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How to support someone with breast cancer

3 replies

felttree · 24/11/2020 14:19

My lovely mum in her early 50s has just been diagnosed with breast cancer and is scheduled to have the lump removed next week. It's been caught early and things are looking promising so far.

I live a 5 hour drive away, am heavily pregnant and we are in lockdown. I have a brother that lives close by to her. I know that she's suffering with insomnia and stress through the worry. I'm being as positive as I can but worrying about her is having an adverse affect on me too.

Other than the normal calls and texts of support what practical things can I do to support her from now through to her lumpectomy and radiation treatment and beyond. Were there any useful books/ blogs/ videos which helped you? What gifts did you receive or would you have liked to help on your journey? What phrases should and shouldn't I avoid?

What about help for family members, can anyone recommend any reading materials at all, this is the first person I've ever known with cancer and I feel so in the dark. I want to be able to better support my mum and deal with the anxiety about her without burdening anyone else.

OP posts:
emmathedilemma · 24/11/2020 14:23

Is there a Maggie's centre at her hospital? I'm not sure how they're operating at the moment (it's usually just an open door) but they're working in some capacity. They have advisors and counselors who can support both your mum and the family. There's some good stuff on their website too.
www.maggies.org/

Piggles43 · 24/11/2020 15:37

I have spent the last 13 months being treated (successfully!) for breast cancer - trying to think of what I found most useful, you and your mum could try the following?

Websites
breastcancernow - their site is really clear and explains all aspects of the disease, treatment, psychological aspects, etc.

TickingOffBreastCancer Written by another lady who’s been through it, lots of good practical advice here and checklists, including one for what to take to hospital. She has also written a book which is a good read and might be a good gift?

Also there are very friendly and welcoming threads in the health section here on mumsnet both for women with cancer and for their relatives/friends, there is lots of good support and practical experience on there. I know I found it invaluable being able to ask questions or get support any time if I was having a bit of a wobble. Let me know if you can’t find them and I’ll dig out the links.

Things that might make your mum more comfortable if she hasn’t got them already:

For hospital - good ear plugs and/or noise blocking headphones, and an eye mask.

Post lumpectomy - a little v-shaped under arm pillow was really helpful in cushioning the sore bits. I got mine from Etsy but there are loads out there. Like this postsurgerypillow

Also a big v shaped pillow or something to support her at night post surgery. I got one of those huge wrap around pillows designed for pregnancy which was great as it meant I couldn’t accidentally roll onto the sore side in the night and also both DP and I slept better knowing he couldn’t accidentally elbow me!

The hospital will probably have already told her to get a non wired front fastening bra.

Things people did for me I particularly appreciated:

Every day my parents have sent me either a postcard (pre lockdown) or an email just with silly jokes and pictures to let me know they are thinking about me. I found this easier than lots of calls, although of course they called me too, as especially when I was having chemo it was nice not feeling obliged to reply at once or to talk or be perky when I just wasn’t feeling up to it. But you know your mum and what she likes best.

DP’s parents sent me flowers every couple of weeks which was lovely too.

DP’s brother and his wife sent us a bundle of meals from Cook! that were really great when I wasn’t up to cooking, they all cook straight from frozen so were really easy, and much better nutritionally than standard ready meals.

Trying to think what else. I got through a lot of audiobooks on audible, and we have Alexa / google home so I could just ask it to play me my book, without moving! Also very good when I had trouble sleeping.

Between surgery recovery and radiotherapy she will likely only be able to take showers not baths, but very gentle, hypoallergenic toiletries are good. Before during and after radiotherapy she will need to apply a lot of hypoallergenic moisturising creams and aloe vera but depending where she’s being treated the hospital may provide some or all of that.

You asked what phrases to avoid. I think sometimes people worry too much about saying the right or wrong thing, and end up saying nothing, which is worse than either! I did prefer it when people talked about the cancer head on and didn’t try and avoid the topic, or worse avoid me. The phrases quite a few patients are uncomfortable with are things about “fighting” the cancer “battle” as though people with less good outcomes somehow just didn’t try hard enough. I’m sure you wouldn’t be like the person who told me that if I’d only been vegan like her I’d never have got cancer...

felttree · 29/11/2020 07:19

Emma thank you I will check about Maggie.
@Piggles43 thank you for such a detailed response I really appreciate you taking the time. I ordered mum a pillow right away.

I'll direct her to the websites and I love the postcard idea, I'm going to buy a stash ready.

Wishing you health and happiness in the the rest of your journey and hopefully I can pass on your wise words to someone else one day!

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