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Does anyone get heavy, painful periods and worry what the future holds for their dd?

38 replies

foxinsocks · 14/07/2007 09:51

My mother had a life long struggle with period problems culminating in a hysterectomy when she was in her mid 30s.

I have suffered from the same thing - can honestly say that in 23/24 years of menstruation, not ONE GP has ever taken my complaints seriously - almost all have been of the 'just get on with it' brigade. Only now, when I have finally paid to see a private gynaecologist, have I had any of my concerns taken seriously and even then, the GP is not supportive of the consultant's treatment (sigh).

It struck me today that poor dd could suffer from the same plight - I know she might not but I DESPAIR of that fact that so many GPs seem completely dismissive of period problems as if they are just a cross that women have to bear.

OP posts:
lizziemun · 14/07/2007 12:19

Not me but my sister.

She started at about 9yrs would bleed for a week or 2, the doctor would come and give her injections to stop the bleeding. I was about 15yrs and they last a 2 to 3 days.

The doctor put her on the pill when she was 11, but this only masked the probelm rather trying to find out what was happening to her.

It was only when she had to have her gall bladder out when she was 25 was problem sorting. Not only did she have PCOS and a cyst on her liver they found that she had a mild blood clotting problem.

She is now left where she cannot have children.

I have to I know that both my nan and my sister have had this, so should dd have a similer problem i will fight the doctor to ensure gets the treatment that she needs.

missis · 14/07/2007 12:20

Did anyone or is anyone losing hair, 3-4 months
after birth

dazzlincaz · 14/07/2007 12:46

Period problems can be a real nightmare. My mother had a dreadful time which I clearly recall from the time my youngest sister was born until she had a hysterectomy 17 years later! That was a very long time to be ignored by the medics who said things like 'lose weight and the problems will lessen'. She found it impossible to reduce her weight and it was only when she finally found a sympathetic gynae that she had surgery which transformed her life.

In the past couple of years my periods have got a lot heavier to the point of being totally debilitating at times. That affects all aspects of your life - socially, practically, emotionally - it can be a nightmare. I went to my GP who prescribed Tranexamic Acid and Ibuprofen (and iron when I was anaemic, but I can't tolerate the stuff, my body just wants to be rid of it!) The Gynae I was referred to suggested Norethisterone tablets to be taken on day 5 till day 21, at least then I knew when and for how long the menstruation would last!! Sometimes my periods were heavy and went on for three weeks.

Two things have helped. One is the Mirena coil which is basically slow release hormone and a contraceptive. I was very reluctant to try it as I had read some awful threads on MN about it and the problems some women had with it. However, I was so desperate to try anything by then (and the Gynaes kept saying they would not do a hysterectomy due to my weight, which had increased, partly due to inactivity and extreme fatigue because of the periods - vicious circle.) The Gynae registrar at my last appointment suggested giving it a go as it suits 70% of women. It has not stopped my periods altogether and I have a discharge type loss for about 2 weeks and heavier (like a very light period) for maybe 5 days in a month. But it is hard to detect any pattern. I don't care though, as this is completely manageable as far as I am concerned, versus my life before!!

The other thing that is helpful is the Mooncup. I had one before I ever read about it on MN, but it seems to help with pain, though my main problem symptom had always been excessive volume of loss rather than cramps, etc. Other users have commented about less pain, noone seems to know precisely why that is. The Mooncup has saved me an absolute fortune on sanpro, didn't take me long to get used to it, and is very effective. It is also useful as you can accurately judge the volume of loss, if you are reporting this to a doctor - they say what is heavy for one woman is not to the next, etc - however, when you know how many times in one day you emptied a full Mooncup, you can tell them precisely!!

It sounds as though several posting on this thread may well have endometriosis, whereas my problems stem from fibroids. In fact, my GP said she could feel them when she examined me and considering my weight (BMI then @ 43!!!) I was amazed that she could detect them under all the spare tyres, but the ultrasound proved her right.

Good news is, that after two months of the Mirena being in, I felt so much better that I was up to tackling the weight problem, enrolled at Rosemary Conley classes in March and have since lost 54 lbs

There is hope, just keep on to find your answer. Sorry this is a mammoth post!

FoeGlassSlipper · 14/07/2007 12:53

i have bought a mooncup and plan to use when periods return.

foxinsocks · 14/07/2007 16:06

well done on your weight loss dazzlincaz - that's seriously impressive! Unfortunately, the mirena didn't agree with me but now I've got the gynae, I feel confident that he will help sort things out!

I think it's just the thought that if dd has something similar, that, possibly, it will be a fight to get anything done about it. At least, I suppose, we are in a position where we would and could support them/fight for them to get help (which I never had when I was a child/teenager).

Periods are a nuisance aren't they!

OP posts:
AttilaTheMeerkat · 14/07/2007 16:49

Many GPs to my mind would not recognise endometriosis if they were presented with a classic case of it. The level of ignorance is quite surprising really, bearing in mind that endo is the second most common gynae problem seen in women after fibroids. Endo was not spotted by my GP and I had some of its symptoms (pelvic pain, painful periods, heavy periods to name but three).

I've had endo since I was 14 (I used to get awful pains up to and during menstruation) and it took me many years to get diagnosed.

Ponstan and the like can help in the short term but it does not address why this is happening in the first place.

Endometriosis is often only diagnosed during a keyhole surgery procedure called a laparoscopy.

www.endo.org.uk is the website of Endometriosis UK - a charity designed to help women and raise awareness of this disease.

Hyst is not always recommended for endometriosis cases these days as endo can recur post hyst.

foxinsocks - what treatment has the gynae recommended?.

foxinsocks · 14/07/2007 16:53

I'm on a gonadorelin (LHRH) analogue - like zoladex but not that specific one. I haven't gone for a lap yet because my cycle had so many problems (I think I've posted before and you've read it so forgive me if I'm repeating stuff ) - the menstrual migraines which were so debilitating, the heaviness, the pain (and the way I get the pain is almost textbook endo) and the PMT that when I saw him, I just begged him to give me something that would, at least, give me some respite!

What is happening with you now?

OP posts:
AttilaTheMeerkat · 14/07/2007 17:12

Hi Foxinsocks,

Thanks for asking.

I think I will need to visit the gynae again. Not looking forward to that but needs must. I will also need to talk to him about HRT and whether it will be suitable for me to take when that time comes.

Several years ago endometriosis in my uterine cavity was diathermised out (this is a method using an electrical needle) but over the past few months menstrual pains similar to previous times have made an appearance.

foxinsocks · 14/07/2007 17:26

oh I'm sorry to hear that it's coming back.

I am very much looking forward to the menopause. It can't come soon enough imo!

OP posts:
Marne · 14/07/2007 17:37

Yes my mum had heavy long periods resaulting in a hysterectomy at 40, i also suffer (am suffering rite now ), i suffer for 14 days since having the dd's though i have always had heavy periods but only lasting 5-7 days. Im only 25 but at the moment i feel menapausal (suffering from hot sweats, bad back, PMT)

I hope my dd's dont suffer from this.

dazzlincaz · 14/07/2007 18:33

It is worrying that our dds may suffer as we are - and there does seem to be a lot of evidence that such problems run in families. Certainly is for us.

My hope is that before long there will be some breakthrough discoveries in gynae management which will solve the problems.

Sorry to read your experience of the Mirena was not good, Foxinsocks. Let's trust your gynae sorts out the issues (scuse the pun)once and for all, and soon. The nuisance of it all can take over your life in so many ways - and it is awful to realise that this affects some women from their early teens as described on this thread.

camperkid · 15/07/2007 09:10

I worry too about what future may hold for DDs. My mum suffered too but she always took the practical approach and I was expected to get on with it. Right from the start at about 13 my periods were a problem. They were painful and irregular to start with but then settled down. My main problem has been that they were just heavy and I was always paranoid about leaks which seemed to happen all the time.
Going on the pill reduced the flood to manageable proportions, but since the children and then coming off the pill its been a real difficulty. I tried the Mirena, but didn't get on with it and have taken Ponstan but it wasn't that effective. My GP has suggested an ablation as the next step. I ponder every month about it and then think well maybe next month, particularly as I don't ever feel too poorly. Its really the inconvenience. I find that is just doing the normal things that can be a real challenge and I really don't want to go out for the first 4/5 days. When the children were younger it was a major planning exercise just to get them to and from school! I had to wear left-over babies nappies and the like to get there and back without a mess. If they were just 5 or 10 minutes late coming out of school, you can be stood in the playground trying to hold a conversation and feeling what was happening and knowing that you would have to just hope you would get home in time.
I spend a fortune on sanpro every month and still end up with a heap of extra washing. Last summer we were travelling to the West Country for a break, and we planned stops at every service area. Even so, I got through 3 pairs of jeans. Finally, getting stuck in a traffic jam for 2 hours was a complete nightmare. Nowhere to change and I bled through everything. I spent the first day washing. I now use Tena pants if travelling (they are useful anyway but quite expensive), especially if out and about for the day. Anyone any better ideas?

AttilaTheMeerkat · 15/07/2007 09:37

camperkid

Has your GP ever referred you to a gynae; this problem has had to date an awful effect on your day to day life. You should not have to put up with this!.

I would insist to your GP that you are referred to a gynae as a matter of course for further evaluation. Fibroids for instance can cause such problems, I'm just wondering if your GP ever suspected that.

Ablation is not suitable for women who have endo, adenomyosis or large fibroids.

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