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Histamine intolerance

33 replies

Blahblahblahyadayadayada · 13/11/2020 10:45

Has anyone experience of this and if so, how did you go about managing it? Wondering whether trying quercetin and or DAO supplements are of any use.

Thank you!

OP posts:
Starrr123 · 12/05/2023 20:32

@Blahblahblahyadayadayada the gp said my immune system is going crazy x

Blahblahblahyadayadayada · 12/05/2023 21:58

Hope you find some answers soon but push for referral if you’re getting nowhere.

OP posts:
Starrr123 · 13/05/2023 08:22

@Blahblahblahyadayadayada thankyou i will once im back from holiday . Thankyou xx

Digon · 03/04/2024 12:26

Hi just read your post, can you up date on your pregnancy journey after IVF. My daughter has hives and is about to start IVF she is so worried that this condition is going to result in a failed IVF. She has only one chance as had to go private, she doesn’t qualify under the NHS.So hope everything went well for you.

Digon · 03/04/2024 12:32

Hi just read your message, can you tell me how your pregnancy journey went after the IVF. My daughter has hives and is about to start IVF she is so worried that it will affect her chances of conceiving. She has only one chsnce as had to go private she does not qualify for treatment under the NHS. So hope your pregnancy went well.

Digon · 03/04/2024 12:43

Anxious76767 · 26/02/2023 19:49

Hi all, I found this thread super helpful as Im currently struggling from histamine intolerance (probably caused by my IVF treatment, my allergy dr suspects).

What he HASN'T been able to tell me though is how is this affecting you or your embryo during pregnancy? Has anyone here had histamine intolerance during your pregnancy? Was it managable? Baby ok? I'm worried about any negative effects this can have on my baby. I'm in first trimester of my first pregnancy and it's taken a lot to get here, so I'm worried about anything that could go wrong.

Some helpful links I've discovered: Check your DAO enzyme levels via Cerascreen, it's about £39 and takes some time but if your results are below 10 mg you probably have histamine intolerance. It's hard to find a provider who does this test at this price.

DAOfood for histamine pills are really good, I take 2 on an empty stomach 30 mins before and this has certainly alleviated my problems (less urticaria/hives, heart palpitations at night). I get mine at Amazon.

This is a really good resource: www.factvsfitness.com/ on histamine intolerance and how to treat it

Hi just read your post, I so hope your pregnancy journey went well. My daughter has hives too and is about to start IVF, she is so worried that it will affect her chances of conceiving. She only has one chance as had to go private,she doesn’t qualify under the NHS. Can you give any information about how you got in during pregnancy. Thanks

Digon · 03/04/2024 12:45

Digon · 03/04/2024 12:43

Hi just read your post, I so hope your pregnancy journey went well. My daughter has hives too and is about to start IVF, she is so worried that it will affect her chances of conceiving. She only has one chance as had to go private,she doesn’t qualify under the NHS. Can you give any information about how you got in during pregnancy. Thanks

Sorry for multiple messages I didn’t think they have gone through 🤦‍♀️

Anxious76767 · 03/04/2024 15:34

Hi @Digon !

Your daughter shouldn't worry. I don't believe this is connected, and I didn't experience any infertility related to histamine intolerance following my embryo transfer. I worried about this a lot myself, but it turned out there was no need. It's really sad that one has to research this condition in forums. There aren't many studies on this, so allergy drs/specialists are very cautious when it comes to advising. If it gives her any peace of mind, she should have a low histamine diet (unfortunately this diet is pretty bland: breakfast you can do a smoothie with oatmilk, mango, spinach and oats. Lunch/dinner: poultry, salmon and a low histamine sallad/rice or a jacket potatoe with cream cheese is what I would recommend). You are quite restricted in restaurants unfortunately. You can google low histamine diet, the link above is pretty accurate in classifying foods in low, medium, high histamine. Rule of thumb is: classic allergenic foods like gluten, shellfish, exotic fruits, nuts, soy, tomatoes, canned food, alcohol, fermented foods etc. are high histamine. Many dieticians support this diet.

If she is successful, she should continue eating a low histamine diet for a few weeks, I would play it safe until week 12 . My allergy dr specialist told me not to overdo it on the DAO enzyme tablets, but you can certainly take an antihistamine tablet. Google which ones are safe on NHS website. BUT around week 10-16, the body starts producing up to 600% more DAO enzyme than normal (something she would be deficient in if she has histamine intolerance). The body does this in order to build a protective DAO enzyme layer around the baby. Her symptoms will probably subside. Turns out getting pregnant was for me a way to permanently get rid of histamine intolerance!

I am free of my histamine intolerance now, and have reintroduced many foods I had to avoid before and in the beginning of my pregnancy. I was successful on my second attempt, and have a healthy, beautiful 5 month-old daughter. Good luck, wish her all the best! Let me know if any further questions, however I do want to stress I'm not a dietician or medical professional and can just share advice based on my own experience.

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