Fibromaylgia and Acupunture

[Shoshable]

Has anybody else suffering had Acupuncture. I have has two sessions this week, and it is Fantastic. I was very lucky was sent to NHS physio, for help with 'gentle exercise'.

Since May have had terrible pain in my shoulders (drove to Scotland from Dorset, maybe a tad to far} any way I digress, the physio had just qualified in acupuncture and asked if I would like some on my shoulders while I was there.

OMG after the first session I could move my shoulder without wanting to cry, by the second the difference was astronomical.

It did hurt on the needle points for the rest of the day, and was Very very tired after, but but the next day, all the pain had gone.

I am now going to see her twice a week, while she works on my hips and knees. It only takes 10 mins so it dosnt interrupt my work as a CM, the physio booked me appointment just before the school run, and does it in the exercise room, so I can take the toddlers with me and let them run around while I have it done. (with all the parents approval of course)

If you have never had it please give it a go. Tis fantastic.

Wow - great news. I know there can be very mixed results from acupuncture with fibro, my dh had some benefit but nothing like what you're describing.

How did you manage to get a referral to a physio for help with gentle exercise?

I see a rhumeloigist every 3 months (well supposed to it has been longer sometimes to get appointment) and he sent me to see the physio, which to be honest is the only thing he has done, when I was diagnosed he told me I had it and to go away and 'educate' myself about it, and gave me some websites! and would see me in three months!

It was on the next appointment that he said he would send me to the physio, took another two months to see the physio, the first one just showed me some exercises, using a rubber band thingy.

I was to go back and see her, but she couldnt fit me in, so moved me to another physio, it was the second one who gave me the acupuncture.

tribot, Ive read your threads and I am no where near as bad as your poor DH,. So maybe that is why it has worked for me more.

How is your DH doing.

Crikey. Dh saw the rheumatologist once when we moved up to Leeds (had very briefly seen one in Suffolk but the diagnosis has never really been confirmed). This one took loads of details, got really grumpy with me about things I couldn't remember, acted like dh should never have been referred to him (basically he hadn't seen the referral letter until that session - like that was my flipping fault) and said he would investigate and let us know what tests he was going to order.

Did he do that? Did he heck. He just forgot about us. When I wrote and said "here's some information I've got in my file of stuff about dh if that helps you decide what tests you would like?" he basically wrote back and said "why should I care? I can't do anything for you, there's a fibromyalgia support group at Chapel Allerton, bog off".

Yet another dead end in our search for anything that might give dh any quality of life.

So whilst yours has given you a modified version of this standard rheumatologist experience, at least he does want to see you again. AND referred you to someone useful!

Sorry Shoshable - cross posts. The acupuncturist dh saw in Suffolk said often he doesn't get good results with people with fibro, but some do, seems just to be luck really.

Dh is same as ever. They now suspect he may have hypogonadism (induced by the idiot doctor who prescribed him liquid morphine for 18 months ) which at least is treatable. Naturally Leeds Teaching Hospitals Trust had to snatch that slight ray of hope from us (temporarily - I hope) by bringing forward his next appointment and then the next day writing and saying "we're putting in a new booking system that will give you, the patient, a choice of when you are see [a choice you already have, btw] and as a result, we're cancelling all the existing appointments. But we promise not to forget, and we'll phone you at some point. Probably."

It never bloody ends.

But glad you are getting some help, hope the acupuncture keeps working for you.

I would go back to your GP and see if he can refer you to a physio, when the Rheum told me that I went to see my GP, who said 'Dont really know much, come back in a week and I will read up'

went back and she gave me a low dosage AD to help with sleep, (which actually didnt work, but at least she tried) and gave me Codeine.

Again she likes to see me once a month, so it seems I am getting alot more help. She cant really do much, but likes to see me just to make sure its not getting worse. She also put me in touch with the local group.

We are in Dorset, and must say that the health service here really is quite good.

Can you demand to see a Physio?

You see your Rheumy every three months!. I saw mine in March, and she said "Since you're moving I won't see you again, there's no point". Fair enough, but new docotr doesn't seem interested either!No chance of a referral to a physio yet then

Good morning Saltire sent you a email. Try seeing if your GP would refer you.

Aslso find that taking Synadol at morning/night works stops the headaches alot and helps sleep cos was waking in the night with awful headaches.

physio is talking about sticking needles ion bak of my neck to see if that helps

I don't get a lot of headaches, I must admit. I take 20mg of AD's - Amitryptiline every night, I also take Syndol with Ibuprofen if the pain is really bad at night, I think it was Greensleeves who recommended it to me. I have Co-codamol 30/500mg, but they make me feel sick. TBH I think my new GPs practice are a bit odd, don't feel very comfortable with them, especially having to pay £95 to get medical form signed. He said (GP) that he wans't going to do anything until I had been to see a pain clinic!

Im still waiting to see the pain clinic, maybe they will refer to physio.

Why oh Why are we all getting such different treatment