Hi all,
I was diagnosed with fibromyalgia about 8 years ago. I'm on 12 hour slow release painkillers and nothing else. Tried all the antidepressants, various other painkillers, supplements etc. Nothing seems to work other than old fashioned opiates and ongoing physio exercises. I work in a musculoskeletal department for the NHS so I'm always asking advice there. However this has been met with confused looks.
In the last 2 weeks or so I have been having very random jerks. All 4 limbs and in my trunk. Quite violent jerks. When googling it matches a myoclonic jerk which I have always done when falling asleep. Occasionally it causes a pain reaction and I end up getting up out of bed for a stretch and try to sleep again.
Now I will say that I have been sleeping really badly recently. I just can't get to sleep, or stay asleep. It's always been a bit crap but recently it's loads worse. Fitbit tells me I average half an hour deep sleep a night. And wake up breifly maybe 20 times but significant waking for more than a few mins half a dozen times. My son wakes once generally so I can't even blame him. And it was bad before he was even conceived so again, not his fault.
Could my lack of sleep be causing these jerks? I had one at an IUD fitting and nearly kicked the Dr in the face. I get them when driving, sitting, standing. No particular pattern. I sometimes feel very dazed, but not sure if that's due to the jerking or coincidence.
I will also mention work has been unbearably stressful this last 12 months. I was transferred under TUPE to a new provider and I absolutely despise the whole process. It feels alien still and I am on the phone to patients, being called vile names, accused of not doing my job well or properly. I don't care etc. That could be causing a stress related reaction I guess.
Any other fibromyalgia peeps have these jerky movements? I do have some nerve damage down my right arm. But this happens all over.
Any ideas?