Worried about symptoms that come and go.

[SleepingKittenToes]

Hope someone recognises these symptoms, the gp seems clueless. I thi k the best thing to do is list them.

Tiredness - eyes feel so heavy
Easily worn out - 10 minute walk and I'm ready to drop. Hoovering up causes me to drip with sweat.
One nostril blocked and runs a bit
Slight odd feeling in throat, not sore but not not sore.
Gurgling stomach
Headache
General feeling of annoyed at everything

In general, it feels.like I've drunk too.much the night before.

But, here's the thing, I don't always feel this way. I'll go to bed feeling fine and then I'll wake up like this and feel like it for days, then it'll vanish again. On days like above I can barely function. When I'm not.like above I can get out and walk 15-20miles, mow lawns and generally be ok.

GP has done blood tests, stool tests, allergy test and they always come back normal. I take multivitamin to try and help and make sure I drink plenty of water a day as I thought it was dehydration. I've tried cutting different foods out, no help there tho. I got plenty of sunshine when I'm well, bit an off day sees me.barely.move from the sofa.

I don't know what it is, but it's really.knockong me for six lately and I want to get up and out with my daughter on nice days, not flounder on the fainting couch.

I get something like this, usually I also get really clumsy fingers - drop stuff, can’t quite pick things up properly etc - but it’s mostly the dragging tiredness and just general unwell feeling that is annoying - I just feel like I need to lie down a lot on these days (and often very emotional; just have no tolerance for stress or exertion in any form). It’s not connected to my menstrual cycle and doesn’t seem to follow any pattern just comes and goes.

I’m afraid I have no ideas as to cause - I was back and forth from the Drs a bit a couple of years ago after birth of my third child because as well as this stuff I had lots of other ‘vague’ symptoms - numbness, hair loss, sensation of the floor moving beneath me, dry skin etc. So I had lots of bloods done and on paper I was a picture of health every time.

Drs have said to me that if symptoms aren’t steadily getting worse then they’re usually nothing serious, so I just see this as my weird weaknesses and accept I have to rest and wait for my energy to return before I can get on with stuff.

I did have a post-viral autoimmune condition 20 yrs ago (Guillain Barre syndrome) that apparently can cause some people to have reoccurrence of fatigue/weakness/neuro symptoms years on but I have no way of knowing it’s that. Could you have had a lingering post-viral response to something also?

Could it be as simple as lack of sleep? Or anxiety?

Sorry this is not very helpful but you have my sympathy - I find it particularly difficult explaining to other people the extent of the inability to do stuff on these days, or even feeling ok about myself and my lack of progress keeping things going.

I had similar symptoms for years - feeling rotten every so often, for a few days each time. All tests came back clear. Eventually I was diagnosed with a type of migraine and put on preventative medication. By this point it had become chronic and I was having symptoms more often than not. Not all migraines cause traditional symptoms - google silent migraine, vestibular migraine etc. Good luck!

Might you have sleep apnoea? Do you have a partner, if so have they said you snore or pause breathing when asleep?
Also did your gp check your Vitamin D and B12 levels?

I have recently been diagnosed with hyperparathyroid disease (nothing to do with thyroid - different glands of which you have 4). I was diagnosed due to having high calcium levels in my blood tests over a 2 year period, which are done 6 monthly due to having blood cancer. When the hyperparathyroid glands malfunction, the calcium levels in your blood increase, and this is what causes the symptoms. It can also cause osteoporosis and organ damage, so it is worth getting this checked out. Obviously I don't know what blood tests your GP has done, but I'm not sure the usual full blood count would show this because as I say, mine was found during blood cancer monitoring tests which are more in-depth than the ones done by a GP

The symptoms of this can be vague, few or many. They can also come and go. They also fit the symptoms you describe. It is quite difficult to get a diagnosis and the only treatment is to have the offending parathyroid gland removed. Many GP's do not know much (if anything) about this, so you really need to see an endocrinology consultant.

How old are you? Any chance it could be the perimenopause? I had some similar symptoms (mostly headache and extreme fatigue) on and off for years, but when on, they went on for days.

How much exercise do you normally get, OP?
The more sedentary your lifestyle the more you can feel wiped out by even mild activity, is why I ask.

Thank you all for your replies ,
I'll try to answer things.

"Could you have had a lingering post-viral response to something also?"
I don't think so, it's been off and on for a long time now. I less a virus has never ctually gone away and just comes back.

"Could it be as simple as lack of sleep? Or anxiety?"
Maybe a little lack of sleep, I usually wake in the night a lot. I don't ever feel anxious tho.

"Might you have sleep apnoea? Do you have a partner, if so have they said you snore or pause breathing when asleep?"
I thought similar, when my throat felt sore but not sore. I recorded myself sleeping for a week and heard no loud snoring or anything particularly loud other than the odd murmur.

"Also did your gp check your Vitamin D and B12 levels?"
I believe so. I've had few tests now. I take a vita.in with 100% Vitamin D, not sure about B12

"How old are you?"
40

"Any chance it could be the perimenopause?"
I don't know, maybe. I'll.google.

"How much exercise do you normally get, OP?"
Less than I should.probably. I have a daughter so some days are sofa and.movies, other days are 10-15mile hikes by the sea or up hills etc. I try to get out every other day and have a good long walk once a fortnight. I can't afford gyms or jog as I get shin splints that double.me over in pain.

Did you ever get any answers? I’m going through the same thing and it’s so hard!