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Constant urge to pee!

44 replies

WHW123 · 16/06/2020 23:51

Hi

Really hoping someone has a success story.

So I had a baby 10 weeks ago and all was fine, all very straight forward.

Anyway after 3 weeks when i started feeling like I had the start of cystitis but only on walks. I ignored it thinking it'd be everything adjusting.
But by 5 weeks it was this need to wee all the time! Handed a sample in to GP who dip it and it was clear. I know someone who works in gynae who got me an appointment to be checked over there as was such a horrid feeling!
Anyway was checked very slight bladder prolapse but what she'd expect to see at 6 weeks postnatal. Urine was dipped and had all sorts in so was started on antibiotics. Urine came back pos but antibiotics didn't work so my GP put me on fosfomycin twice which eased the symptoms but didn't go.
At my 8 week check I told the GP I still had symptoms, he sent another sample (on dip it had blood in it) but came back clear.
Was seen by gynae again, dipped urine - had white blood cells and blood in it. Sent away and was negative.
She did an internal examination, prolapse gone, and no understanding of why symptoms continued. She's tried me on some long term preventive antibiotics - they've done nothing so far ( nearly 2 weeks in) and gave me estrogen cream, as I highlighted breastfeeding can mimic perimenopause. (But then I've read I shouldn't take that as can effect breastfeeding). She also queried painful urethra syndrome but I'm not convinced. As it's my bladder.

I literally go to the loo and the only relief I get is when I pass urine. Then after it's the worst need to go again - I don't! I was going to toilet more than I used to and with the actually uti I tried increase fluids to flush it. Anyway I know I don't need a pee, and avoid going for a few hours at a time.

She's giving me a call this week for an update. And I was going to ask about being seen my urology? I can't stand this, I just want to enjoy my little boy. If lockdown wasn't bad enough with this on top. I've never had any health issues before. Wonderful pregnancy and birth.

Could it be breastfeeding and low estrogen?
Or is it painful bladder?
Anyone had any experience with please tell me happy endings. I'm driving myself mad looking online. See old posts like this but then no endings of what happened.

Thank you! Daffodil

OP posts:
WHW123 · 16/05/2021 10:16

@Lindyskate it does sound like an oestrogen deficiency for you. Now you've stopped bf I wonder if they can do blood tests?
So I've had a flow test, uss of urinary tract, X-ray, and cystoscopy. All normal. Although cystoscopy wise he seemed to rush pass the urethra! Which is where I feel the discomfort. He seemed to act like he had but I was watching the screen, he just did it like a catheter. Even the instilligel caused my urethra to burn so i find it weird there's no inflammation or injury.
My physio thinks I need to explain more clearly that it now comes in flares and although I wouldn't describe it as painful - it is as it can be really uncomfortable. I suppose after labour my understanding of pain is different Grin. So I will mention that plus nerve stuff, embedded infection etc at my consultation.
He isn't the most interested of urologists though, bit of a dinosaur!

I did see Gynae at 6 weeks who did a basic check initially I did have a uti, then when the symptoms didn't go they queried urethral syndrome but never did follow ups. Tried estrogen cream but at the time it didn't work. I've been on amitriptyline but that just made me feel groggy and didn't help.
Had loads of uti tests. Several antibiotics.
Physio has been the most informative and helpful. Wondering if I should be asked to be referred to gynae Confused.

Yeah with the pudendal neuralgia my physio mentioned it as I have increased symptoms from wearing tight clothing like skinny jeans. So that maybe there's nerve irritation. That has improved bar I when I'm in a 'flare'.

It's so frustrating isn't it! Like how are you meant to get better when you don't even know what's going on with your body. Will keep you updated on my progress. I'm back to work tomorrow so I'm hoping my little one will drop the remaining very few feeds he has easier. Xx

OP posts:
Lindyskate · 18/05/2021 21:26

@WHW123 had a chat with my GP yesterday. We agreed I would wait another cycle and monitor symptoms before trying the solafenacin medicine.

I am the same as you in that the pain feels like it’s in the back of the urethra, I feel like it’s the front wall of the vagina which is what made me worry about prolapse.

I’ve read that of symptoms flare up with tight clothing it can be a symptoms of Lactational Atrophic Vaginitis. I don’t have that but I do find that the estrogen cream makes a difference.

I totally agree with you about how annoying it is not to know how to get better or what is wrong!

I don’t know if this is allowed on here, but I wondered if you fancied exchanging emails? I’ve really appreciated being able to talk to someone who is going through the same.

WHW123 · 18/05/2021 21:33

@Lindyskate sounds a good plan. Your gp sounds like they are being supportive too! Mines not the best.
I've PM'd your re:emails Smile xx

OP posts:
Collygirl · 21/06/2021 14:07

I’m having the same issues as you girls. I’ve had Cystoscopy he said my bladder was fine. This was 2 months after giving birth to my second child. I’ve had bad thrush infections & the gyno is so busy the waiting list is so long! I feel like I need the loo all the time! It feels heavy down below. I’m on the mini pill & im wondering if that’s the problem

WHW123 · 22/06/2021 21:50

@Collygirl sorry to hear you are struggling to! Have you seen a physio etc?

OP posts:
Collygirl · 22/06/2021 22:02

@WHW123 I have contacted ace for woman’s health & they have been good. They have given me advise over the phone but I haven’t seen them yet ❤️

Sathyaparam · 28/05/2022 16:05

Hi ladies
after normal delivery I had urine retention I was not able to pee and I was on catheter then after 3 Days they removed it and I have some 25ml of urine left in my bladder now also.
it’s been now 5 months I feel discomfort in urge when my urine level goes to 150ml. I don’t have leakage. After urinating no discomfort. Anyone facing this.

Apple871 · 26/11/2022 10:04

Hi did this improve for anyone?

Collygirl · 27/11/2022 19:48

Hi Ladies, still much the same :( I have constant thrush! I’m under gyne & on a 6 month treatment but nothing seems to work! I follow all the rules & even take probiotics. They say just loose weight but I didn’t have a problem before I had my two children! Still at a lose and very uncomfortable x

Lindyskate · 27/11/2022 20:51

@Apple871 No change for me I’m afraid. I was given a cube pessary though and that has helped more than anything. This has lead doctors to believe it’s more related to tissue laxity than the bladder itself. I’m pregnant with number 2 at the moment and I’ve to see the specialist again once this baby is born.

Apple871 · 28/11/2022 09:40

Sorry to hear this! Hope you find something that helps soon. Thrush is a nightmare. I got given a steroid cream for an external issue which helped a little.

Apple871 · 28/11/2022 09:43

Sorry you are going through this. I hope that the specialist helps. I’m breastfeeding still at 6 months pp and not got a period but my symptoms feel cyclical in nature. Using estrogen cream. What are your symptoms? All the best for your pregnancy

Gogi1 · 14/01/2023 13:02

Hi, wondering how the OP is now getting on? I've got the exact same symptoms. I'm 8 weeks pp and I'm really struggling with this constant urge. We're you offered any medication? I've been prescribed Tolterodine but I'm reluctant to start down the drug route just yet.

Collygirl · 15/01/2023 16:34

Hi there, I have been a little better but it’s constant thrush infections that caused me the urge to go. I can’t get rid of it . Doctors feed me fluconzole like sweets :(

WHW123 · 11/05/2023 21:49

Hi sorry I don’t often check this! But I thought I’d update.

My little boy is now 3 years old, I am likely not going to opt for a number 2.

My biggest advice to anyone, with bladder issues, urethra, pelvic floor is to see a specialist women’s health physio. See GP for referrals to gynae and urology to rule out anything underlying or potential causes.

I still suffer at times. I recognise when I will have a longer flare so perhaps up to a week compared to say an evening. Physio found I my pelvic floor if you imagine at 12pm is in hypertension. Often this is why when things like cystitis / uti you feel that pain, because there’s pain the muscles tenses and it’s a vicious cycle.

Urology deemed me clear of anything underlying and I didn’t opt for further follow up. I spent too much money at the uti clinic at Harley street and although, I may potentially have an embedded infection… I don’t think there methods were proven or perfected enough. Bladders and bugs are still in much need of research! Others would argue that, but it’s all about your own decisions and reading evidence to ensure you feel empowered to choose your care pathways.

I found that at about 18 months postnatal I would have less and less flares. If I was unwell, over tired, over dressed or if I did too much abs / hit exercise it would worsen. But if you think if you have a muscle in hypertension that would make it worse. I’m sure horomones defo we’re a trigger which makes sense for both possible embedded uti, or just hypertension. Our horomones impact muscles.

I do reverse kegals - so relaxations for pelvic floor/pelvis. I can now do hit / abs again. I can wear skinny jeans etc no bother. I do suffer with the hypertension, so I recognise this and will do rest days, and know my self care to help ease it. I take it easy when I need to. Time will have helped too, my horomones likely regulated. I would be worse at different points of my cycle. So I use a hormonal contraceptive. I use organic pads etc for periods, I take probiotics etc.

I am much better, but I’m not sure it’ll ever go. But compared to how I was, i would take this anyway. I look back to that post, and generally think, how did I have a lockdown baby and suffer with that. So if you’re going through this, remember your body is amazing, recovering and changing. You can keep going and there is help.

Everyone is different, but there are some great physios available. I won’t state my actually profession on here, but trust me I thought I was an expert with postnatal pelvic floors etc and I learnt so much from my private physio. She is fab! And I have continued to learn by research etc.

Please do get checked you can see nhs too, it’s just sessions are more limited and there’s a wait.
Symptoms for pelvic floor dysfunction really cross over, so above someone has weakness, so needs to kegal, but for me kegals are worse, so seeking professional help is best. See your GPs etc.

I hope this post helps some what. I am back seeing my physio as I’ve increased my training and don’t want to go backwards. I plan a half marathon in a few months, although I may accept it’ll be my last depending on the aftermath. She’s so busy these days too, which shows how many women suffer a range of pelvic floor conditions and the growing awareness. Women’s health is under funded and ignored a lot in the health system, so you may need to push for things. But please remember you are not alone.

Hope this helps.

x

OP posts:
WHW123 · 11/05/2023 21:51

Oh and I thought I’d never been able to do the excercises I do now - which was massive for me!

OP posts:
MysticalBae · 09/02/2024 18:02

@WHW123 how are you now, nearly another year on?

WHW123 · 09/02/2024 18:45

MysticalBae · 09/02/2024 18:02

@WHW123 how are you now, nearly another year on?

Still good positive steps thanks! I completed my first half marathon since having my son and this journey started, which was the best achievement. I even beat a couple of previous times - and I never imagined being able to do a proper run again, let alone get a decent time.So I will be back doing it again this year, and dare I say hoping for a PB!
Flares are rare, maybe less than they were, or much more short lasting. I've increased my kegal exercises - under physio instruction which again is a slow step by step, as they can irritate the muscle and what probably is an unhappy nerve. So I also have to keep my relaxations up. I can drink things which I used to think may be connected to a flare. I know really poor sleep is an impact - makes sense though as causes tension.

There's still unknowns of what caused it, but I think sometimes we don't know and taking the wins and positives is all we can, and learning to work with your body.

Officially decided that I am a one and done mum as the worry of making it worse or it returning to what it was is not worth it. Plus I am happy anyway.

Erm think I'm going to order my maternity notes - just to see if there's any indicators and out of interest - be nice for the memory box!

Sorry for lengthly answer! Smile

OP posts:
WHW123 · 09/02/2024 18:47

And actually reading my last post. Defo another year and its continued to improve!

OP posts:
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