Hi everyone,
I would really appreciate any information from parents going through anything similar. My son is now 7 weeks old and has been diagnosed with central sleep apnoeas, more frequent than what would be expected in babies and associated with longer desaturations. He also has significant silent reflux on antireflux meds and carobel thickener.
After 4 weeks in hospital during the covid madness he is now on oxygen at home for when he sleeps (as it greatly reduces his apnoeas). He is due to have another sleep study at some point.
We have been told it could be a maturation issue of his respiratory centre and something he could grow out of. They will also do an outpatient brain MRI to rule out any structural brain issues, although with covid 19 we don’t know how long that might take. His genetic bloods are normal and they have ruled out CCHS.
We are very worried about what could be causing his apnoeas and how long it might take to outgrow the need for oxygen when he sleeps.
Does anyone have any similar experiences and how did the central apnoeas progress? We are under GOSH. Thanks so much in advance.