ME / CFS getting worse quickly- help please

[notsurewhatshappening]

I've been seeing my GP for 18 months about this and have now been referred to an endocrinologist consultant at the hospital. Bloods have been normal each time they've been tested. GP has loosely diagnosed ME and endocrinologist will investigate further. Symptons: post exertional malaise, flu like fatigue, intolerance to extreme temperature, sleeping 14 hours a day, needing to rest very often, tingling and itching, pain. Feeling really unwell and I know it's not a virus as I've had it on and off for years but now have no normal periods, just illness. This has accelearned rapidly ie a month ago I wasn't nearly as ill as I am now.
I haven't had a single day off work. I'm a teacher part time. I crash after my work days and am useless for the next 2 days. I'm not doing any exercise, no social events, hardly doing anything with the DCS. DH is doing a lot. House is a mess. In laws had DCS all day last weekend but they can't / won't help regularly and are not local.

I'm worried how much worse it could get. I'm on a temporary contract with my school which I desperately want renewing. I love my job and can't face phoning in sick. I'm worried I'll need to soon. Hiding it from everyone at work makes it even more exhausting.

Please be kind as this is genuine. I'm not just tired, it feels completely different to that. Any experience please?

Sorry forgot to add that I'm struggling with the mental energy needed for teaching as well. Brain feels like mush.

My advice would be to go off sick and rest / pace properly for at least a month, longer if possible. I think the additional stress of the pressures we place on ourselves to 'get well' only make things worse.

I continued to fight my fatigue for a year, just ploughing on thinking I'd turn the corner. In reality it just got worse and worse to the point I was completely non functioning and 80% bedridden.

I've had 7 months off work and have just started a phased return- I'm not overly hopeful I'll get back to where I was but I'm taking lots of supplements (magnesium malate, CoQ10, vit D and complex B12) and have felt a bit of improvement.

You and your health come first.
I hope you turn that corner soon.

Thank you for replying. I'm finding it quite overwhelming at the moment. I don't know where I would stand going long term sick on a fixed term contract - would probably end up with it not being renewed which would be devastating as it's my dream job. So hard.