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Convinced I have pancreatic cancer

24 replies

Sarah93advice · 28/11/2020 21:28

really didn’t know where else to post. I need some advice and hand holding. I do not mean to offend anyone in any way here.

I’m 24 years old and had my first baby 7 months ago. He was born about 2 weeks after I turned 24.
The pregnancy was hard for me and I was on bed rest from 20 weeks onwards as my cervix began to open. The only things I did from 20 weeks to 36 weeks (when I was induced) was get up, use the bathroom and bathe. My husband would bring all of my meals to me in bed. I occasionally went out in the car too for a drive to get me out. Due to the lockdown; the bed rest was almost easy in the end as there was nothing to do!

When my son was born, I began taking him on walks from around 3 weeks postpartum. My body was angry over this as I figure I must’ve had some muscle wastage from the bed rest (that was never addressed as I couldn’t see a physio due to the virus)
I would walk for miles with him every 2-3 days or so as I was bored on account my husband was working from home and putting more hours in.

Around this time I began noticing mid back pain, more towards the left hand side And around my left ribs. It hurt to ‘press’ on and felt like extreme muscle fatigue similar to when you hit the gym hard after not going for months. I figured it would go. I didn’t do stretches to resolve it as I didn’t really know how. I did see a doctor who shrugged it off and said it sounded muscular.

About a month after this, I began to experience acid reflux which I only ever had in pregnancy. After he was born, the reflux cleared up but then came back again 1.5 months later. No explanation for it. Nothing in my diet had changed.
I started to also produce looser, yellowish coloured stools. This was the final straw for me and I attended the local A&E department.

I saw an older doctor and could tell instantly he was the sort that didn’t want to take any nonsense from dramatic young women in their early 20s. He had reviewed my medical records before seeing me and had clearly seen I had recently spoken to my doctor numerous times and had bloods taken.
He told me he would do a quick ultrasound scan (I didn’t even know doctors could do this in the A&E) and whilst walking me into the room where the scanning machine was he clearly seemed to think I was a hypochondriac. I felt ridiculous. All this time I was dramatically texting DH who hadn’t been allowed in with me saying I just knew they’d find out I had cancer and a huge tumour.

He scanned me and said I had gallbladder sludge and put my issues down to that. It didn’t make sense as the gallbladder is on the right hand side and not the left (where my pain is) but I think I was just grateful I had a diagnosis of somethin. He said he’d refer me to my GP for a proper ultrasound scan with an actual tech.

I didn’t manage to get this ultrasound until the 1st of September and to my utter dismay after months of back and abdominal pain nothing turned up. The ultrasound guy didn’t even note any sludge in my gallbladder like the previous doctor had.

In fact, the scan was that unremarkable that my GP surgery didn’t even bother to follow me up about it. I had to call the reception where they told me my scan had been marked as ‘no further action required’ I have not seen anyone since or heard anything about this.

It’s nearly December and I’m still in pain. Mainly around my ribs and my mid/upper back. The pain is worse when I press on my back and mess around with my ribs. Sort of feels bruised. I also struggle horribly with indigestion.

I was tested for coeliac disease in my bloods which ruled negative. Liver function tests and such too all normal. I even had a pancreatic function blood test which again was normal. The only thing they flagged up was that I appeared to be borderline diabetic which has made my pancreatic cancer worries rage even more. I had gestational diabetes in my pregnancy with DS and have PCOS which I know causes an insulin resistance but I just cannot be talked down.

I can’t enjoy my life anymore. I’ve googled myself silly and am convinced it’s pancreatic cancer. I haven’t lost any weight but a few times a week I will get very loose, yellowish brown stools. Other times my stools are normally formed.
I drive myself insane checking for symptoms of jaundice. Literally insane. This is no life at all.

Has anyone got any advice for me? I don’t know where further to turn. I’m scared about attending the hospital again on account my DH can’t come with my due to covid and I’m convinced they will find something wrong with me and I’ll be told whilst on my own.
I do not breastfeed DS and haven’t since he was 2 weeks old so I doubt my hormones are still whacky from pregnancy.

I spend most of my day checking myself for abdominal lumps to the point I have bruises all over my abdomen. I’m aware therapy would be a good idea and have referred Myself but was told the waiting list is over 2 months right now and what if my issues aren’t all in my head anyway? I know I am definitely in pain. I know I keep belching and have severe acid reflux and I know my stools are sometimes funny.

I’m sorry if this sounds dramatic. Thank you for any answers in advance

OP posts:
bloodywhitecat · 28/11/2020 21:33

Could you call your GP and go through it again with them, you need a CA19-9 blood test. The nurses on the Pancreatic cancer UK helplines are really good to talk to, give them a try too. They helped me to push for a diagnosis for DP when he was being fobbed off by the GP and A&E.

bloodywhitecat · 28/11/2020 21:39

I was also told that the thing about the back pain is it is often worse when sitting back in a chair rather than when up and about and doing stuff.

FusionChefGeoff · 28/11/2020 21:44

To be honest after all those tests and investigations I think you should instead try to get help for health anxiety as that seems to be by far the most likely diagnosis

Sarah93advice · 28/11/2020 21:58

Thank you everyone. I keep meaning to call my GP but I’m terrified and just can’t bring myself to. I’m so, so frightened. I can’t live like this anymore.

The back pain isn’t severe. I can usually only feel it when i tense my back muscles or prod around. I occasionally do get shooting pains on both sides of my back and in my chest. I spoke to a physiotherapist about this and she is seeing me on Monday but I don’t think she will be able to help on account I’ve convinced myself there is something wrong with my organs and not my muscles.

OP posts:
Sarah93advice · 28/11/2020 22:00

When I stand up for a period of time (such as changing the bedding today) I notice my entire back feels tense and sore. Almost as though my back is saying ‘screw this, please sit back down where you belong’ it’s so scary

OP posts:
Titsywoo · 28/11/2020 22:01

I developed terrible health anxiety after the birth of my first child. In all honesty it sounds like this is what you have - seeing a counsellor will help.

Sarah93advice · 28/11/2020 22:04

I truly hope it is just health anxiety. I have a history of mental illness and haven’t been able to work since I was 21 due to it. I used to be a manager but had to quit my job as I was suffering with severe depression and anxiety (albeit not health anxiety!)
DH is convinced my back and rib/abdominal pain stem from weak muscles (he’s interested in fitness in a big way) and I do admit my muscles are exhausted and so weak. This got worse after my period of bed rest in pregnancy.
As a perspective - my friend offered to do a photo shoot of me and DS about 4 months ago when he was 3-4 months old and asked me to lift him in the air above my head (you know what photographers are like for poses) and I physically couldn’t do it. My arms physically could not lift my infant son above my head.

OP posts:
DougRossIsTheBoss · 28/11/2020 22:05

It's muscular from tension and anxiety. If you can press on it and it's tender then that isn't cancer.
Also it's just so unlikely in your 20s.
You do need help from your GP but for health anxiety not cancer. Get an SSRI and a CBT referral.

MyCatShopsAtAldi · 28/11/2020 22:12

I’m not trying to minimise how you feel but might be able to offer some reassurance: I’d be surprised if such a long period of bed rest hadn’t significantly affected your core muscles.

I also had crippling back pain in the early months after both my kids were born. At least up to six months. It was so painful. I think it was partly due to my body adjusting after pregnancy and partly after having had c sections.

If I were you, I’d see a women’s health physio or an osteopath who specialises in post-natal issues. They should be able to help with the back pain and if they can’t, then it would be worth reverting to your GP.

The bowel issue could well be related to your anxiety (which I know is about your symptoms but anxiety can really affect your digestive system).

DougRossIsTheBoss · 28/11/2020 22:12

I found I had a lot of aches and pains in my back when DC were tiny from after effects of pregnancy hormones and basically the physical work of carrying them around.

As well as an antidepressant and CBT simpler things would be to get some massages and do some exercise eg yoga to put you in touch with normal feelings in your body. These days I work out a lot and I am often aching and sore but in a good kind of way because I know exactly why depending on which muscles I've been working.

MyCatShopsAtAldi · 28/11/2020 22:17

A decent physio will be able to give you exercises - mine has given me lots of Pilates linked exercises for strengthening my core, although my problem is different to yours (pelvic pain).

If you co-sleep with your baby, I have also found that is not good for aches and pains!

Combine the effect of pregnancy plus the adjustment of having a baby, and all the new physical things you’re doing like feeding the baby, nappy changes, bending, pushing a buggy, etc - it’s not surprising you’re in pain.

Newjez · 28/11/2020 22:42

You don't want it to be pancreatic cancer.

CorianderQueen · 28/11/2020 23:27

If it was severe pancreatic cancer you would likely be much much sicker. Untreated, pancreatic cancer usually kills in around 4 months.

It sounds like your body is exhausted from muscle wastage and pregnancy. You need to work on your muscles if you can't lift your baby above your head. Weight training and physio. You probably hurt all the time because your muscles aren't working properly bc they're so weakened.

If you're worried about your stool then keep a good diary and see if there are any things you eat which result in the change.

I would say see your GP for health anxiety. They've done so many tests and there's nothing there.

CorianderQueen · 28/11/2020 23:28

Food*

Emmapeeler2 · 28/11/2020 23:39

I have a sort of similar back pain muscular seeming to the left (that I also convinced myself was cancer) and it gets better with core strength exercises like Pilates. Weak muscles was my conclusion.

Having said that the GP did do a blood test to be sure.

Dontsayyouloveme · 28/11/2020 23:44

Your pancreas in on your right hand side.

sadie9 · 28/11/2020 23:46

Sounds like excess stomach acid. This causes pain near the ribs left hand side and middle upper back pain which is like a nudging sort of gnawing pain that comes and goes. Worse when stomach is empty or after eating something acidic like tomato pasta sauce.
I would go to the GP and ask for a prescription to inhibit the stomach acid. You can also buy over the counter omeprazole or lansasprole or nexium but they are more expensive.
Your mind is adding 2 + 2 and then making up its own answer. Best of luck with it, hope you feel like your normal self soon so you can enjoy life again.
If you could get counselling too that would help to talk through what you have been through.

nutella202 · 30/11/2020 13:50

Just to input that my mum had pancreatic cancer and her back pain was constant and nothing like muscle pain, it didn't hurt to press on and it was worse when she was sitting down. I'm sure it's not that try not to worry, I have health anxiety so I can relate to the constant worry of symptoms but it's very unlikely to be that

Cailleach · 30/11/2020 15:10

I had similar pain with gallbladder problems a few years back - ultrasound just showed sludge in there, no stones. A low fat diet sorted it out, largely.

Most gallbladder problems occur in female patients as our hormones, especially progesterone, influence the way the gallbladder functions. This is generally a problem in women over 40 as their hormone levels shift but can also occur in pregnant women for similar reasons.

If you are overweight, even slightly, this can also cause problems. Losing weight, which most women do after pregnancy, can trigger gallbladder inflammation as it produces more bile in an attempt to break down the fat cells leaving the body. You may find this problem resolves eventually on its own....mine did.

SWLondonTown · 30/11/2020 15:26

If you really feel like it might be pancreatic cancer you need to go to your gp, as I’m sure you know it has a terrible prognosis and early detection is essential. It is worth noting that many people who have pancreatic cancer have had previous cancers and if you are young and in good health you’d be incredibly unlucky to have it.
Sounds more likely to be some sort of health anxiety from what you’re saying. Whatever it is you need to see a GP asap

Fuckityfucksake · 30/11/2020 19:39

Many of the symptoms you describe do sound like its your GB
Pregnancy hormones ruined mine! I had to have it removed in the end but it gave me pain, reflux and poops just as you describe.

Eddy1978 · 26/03/2023 15:43

Hi Sarah, i was wondering if you got to the bottom of this. I had exactly the same experience for about three months and was fobbed off with omeprazole. Furthermore my mental health took the strangest of turns and i started experiencing high anxiety and low mood. I was told bloods fine, Ultrasound said all organs fine, chest x rays fine etc. In end it was pancreatitis. The ultrasouds cant pick this up and standard bloods at a&e done check for these markers if your liver is ok and ultrasound can see your gall bladder ok. I'm interested o know what your diagnosis was if thats ok?

YourTruthorMine · 26/03/2023 23:04

I would look into food allergies too (keep a food diary), I had similar symptoms and discovered I was suffering from bouts of acute pancreatitis after eating gram (chick pea) flour. Other foods such as bean burgers give me similar symptoms but much milder. Most GPs seem to be utterly clueless about not so common food allergies. I wonder how many people getting their gall bladders whipped out, actually have food allergies?

millyskye3 · 12/01/2025 21:44

Hello, did you ever find out with this was. I’m 4 months pregnant with my third child and I’m 26. I could have written your story word for word. I also have chronic HA and have live with this for 5 years. Please if you have anything reassuring, it would be a great help! X

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