well i was in there from monday till tonight. ds 2.9 was put through 3 dehydration tests to try and confirm the diabetes insipidus (hormone problem), it was pretty horrific, he dehydrated so badly that he had to be put on an emergency drip but because the results were inconclusive he had to be dehydrated twice more. he definitely cannot concentrate his urine and they are flummoxed as to why. they have told me it is definitely not a habit of water drinking which is fantastic to hear. we didnt sleep from tuesday morning till when i go to bed tonight as he wanted water, the nurses were fantastic. ive never met such caring, attentive nurses in my life. we were all so upset hearing ds say "mummy, water, water, please,please,please" and we had to say no.
they made me cups of tea all night long, wonderful wonderful nurses.
the mri scan, which the local hospital said was normal, was redone and read by the top man in the UK and ds has an undeveloped front part of the pituarity and the back part of it is mostly missing. that explains why he has the hormone problems with retaining water and the undescended testicles, and his slow growth. it is so good to be finally believed after being treated as a neurotic mother by the local hospital, my docs etc etc.
ds is now back on the injections ive been giving him for a year to help him retain fluid, hes on male hormone treatment muscular injections for the next 2 weeks to see if his testicles come down, if they dont they will operate to try and find them. more tests will follow to do with his pituarity gland and i await the results of some of the tests they did.
i really wish id gone to this fantastic hospital when ds was 3months old and his problems started. i just cannot big it up enough for the consultants and nurses for their persistance and kindness in getting my ds diagnosed.