My dd has this. Feel really worried, in fact sick with worry. I keep reading conflicting information. Some research says it causes peripheral vision loss but this is normally mild but then I read it causes significant peripheral vision loss which gets worse over time. My dd does have a blind spot as a result of the drusen so now I worry it will get worse.
Apparently it is genetic too although neither DH and I have it but it makes me feel so so guilty that one of us had given this to our Dd.
The worst thing is there is no treatment. I spend hours online to see whether there are any clinical trials happening (I think the answer is no) or whether there have been any breakthroughs in the condition.
I just can’t bear living with the worry of it all but then there is no choice 