Best doctors for hypothyroidism?

[StartingAgain33]

I highly suspect I've got hypothyroidism. Have all of the symptoms, and a random blood test from my fertility clinic just showed me that I also have an elevated platelet count which is apparently a symptom. I always have a temperate below 36.2, my hair is falling out, I'm tired, have chronic depression etc. I also always have inflammation in my blood and they can never explain why.

The issue is that when I've had my thyroid levels checked, the levels seem to be normal. I don't feel I can go back to the doctors and ask for more tests, even though I think they just did the basic t4 (from looking online the best ones seem to be TSH, free T4, free T3, TPO antibodies and Tg Antibodies). I feel like they don't take this seriously.

I don't have a lot of money, but I want to get this sorted. Does anyone know how else I might get this looked at properly? I'm in London - is there someone good I can go to for a diagnosis? It seems like in general GPs are crap at understanding this condition - especially if T4 is within normal range?

I don’t have any suggestions OP but I have hypothyroidism and it was only detected after I failed to conceive. It was talked about on a thread a few weeks ago. It is widely underestimated how the thyroid can affect fertility. I will see if I can find the thread.

I'm hypothyroid (Hashimotos) and have been since age 23 (37 now) I ended up with myxedema coma because they kept failing to do the right tests. I would go back to your Dr's and demand a full thorough thyroid test.
I'm 16 weeks pregnant and hyperthyroid now, the thyroid affects everything and shouldn't be taken lightly.

Not good at links but it was posted in AIBU 21/01/20 and titled Hypothyroidism and fatigue

Can you post your thyroid blood test results?

Thyroid UK suggest places to get private testing done. With normal T4 & TSH, you will be hard pushed to get GP to run other tests. You may well find a private endocrinologist who suggests you should be treated with thyroxine, but NHS GPs work to different ranges & can still disagree. You can try private testing & see GP with results.

www.thyroiduk.org.uk/tuk/testing/private_tests.html

Thanks very much @QueenOfOversharing - have just ordered a big test from Meditests as I just CBA with waiting weeks for a GP appointment and also just don't think they'll let me have everything I need. It's a lot of money but worth it if it means I can go to them with results. Let's see....complicated thing is i've just started egg freezing so am going to have to hold off on taking them. I ordered a big one including hormones also and they'll be very out of whack for a while.

I'm not sure if the nice guidelines are out yet but the reference range for conception and pregnancy is different - this was enough to help my friend get put on thyroxine.

There are key times of the day and month where tsh might be higher; early morning fasting and mid cycle around ovulation.

Some gps are better than others so it might be worth changing drs.

I was very impressed with Mark Spring at Parkside Hospital, Wimbledon, when dd was unwell a few years ago.

@raaaasss (and anyone else who can help me interpret)

Here's my test results:
TSH - 2.000 mIU/L
FT3 - 4.03 pmol/L
Free thyrozine (FT4) - 13.9 pmol/ L
Thyroxine - 105.2 nmol / L
Thyroid peroxidase antibodies (anti-TPO) - 5iu/ML
Thyroglobulin antibodies (anti-TG) -

Your TSH is perfect. I'm not confident in interpreting the rest though so hopefully someone will be along soon to help you with that.

We need the reference ranges before we can interpret your results. These vary from place to place so without them it's just guesswork. They should be on your printout.

@LittleBoyJuly2020 - Sorry to crash the thread but how do you know you are now hyperthyroid? I’m hypo but think I may have gone hyper too. I have to see my doctor tomorrow. Do you know your blood results? x

@Sarahlouiseis33 I found out at 8 weeks pregnant with a routine thyroid blood test. My level was 0.02 then, I saw a consultant who had me do another test at 12 weeks and is was at 0.4 so a bit better.
They're not changing my medication for now, just going to have blood tests every 4 weeks until birth and then every 4 weeks until about 4 months post partum x