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Reflux , Has anyone had experiance of this

37 replies

ariel · 18/09/2002 13:23

DS who is 7 months old (although he was 11 wks prem) has had a problem of being quite sick after each bottle and solid meal,so yesterday i took him to the doc who said it could be reflux and gave me infant gavisgon to add to every bottle.Since having this he hasnt been sick at all, the doc told me to add 2 sachets of gavisgon to every feed, this morning i read the box and the instructions say that 2 sachets need to be mixed with the minimum of 225mls of milk, and ds is only drinking 140/150mls 6 to 7 times a day, it also says add it to no more than 6 feeds, but sometimes he can have more.Does anyone have experiance of this any advice would be great.

OP posts:
belorimi · 05/12/2002 15:02

MABS the symptoms my dd gets are severe stomach pains, sometimes it hurts to do number two's. Some days are worse than others, nine times out of ten, she'll go to bed in the evening with a hot water bottle. I don't give her any pain relief as she would be on this 24/7. It started between two and three years ago and doctors fobbed me off with colic, until recently when i said enough was enough. My dd suffered badly with reflux for the first year, she's now 9. Hopefully, soon, we'll find out whats causing this problem and whether cisapride, which was what she was given for her reflux problem as a baby, is to blame. Will let you know how the next appointment goes.

belorimi · 06/01/2003 15:59

well, after our last appointment, my dd is now going in to hospital on 13th january to have a camera put into her tummy. the surgeon seems to think that its growing pains, in which my answer was 'what, for all this time'? after all this has been going on for two to three years. if the results come back as normal, then i think i'll ask if putting her on a gluten free diet is worth a try. growing pains............!!!!!!!!

SueW · 06/01/2003 20:33

hope all goes well belorimi

bundle · 06/01/2003 20:36

belorimi, do get the gluten thing checked out rather than just clutch at it...ask the consultant to refer you to a dietitian and allergy specialist anyway, just to check out there aren't a few things going on. sorry you've really been through it, I hope things improve soon.

easy · 06/01/2003 22:11

Belorimi,
Please, let this misfortune regarding cisapride be a lesson to all of us. The medics are supposed to be professionals, caring and careful.They are however human, prone to mistakes and some may be sometimes tempted to experiment on their patients.
Having been born disabled, and subject to a lot of operations and other medical procedures, I never accept any opinion or prescription without asking questions, and these days doing some research (often starting with the net).
just over a year ago ds was diagnosed by the emergency doctor on a saturday afternoon as having a chest infection. During the examination the Dr asked twice if ds suffered asthma, and was told NO both times. At the end he prescribed an antibiotic and an asthma drug (alupent syrup). I read the leaflets with the drug carefully, and dh and I agreed not to give the asthma drug. On Monday my GP agreed that the decision was correct.
I'm not trying to undermine the medics, just to point out that your health (and that of your children) is your own responsibility. Always question (respectfully) and try not to be paniced or intimidated into accepting any treatment unless it can be justified and explained.

I know how frightening it can be to have a sick child on your hands, but try to keep your head.

Alibubbles · 07/01/2003 10:35

Belorimi. my DD had 'non specific abdominal pain ' for many months and was in and out of hospital and they couldn't find anything wrong/ When they eventuallly did a lot of tests on ger including and IGE test, we found that her level was 3620 as opposed to a normal of around 30-90.

We had to take her off dairy and wheat immediately, (she was already allergic to nuts) she eventaully got better. We gradually reintraoduced wheat and dairy, but if she starts getting stomach pain and tiredness, pale, dark rings round eyes etc, we cut back on the dairy and wheat for a few weeks and it seems to resolve itself. She was offered Cisapride, but I refused as I had already read on the internet a few months about it before it was withdrawn here. My father had been taking it for years and I told him too, he didn't really believe me, until three months later his script ran out and then asked his GP. The GP didn't know about it until he made enquiries. My father couldn't understand how I could know before his own GP!

I wouldn't say DD has an allergy to W&D but certainly has an intolerance, which is manageable.

You have my sympathy, you feel as though you are being treated as a neurotic fussing mother, but it's hard to see your child suffering and nobody seeming to be abale to help.

Hope it all works out well.

easy · 07/01/2003 13:31

BTW, Sorry everyone, didn't mean to preach, I hope all works out well too.

Stand by what I said tho, question why the Dr wants to do or give anything.

love to all in this

belorimi · 09/01/2003 16:10

thanks everyone, i'm glad i'm not the only one that thinks their banging their head against a brick wall. after speaking to my mother in law about my dd's problem, she mentioned that someone else in the family was on a special diet because of the stomach pains and nausea and as she works in a clinic, she was going to speak to the dietician. if the investigation with the camera on monday reveals there is nothing wrong, then i'm not going to be fobbed off with 'growing pains', i'll mention seeing a dietician because we can't go on like this anymore. i've hadto go and pick my dd up from school early again today. ENOUGH IS ENOUGH!!!!!

sb34 · 10/01/2003 13:40

Message withdrawn

belorimi · 22/01/2003 17:52

well, after out day stay at the hospital, the surgeon found nothing wrong internally, which is a blessing. they were actually going to send us home with no follow up at all. as far as they were concerned, they found nothing wrong and the problem would go away by itself. after speaking to the doctor again, we managed to get them to transfer us to the paediatrician. we go next week.

robinw · 22/01/2003 21:54

message withdrawn

belorimi · 29/01/2003 13:26

at last we have a diagnosis, the one i originally questioned..............IBS!!! why does one consultant tell you that your dd is too young for this and then a paediatrician tells you almost immediately what the problem is. we still don't know whether this is the result of taking cisapride as a baby and the hospital certainly aren't going to put their hands up to this either, so i guess we'll never know. at least now we can concentrate on our dd's diet and hopefully keep this under control.

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