CFS/fibromyalgia diagnosis

[IamAporcupine]

I am aware that CFS/ME is a diagnosis of exclusion but I am wondering if you (who have been diagnosed or are in the process of) could tell me what test you have had? Have you all been seen by a neurologist for example?

The reason I am asking is because I work in Medical Genetics with a population of patients whose symptoms very much overlap those of CFS/ME. However, I have recently talked to a CFS physiotherapist who completely denied that maybe, just maybe, some of her patients should be seen in our clinic instead. I was very surprised by how adamant she was.

So I am wondering how much misdiagnosis there might be?

I can’t emphasise how much cannabis has given me back my life. I don’t use a huge amount, but it lets me have a night out like before I was ill, or a day out. Completely removes the spasms, most of the pain, and allows me to do so much more before my energy runs out. Obviously I can’t use it all the time, as work would be a problem!
ME isn’t one of the conditions the NHS will consider prescribing it for, so I have had to source my own, and smoking is far better than eating it in terms of managing my dosage.

Just thought I’d share this with you. Friend of a friend, but I know her quite well. Had a fibro diagnosis years and years ago. Has been on morphine patches and liquid together for as long as I’ve known her. Had routine bloods done last week. GP called her in. She has an underactive thyroid and is now on Levothyroxine. I suspect she has had an underlying thyroid problem all along and now, finally, something has gone out of range. Poor diagnostics again no doubt.

I didn't realise there had been more posts on this thread!
I will read and reply later

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