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Restless leg hell

27 replies

stophuggingme · 27/04/2020 11:40

As the title says really

For some time now I’ve been suffering and it’s getting worse
Have tried
Magnesium supplements
Exercise
Deep massage
Heat and cold treatment
Making sure I’m not dehydrated / too hot/ avoiding caffeine and trying not to drink much alcohol etc

I should add I am co sleeping with my third child and therefore have ruled out any form of Medical Sedative

On average they are waking me up about twenty times a night
I am feeling so down with it and don’t know what else to do

Can anyone help or share how they manage this themselves and if I am doing something wrong

I feel like Duct taping them together then weighing myself down with blankets and weights to see if it helps before I crumble with lack of sleep

OP posts:
Albgo · 28/04/2020 01:57

Tonic water before bed.

LadyB49 · 28/04/2020 02:36

An antihistamine is known to aggravate RLS (restless legs syndrome) also Benadryl, most antidepressants.

Pramipexole is also known as Mirapex, and a similar drug Requip is also Ropinerole. These drugs are known as a Dopamine Agonist. They are Parkinson drugs and useful in RLS at a lower dose. You must start at the lowest dose and then increase to what works. You must keep it as low as possible to avoid augmentation which is when it stops working and actually causes the RLS to become much worse and is very difficult to come off.
I was on requip, augmented, and it took me 10 months to come off slowly. Some come off it in a few weeks but it is harder

Most docs aren't awfully familiar in treating rls, just look it up and prescribe pramipexole or requip. It is no longer first line in treatment, it used to be.

Gabapentin or Pregabalin are often now used. They are anti seizure drugs.
Often a small dose of two different types of medication will keep the dissed low enough to avoid augmentation.
Best of all is an Opioid but you usually have to try the others first.
I have RLS 24/7 in arms and legs, 30 years, and use Codeine (opioid) and Pregabalin (anti seizure) at quite high doses.

Keep any medication at as low a dose as possible cos they all have side effects.

A good site is rls.org. It is a charity and does a lot of funding for research. It also has a discussion board which is excellent and you register for It on the rls.org site.

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