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Anybody know about hypermobility syndrome

53 replies

revelsandrose · 01/12/2019 17:42

I stumbled across information about hypermobility whilst googling about my painful back.
After reading I think it may apply to me, if I list my 'symptoms' could anyone say if they think I might be right. I'm due to see the the doctor this week about pain relief for my back, but don't want to be laughed out of the place for claiming I have this from googling!
So, my palms do touch the floor without bending my knees, fingers bend back, one thumb can bend to wrist, my knees bend 'backward', all of this bendiness was much more pronounced when I was younger. My knees have dislocated from turning over in bed multiple times, I really suffered with knee pains when younger and I remember being taken to see somebody who watched me walking etc and said my hips, knees and ankles weren't positioned correctly and I had insoles made for my shoes, those are long gone!
I have suffered with ibs a lot, ranging from constipation to diarrhoea, I have a lot of stomach pain which I take omeprazole for and have had my gallbladder removed.
I'm always tired. I just always thought I was a total hypochondriac to be honest, but all of this seems to fit with a hypermobility diagnosis.
Would it help to have a diagnosis for my back pain, at the moment I'm just told it's probably sciatica and prescribed strong painkillers for years, no scans or other tests have ever been done.
Thank you if you managed to read through all of that and fully prepared to be told I am a hypochondriac Grin

OP posts:
GlamGiraffe · 05/12/2019 15:41

@revelsandrose
That is absolute tosh. What planet is your GP from? For they normally seem knowledgable? Mild
hypermobility can be relatively common, more extreme hupermobility which causes problems such as frequent twisted ankles, dislocated joints (or subluxations where the joint slip out of line slighyly) knee pain and miss alignment, hips which move out of place and things like this. Diagnosis is often made by rheumatologist and orthopedic surgeons following incidents like this, physios can also give you a heads up on it too. It you do come up with a positive diagnosis the beighton scale is crucial in this test along with a skin and joint exam you will need to be carefully advised about what you should and should not do for your particular joints. Do you suffer particular joint trauma apart from the lower back? You can pm if you wish.
I'm wondering if you should go back and request a referral.

HarrietTheFly · 05/12/2019 17:47

I've been diagnosed with eds, apparently am very hypermobile. Have arthritis and early wear and tear in a lot of my bones, misaligned discs in my spine. Diagnosis has helped me mentally as I've been worried my symptoms were all in my head, but practically it has made no difference. My GP won't prescribe pain relief and has given me no advice on how to cope and I'm at a loss now really.

PickAChew · 05/12/2019 18:53

Lack of stretch marks is a bit of a red herring. I'm covered in them, right from the backs of my knees to my upper arms/armpits. Pregnancy left my belly like saggy dough.

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