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Experiences of donating a kidney

6 replies

Waytooearly · 10/03/2019 12:57

A close friend of mine needs a kidney transplant. He's got igA nephropathy, which is an autoimmune disease focused specifically on the kidneys. Loads of people with this condition manage with steroids or low-dose chemotherapy, but his condition is aggressive. We've tried all the steroids and chemo, they haven't worked, and now the consultant says it's time for dialysis and transplant.

It's a genetic disease so it's recommended that the donor be a non-relative.

He's an old friend and is like a brother to me. Obviously I have contacted his consultant and am now in the process of getting screened to be a donor. I did a lot of soul-searching and researching before doing it, so I'm entirely certain from my end. I have no kids, I'm in excellent health touch wood.

Anyway, the issue is that he is has reservations about accepting a kidney from a live donor (not just me, anyone). He says he couldn't cope with the guilt of causing someone else's health to decline.

I've tried to counter with stories of people running marathons after donating kidneys, blah blah. I will be fine. Just will need to watch the blood pressure (mine is quite low) and maybe not go riding anymore.

He says all those stories of people being fine after donating are just PR! He says, 'Do you actually know anyone who's donated a kidney and is now fine?'

So, maybe you could help? Has anyone here donated a kidney? Are you fine? Or not so fine? If you don't mind sharing I'd be happy to hear about it.

OP posts:
thenewaveragebear1983 · 10/03/2019 16:57

No experience, but bumping for you. What an amazing thing to do for your friend. Thanks

Waytooearly · 10/03/2019 17:59

Thank you for the bump.

Do you think I should move this to chat?

OP posts:
thenewaveragebear1983 · 10/03/2019 18:07

Yes probably, it will get more traffic there

MissDemelzaCarne · 10/03/2019 18:12

My SIL and FIL both have, FIL was on the upper age limit at just under 65 and lived for another 20 years after it.

SIL did it about 10 years ago and is fit and well. Smile

littlestrawby · 10/03/2019 18:16

A colleague of mine has recently done it for her partner and is absolutely fine!

QueenMabby · 10/03/2019 18:23

My DB has IgAN. He had a live donor transplant from our DF just over 6 years ago. He too struggled with the taking of a kidney from a live donor but the outcomes are much better.
My understanding is that there’s a fairly high chance of the igan returning in the donated kidney regardless as to the familial relationship between donor and recipient but that it’s usually much less aggressive. Interestingly, my DB’s was very aggressive but hasn’t returned in the graft (yet, touch wood!).
Try www.kidneypatientguide.org.uk/forum/viewforum.php?f=2&sid=f13eeace00a3e821ec377deb1854068a
as there’s lots of people in a similar position. HTH.

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