Epilepsy- how does your OH cope?

[Clumsywith2leftfeet]

My question is in the title. I can't imagine what my DH goes through on a day to day basis with regards to my Epilepsy. He won't talk about it. Whilst I appreciate everything he does for me without complaining, when I'm having a period like now with several seizures a day I feel confined to bed as he feels I'm safer here (and I probably am) and so alone when I'm not post-ictal and he rarely comes up to me and I feel kind of "out of sight of of mind" like he doesn't want to spend the time I'm coherent in with me. I honestly don't mean to be ungrateful but I'm finding hard emotionally and so tiring and sometimes just need to be held (yes I've told him this). I feel ungrateful and guilty so much

How do others OH act and how do you feel?

Mine happen during the night and happened a LOT during pregnancy and a while after baby was born, he's great, makes sure I'm safe/I'm ok after but I generally just fall asleep again... he kind of just lets me be, doesn't fuss which I like

Obviously I've had episodes where I've fallen etc and he's always made sure I'm ok, I have severe migraines too and that's when he just leaves me alone to sleep, sometimes he'll quietly place food on my bedside table but I never eat it!

Thing is it's totally normal to feel low after a seizure, so you may be more emotional and sensitive, he may just think you need the rest and not to disturb?!

Oh and my partner when asked to describe a seizure I've had, what happened etc doesn't like talking about it, he won't in fact, says it upsets him but if I ask him if I had one (sometimes it's a blur!) he'll say yes or no and the basics! He's watching someone he loves, for all he knows, in pain!

I try to explain it doesn't hurt but it upsets him to see me like that x