No easy answers, OP. It's a horrible illness which can devastate lives. I know a few people who have suffered with it.
On the plus side, most of them have made a significant recovery, although I don't think any of them would say that it has actually gone. The acute (i.e. totally debilitating) phase lasted between three months and three years for each of them, but they are all now able to live reasonably normal lives. They do have to pace themselves and take care not to overdo it as there is always a risk that they could relapse. Two of them manage to hold down a job.
Sadly, one of my former colleagues has been ill for several years now, with very little relief. She is generally unable to get out of bed, even for meals. She does have short periods when she is a little less unwell, but no sign of any longer term recovery as yet. I believe that she has found some alternative therapies somewhat helpful - acupuncture, if I remember correctly.
It's obviously awful for your husband but I think it's important to acknowledge that it's very difficult for you and the children as family members as well. Your whole life is turned upside down with this sort of illness. The only advice I can offer is that you shouldn't try to cope on your own. Ask friends and family for help. I ended up doing quite a lot for a close friend when her DH was sick, as did many other people. I think it was hard to ask at first, but actually, we were glad to be able to help out. You need emotional support for you too, because you will no doubt feel angry, sad, frustrated and lots of other emotions, so you will need to be able to vent sometimes.
I hope that he starts to feel better soon.