difference to me. Was using crutches and wrist splints etc. and lots of medication and now walk unaided and very little medication. I've had some issues with coverage of my leg shifting and might need revision surgery, but on hold as I am pregnant. More than happy to answer any questions I can - although appreciate everyone is different

NorthernBirdAtHeart · 27/12/2020 18:40

Hi Morgen, thanks for responding, it’s really great to hear it’s made such a positive difference. I do have some questions if you don’t mind...

  • how long was your recovery? Guidelines say around 12 weeks, but from previous surgery experience, I doubt I’d be well enough to go back to work full time
  • where is your box located and does it hurt/get in the way of clothing/sitting/sleeping etc
  • has your battery lasted all this time and have you needed any revisions that required more surgery?

I’ve got to halve my medication before the op, currently taking the equivalent of 120mg of morphine a day, just to get through the day. I went back to work, supposedly part time, but am working far longer hours that I should be, without the meds I’m not going to be able to sit for more than 10 mins. I’m trying to realistically give my employers an idea of how long I’ll be off from the trial to recovery from full implant.
Thanks again for taking the time to respond, slightly terrified about this, and nervous that my last option won’t work! x

OP posts:
MorgenMuffel · 28/12/2020 15:21

In terms of my recovery, for the trial I think I had the leads in for a week or so, before they were taken out. I was encouraged to go back to work and carry out 'normal' activities (within reason) so as to get a realistic idea of how much difference the SCS would make to my daily life.

For the permanent implant, I think I had about 2 weeks off work, and then was back in work - I had an office based job at the time but had help with certain things e.g. lifting, picking things off the floor etc. The advice I was given at the time was no lifting, bending, twisting or arms above the head for about 8 weeks. I had help at home for the first couple of weeks but also had a 'litter picker' type thing to help get pick things up off the floor etc. when I was on my own.

My battery is in my abdomen, sort of in line with my bellybutton. I can feel it through my skin, and it is occasionally a little uncomfortable, but I have no issues with it getting in the way of clothing, sitting down etc. I have had it replaced once, and they used the same incision from when it was originally implanted to take the old one out and put the new one in, so no additional scars etc. to worry about there.

I am likely to need a revision to my leads as the area of coverage of my leg has shifted substantially - and they are not sure why. The consultant has mentioned they might replace the whole thing with a newer model whilst they are at it, one which is MRI friendly, but any revision surgery obviously comes with risks that they may not be able to get the same coverage again when they place new ones, so something I am not rushing into especially given I have a little one on the way.

I think you need to have a good chat with your employers about what is to come, what support you need now in terms of ensuring you aren't doing more than your hours and reasonable adjustments needed whilst you are working, so that you can start to reduce the meds.

Hope this helps and happy to answer anything else!

New posts on this thread. Refresh page