Paresthesia, has anyone else experienced this?

[MrsDaisy2]

I've had symptoms of paresthesia for 3 months now. I experience strange tingling, the feeling of water and other similar sensations on my skin.

I'm waiting for MRI results but wanted to ask, if you've experienced this, what was your eventual diagnosis? Or, did the paresthesia eventually disappear? I'm worried sick. Thanks.

Vitamin B12 deficiency. Blood test results were in low end of normal range but I was symptomatic. I begged the Dr for B12 injections. The symptoms disappeared after a loading dose of B12 injections but do return when I am due my top up dose.

I was terrified it was going to be MS (I have other symptoms but that’s another issue) but MRI was clear. I hope all will be clear for your scan results

Hi,
I have experienced this. I used to feel as if there were bugs crawling on my arms/wrists, and would experience other odd sensations like the feeling of hot or cold in little spots. I also had intermittent pins and needles in my fingers.
I had an MRI to rule out MS, which was normal. My neurologist told me it was probably caused by trapped nerves in my neck (I have degenerative changes in my cervical spine which causes my neck muscles to spasm).
I know it's hard but try not to worry x

Hi. Thank you both for your replies. I've not had any blood tests, think I'll ask about B12 deficiency if the MRI is clear.

I don't know much about trapped nerves but my symptoms are all over, from head to toe, but mostly on my left hand side, so I don't think it's that. But, I'm not an expert.

Also, when I went for my MRI, I was told by the radiographer that it'd take 15 minutes. It took 45 and I've no idea why. Wish I'd asked at the time, now I'm overthinking things. Thanks for the

I have this, also have some weird sweating and temperature regulation issues. I haven’t had an MRI but have been referred for nerve tests, that might be something to consider?

Start with deficiencies blood tests as the others have said- incl thyroid, anemia and Vit D

Do you get white or purple hands/feet in cold weather which could indicate reynauds?

Friend had similar. Once MS was ruled out, other thoughts were lymes disease. She also had tests for guillain-barre. 2 equivocal and 1 positive! They now think it was that and the virus affected her nerves. She had a nerve conduction test done, but that was negative.

FIL also had something similar, but only in his hands. He had a stenosis (narrowing) on the bones in his neck causing pressure on the nerves.

The extra long MRI might have been down to training someone, machinery issues, if you were moving around alot and not necessarily a medical issue with you.

When do you get your results back OP?

Hi Elouera. No red hands or feet so don't think it Raynauds.

I've actually had Lyme disease, but it was treated and the consultant said she doesn't think this is related.

I'm now off to google Guillain-Barre as I know nothing about that.

I'm getting the MRI results a week on Thursday.

Definitely going to ask about blood tests for vitamin deficiencies. I'm always low on vit D. I was on a high dose to bring it up but I'm just on an over the counter supplement now.

Thank for your response.

@MrsDaisy2- When reading up about Guillian-Barre, they will often mention worst case scenarios of people being in hospital on a respirator. This isn't always the case, and not all cases lead to hospitalisation- my friend for example. She has similar symptoms to yourself. Her feet felt like they were ice blocks & freezing and very heavy. She said it was like walking with weights in her shoes! Also very tried all the time.

Hopefully you do find a cause and get some treatment x

Yes, I had this but also several other symptoms. Turned out to be MS.

@acocadochocolate this is my main worry. Can I ask, did your paresthesia ever go? 3 months I've had it, constantly. Do you mind me asking what your other symptoms were?

Also, was your paresthesia every where or in certain areas? Thanks.

Paresthesia is almost always my left leg, but occasionally the right leg or left arm. It usually happens when I am in bed but sometimes during the day. I don't have it every day. The watery feelings you have described I only have very occasionally.

Other symptoms: dizziness, fatigue, bladder and bowel issues. All very annoying but could be worse. The dizziness and fatigue are by far the worst things and I have them most days. The bladder and bowel stuff doesn't bother me that much because they are controlled by medication.

Thanks @acocadochocolate I think I'm probably focusing on the paresthesia a lot as I'm worried about what's causing it. Hopefully when I find out what's causing it, I'll be able to try and ignore it. Sorry about your other symptoms, it's great that medication helps.

I have fatigue and mild numbness in my fingers and toes. Guess I'll just have to wait on the MRI results and try and relax.

I've had Guillame barre Syndrome around 15 yrs ago but not a serious case. However it left me with this and at first it was horrible- I felt like I had ice water moving around in my legs and feet , extreme pins and needles and also burning sensations and my legs felt weak and heavy. After several months the feelings grew less and less but they are still there . I always know when I am going to be ill as I ave a flare up

Sorry to hear that @gatekeeper with what you've described, I guess my symptoms are similar. I get really extreme pins and needles in both hands at the same time. I had it throughout the MRI scan BBC yesterday and it was terribly uncomfortable. Thanks for sharing your experience. I feel better having just spoken to people about this. My Dh is great, but not much of a talker!

Hey @MrsDaisy2 did you ever get answers x

Hi @MrsDaisy2 did you ever get an answer for this? I’m experiencing so many horrible features of potential MS or neuro issues and feeling worried and scared. Awaiting MRI x