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Any migraine sufferers out there? Having a horrible time..

27 replies

WalkThePlank1 · 22/10/2019 10:51

I've suffered with migraines since I was a child but since having my DS 3 years ago I've found they've gotten worse/ my ability to cope with them is less.
Last Sunday I had an attack so bad my partner took me to A&E. I felt like someone had hit me in the head with an axe. The pain was in the back of my head and my neck as well as at the front of my head. The only other time I've had an attack that bad was a couple of years ago. I had a CT scan and a lumbar puncture back then and everything was clear so this time at A&E they just treated it as another severe migraine.
Since then I have seen my GP who has prescribed me some more rizatriptan to take when a migraine occurs and amitriptyline to take as a preventative medication.
I'm quite hesitant to take the amitriptyline as I don't know why but I'm scared to be on long term medication.
I also didn't want to have to take the rizatriptan as I get worried about rebound headaches but this morning I woke up with a headache that was rapidly getting worse so I took a rizatriptan which has gotten rid of the headache but left me drowsy and with brain fog.
Im feeling really anxious and scared constantly to get another attack. I'm scared when the rizatriptan wears off the headache is going to come back. I'm scared I'm taking too many painkillers and am going to have rebound headaches.
I think I will start the amitriptyline tonight as I don't want to go on getting these headaches.
Has anyone else taken this and had success? Does anyone have any tips for dealing with migraines/ preventing them.
It's becoming next to impossible for me to look after my DS as I'm having them so frequently and so painfully.

Sorry for the very rambley post. I'm just so anxious about getting another attack that my heads all over the place.
Thanks for reading if you made it this far. Any advice appreciated.

OP posts:
NoSquirrels · 25/10/2019 23:40

I think the main thing I'm suffering with is the anxiety and fear that it'll happen again soon. It scares me as I'm on my own with DS and I have no idea how I'll look after him if I get one. It's a bit of a vicious circle really as I worry about getting headaches and worrying gives me headaches.

This is my DH’s issue, and he was on amitriptyline etc. Eventually referred to a migraine clinic, he has no physical triggers except for lack of sleep, and they suggested it was psychologically triggered... he REALLY resisted that diagnosis for at least 10 years but eventually (prompted by other issues) took up meditation and had some CBT-based counselling and it’s been really helpful.

He still gets migraines but with nowhere near as much frequency and doesn’t tend to get one after another after another like he used to.

Dodell27 · 20/11/2019 16:29

I know this is a few weeks old, but I thought it was very relevant for me. I've suffered for 10+ years with migraines (hemiplegic), done a lot of research and tried a lot of things. I'm now doing a lot better and they are a lot less regular or severe. I get exactly what is being said about it being a vicious cycle with anxiety. Maybe doing some of the below might help reduce that...

  • I found mine were very closely related to my period, so use a tracker like Clue to realise when you are most at risk. Take it easier during those times - sleep, eat well, stay hydrated etc. They are all big ones for me.
  • Diet could play a big part too. I know a lot of migraineurs are into Keto but that might be a bit extreme. Whereas it could be a case of reducing things like caffeine (withdrawl from a spike is a trigger for many people), red wine and chocolate.
  • If lights are a trigger then consider blue light screening glasses, or filters for any devices or screens you use.
  • There are also accessories specifically for migraines like the HeadTerm TENs machine that it could be worth trying out. I've personally found acupuncture has provided some relief too.
  • The weather ex app could also be benficial if your migraines are related to air pressure, it can be used to give you a warning when there's going to be a drastic change in your local air pressure.
  • There are a few natural supplements out there too which have ingredients based around those which are often found depleted in migraineurs. Whenever I've spoken to doctors about it they've recommened ensuring my iron, magnesium, Vitamin b12 and zinc levels are managed. Some examples here.

Hope that helps. If I can think of any more tips I'll let you know x

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