Posting here for traffic: does this sound like Crohn's?

[MyBeloved]

History of IBS.
Erratic bowel movements.
Loose stools with some pus (sorry) for almost 2 weeks now, going between 5 and 8 times per day.
Fissure with a sore ulcer slightly above the fissure also.
Exhausted.
Forgetful.
Nausea but no vomiting.
Pain in lower right hand side of abdomen.
Rectal pain is so bad I am off work.
Weight loss in past month without trying.

I am waiting for results from samples.

Thanks in advance.

Thank you for all the information, advice - and for sharing your stories.

calll, I had a colonoscopy about 4 years ago which was normal, hence the dx of IBS. Things have changed a lot since then though, particularly in the last year. I had 3 x abdo surgeries (gynae) and wonder if the change might be linked to that?

buster, sounds like you have had a horrible time of it. Are you still able to work? I can understand when you explain you just have to live with it. I hope you found a lovely dress - you definitely deserve it

Sorry, tmi I know, but on my 3rd poo already and only been up 2.5 hrs! This is doing my head in!

I have Crohn's and regular calproctin tests. When I am in remission my levels are still higher than a 'normal persons' although good for me compared to when I have an active phase so they should be able to detect IBD if you have it. They will look at your blood tests to see if the CRP levels indicate inflammation amongst other things.

While having Crohn's or UC is not fun, there are lots of fantastic drugs available to help us manage the condition and in many cases remain in remission for years at a time. Newish diagnostic tests such as fecal calproctin are also much better, faster and less invasive that in the past. Hopefully you'll get some answers pretty soon.

I second going on a bland beige diet while you are unwell. All the white carby stuff you're not meant to eat (white bread, pasta, rice, fish fingers) -go for it! Stay clear of raw veg, fruit and other healthy delights!

Good luck. Also Crohn's and Colitis charity has lots of useful info and a hotline if you want to speak to someone.

Op I don't work due to family circumstances, I think it sounds worse than it is, my biggest issue is tiredness but I'm okay. I'm currently not medicated due to living outside the uk and lack of medical care!

I just get a bit down with it and like a good moan on an anonymous forum!

Thanks both. If i am diagnosed with IBD, I will certainly look at that charity, Betty.
Buster, you moan away - better out than in
The only result Im now waiting for is the calorotectin. The other samples have come back normal.
I know it is strange to say this, but I really hope something concrete is found. My imagination is going into overdrive if it isn't IBD. At least I will know what lies shead.
Forced myself out of the house today, took some clothes back to the shops and ate a filet o fish and chips. Is that beige enough?!

At least when you have a diagnosis you can move forward, love a bit of McDs, so beige and bland that it's a delight! 😂
My stool sample took months to get back but as I've heard since (on various forums) that's quite rare.

Hmmm, your abdo surgeries make me wonder about coeliac too. That often happens subsequent to abdominal trauma. I know what you mean about wanting a diagnosis, the "what if this is nothing?" feeling is bloody terrifying.

Checking in to say hi and hope you're all having a lovely weekend.
Symptoms are easing very, very slowly so managed a night round at a friend's (felt dreadful the next day, and 1 gin and tonic made me want to throw up ), and went for a drive out with DH in the countryside today.
I feel shattered now. I'm desperate to get back to the gym but scared of exacerbating my symptoms. Definitely don't feel able to work yet...feel so guilty for my team.

Hadn't thought about coeliac. Wouldn't my symptoms be continuous rather than coming in 'flares'?

I don't know enough about coeliacs to know whether it can flare...sorry! I hope you get some answers soon. The big thing I recommend is self care--do things that make you feel human as much as possible.

Thanks for the reply callit.

So, surgery have told ne it will be a few weeks before I get my calorotectin results. I have been given a number to call to book my colonoscopy and ultrasound tests.

Getting impatient, but know this is just how it is