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Eneuresis (bed wetting) alarm: any experience?

66 replies

marthamoo · 27/09/2004 10:23

Those with long memories will recall that I asked for ds1 to be referred to a consultant way back in April (just after his 7th birthday) as he is not, and has never been, dry at night - still in nappies.

Since then we have tried Desmopressin which had no effect whatsoever, even in the higher dose, and we finally (6 months after initial appointment) got the eneuresis alarm on Friday. Somehow the paperwork got lost and so we didn't get the alarm in time for the summer holidays, which would have been far better.

Thus far (bear with me):

Friday: alarm went off at 10.30. He didn't wake up (this thing could wake the dead - it is deafeningly loud). Changed sheets and jama top - back to bed, slept 'til 7 and stayed dry.

Saturday: alarm went off at 9.30 (didn't wake up again)
3.00 He did wake up, but not in time to catch the wee - he was wet through.
4.15 alarm again - did wake up - smaller wet patch so maybe it did wake him in time to not finish wee-ing, iykwim.

Sunday: alarm went off at 9.55, 10.40, 1.15 and 6.30. The latter two times he did wake up but was still wet through.

Poor kid was in tears at 1.15 and 6.30 - and has gone to school looking like death warmed up, with tiredness.

I am feeling pretty despondent myself (I know - it's early days). How can it work if it doesn't wake him up? I think it depends on how deeply asleep he is (he seems to wake in the small hours of the morning, but not in the first part of the night). Even when the alarm does wake him, it is too late and he has already weed.

Any experience/advice? The nurse at the clinic said it takes about 2-3 weeks to work, and we must persevere, but he is soooo tired (so am I). She has also advised we avoid known bladder irritants: tea and coffee (?), fizzy drinks, acidic drinks, and chocolate. And he is to drink as much water as possible to stretch his bladder capacity.

Has anyone used an eneuresis alarm and succeeded with it? How long did it take? Any other ideas?

TIA from a cross-eyed moo xx

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marthamoo · 29/09/2004 12:52

Well, after his nocturnal trip to the toilet he wet the bed twice more (3.15 and 5.30) BUT, at least the alarm woke him both times. Feel like it is a little step forward. Jan- he did remember and was very pleased with himself (I praised him to the skies of course ) but he was very upset with the subsequent bed-wets. Been out today and bought more pj's - we don't have enough.

Thanks for all the support - it is much appreciated.

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lou33 · 29/09/2004 15:38

Another recommended way of trying to stop bed wetting is to keep them naked from the waist down. Makes them notice it more apparently. Maybe not a good idea if you have a cold house though.

marthamoo · 29/09/2004 21:06

Opposite problem, lou - the nurse at the Eneuresis Clinic said that, so that's what I did initially only he's such a hot little bod, he sweats a lot (cool room, no heating on, sheet and thin blanket) and it kept going off with the sweat - of course he's lying on the plastic sensor mat with just a cotton sheet between him and it so that aggravates the situation even further. I've found it's better if he wears pj's - though I guess it does slow down the alarm going off with the wee. Will ask the Consultant when we go again in October if he has any ideas about that.

Poor kid - he may have a bed wetting and sweat problem - but he's lovely, honest!!!

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JanH · 29/09/2004 21:10

Oh moo, I didn't realise he had a mat! There are better solutions for hot sweaty little people - the kind with a remote sensor that fits inside underpants (need 2 pairs usually), with a small buzzer/vibrator/alarm attached to pyjama top.

See how you go but if it keeps going off because he is hot, go back and ask for the other kind.

marthamoo · 29/09/2004 21:25

Thanks jan - I will see how he gets on, but that sounds like a much better arrangement.

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lou33 · 29/09/2004 21:26

I'm surprised they ahve given him amat style one. The modern ones are small sanitary style pads that slip into the pants, and the sensor is hidden inside the pad, which is connected to the battery bit clipped onto the pj's.. Ask for one of those, poor lad.

lou33 · 29/09/2004 21:27

Oops, sorry I didn't see Jan had said the same thing. The new ones even give you a choice of noise to select, and the buzzy ones just vibrate .

marthamoo · 29/09/2004 21:29

Oooh, we have a choice of three noises - we're not completely antiquated you know! We have BEEP BEEP BEEP! And beepbeepbeepbeepbeepbeepbeepbeep! And BEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEP!

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lou33 · 29/09/2004 21:30

Oh they all sound so good how can you choose?

marthamoo · 29/09/2004 21:32

We're saving the BEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEP! one for a special occasion.

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JanH · 29/09/2004 21:32

The one DS1 had at about 7 went BRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR and woke the entire house (but not him! even when we put the buzzer box inside a biscuit tin for amplification!)

Davros · 29/09/2004 21:34

I was thinking of the type Jan and Lou describe, which is why DS just pulled it off!

lou33 · 29/09/2004 21:34

we had that problem too. Kids running screaming from their bed in the early hours, but nothing rousing dd1.

marthamoo · 29/09/2004 22:13

It never rains but it pours....ds2 just puked all over his bed....

Ha! I laugh in the face of adversity; I soldier on when others would falter; nothing deters me from carrying on the good fight BUT...do these kids not realise that I have a finite number of single bed sheets?

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lou33 · 29/09/2004 22:16

Sleeping bag?

JanH · 29/09/2004 22:17

awww, moo

hahaha

(Jan laughing in the face of adversity along with moo.)

marthamoo · 29/09/2004 22:17

There is one under the bed...and we have a Bob the Builder ready bed (though it's not ready - it needs blowing up first). I may take the B the B bed and go sleep in the shed.

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marthamoo · 30/09/2004 14:37

Well.....last night I went to to bed about 11.30 and I stuck my head in to check on ds1 as I always do. The alarm hadn't gone off at all by then. He woke up (doesn't usually) so I suggested he go to the loo, which he did. He then slept til 5.30 - and woke up dry ! Bad news was he came down at 5.30, said he felt sick and promptly threw up - but still, no wee!

Ds2 was up at 4.30 so I am completely shattered, and they are both washed out and listless today (have kept ds1 off school, obviously). But still - that's a great step forward, isn't it?

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marthamoo · 01/10/2004 11:05

Latest installment (should be on a "Proud!" thread). Last night he got himself up twice to go to the loo (11.40 and 3.30). Alarm didn't go off once and he woke up dry.

I am not counting my chickens but I would not have believed he was capable of doing this a week ago - I am so pleased

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lou33 · 01/10/2004 11:06

Well done dh

marthamoo · 01/10/2004 11:07

Lou, dh hasn't wet the bed for....ooooh....ages

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lou33 · 01/10/2004 11:08

Moo's dh is quite a young mayaan you know. I have a crush.

JanH · 01/10/2004 11:20

moo, I am really thrilled for you and DS! That's exactly what is supposed to happen with alarms - training the brain to recognise the signal - for it to happen so fast is fantastic! It's only a week!

marthamoo · 01/10/2004 11:24

I really am trying not to think "hey, we've cracked it" as it seems way too fast (call me a pessimist). He has to have 21 consecutive dry nights before we take the alarm off. But I am thrilled to bits at progress so far, thanks !

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lou33 · 01/10/2004 12:00

Does sound like good news though moo. Can you come and sort my dd's now please?